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Using service user and clinical opinion to develop the SAINT: a guided self-help pack for adults with intellectual disability
- Authors:
- CHAPLIN Eddie, CRAIG Tom, BOURAS Nick
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 6(1), 2012, pp.17-25.
- Publisher:
- Emerald
Despite the greater prevalence of mental ill-health in people with intellectual disabilities compared to the general population, there has been little work specifically aimed at prevention, early detection and helping this group to cope with mental health problems. This study looked at the first stage of development of a guided self-help (GSH) pack called the Self Assessment and INTervention pack (SAINT). Delphi methods and focus groups were used to gather opinions from two groups: professionals or clinical experts (n=between 15 and 33 at different stages); and service users (n=9), to inform the contents of the SAINT. The Delphi was conducted by e-mail. Results from each round were shared between the two groups to develop a consensus. Both groups were able to reach a consensus of the items that would make up the SAINT. Delphi methods combined with focus groups were able generate the contents of the SAINT and demonstrated versatility in this dual approach. The perspectives of the groups differed. The clinical experts concentrated more on severe mental health problems whereas the service users talked more about vulnerability associated with everyday life. The next step will be to establish the reliability and validity of SAINT prior to pilot testing.
The case for guided self-help for people with intellectual disabilities
- Authors:
- CHAPLIN Eddie, MARSHALL-TATE Karina
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 11(3), 2017, pp.126-130.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to examine guided self-help (GSH), and some of the barriers as to why it is not routinely available for people with intellectual disabilities (IDs). Design/methodology/approach: This paper offers an overview of GSH and the potential benefits of it as an intervention for people with ID with mild depression and/or anxiety. Findings: The current literature reports the successful use and effectiveness of GSH in the general population. However, despite this there is little evidence that it is being used in practice for people with ID. Originality/value: This paper offers an overview of GSH and advocates for its increasing use for people with ID to help bring about equality in mental healthcare. (Publisher abstract)