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No Longer Researching About Us Without Us: a researcher's reflection on rights and inclusive research in Ireland
- Author:
- JOHNSON Kelley
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(5), September 2009, pp.250-256.
- Publisher:
- Wiley
This essay on ‘No Longer Researching About Us Without Us’, an innovative national project which aimed to develop inclusive research with people with intellectual disabilities in the Republic of Ireland, is the author’s personal reflection, as co-ordinator of the project, on work undertaken by and with people with intellectual disabilities during its 18-month life span. Using two examples from the project, focusing on a coffee shop in a small community, and bullying, this paper explores links between the inclusive research aspect of the project, and the rights of people with intellectual disabilities to participate within their communities. As a result of ‘No Longer Researching About Us Without Us’, it was found that people with intellectual disabilities began to initiate and take action on some issues that were important to them, becoming stronger self advocates, resulting in the development of longer term changes in their role within one service in Ireland.
Self-advocacy:vested interests and misunderstandings
- Author:
- ASPINS Simone
- Journal article citation:
- British Journal of Learning Disabilities, 30(1), March 2002, pp.3-7.
- Publisher:
- Wiley
Examines the vested interests of the different stakeholders and illustrates through examples where some misunderstandings about self-advocacy have arisen.
A chance to speak
- Author:
- SIMONS Ken
- Journal article citation:
- Community Care, 28.1.93, 1993, pp.25-26.
- Publisher:
- Reed Business Information
Self advocacy groups for people with learning disabilities empower service users but are accepted only with reluctance by some professionals. Gives details of the British Advocacy Project Study.
'May we please have sex tonight?'– people with learning difficulties pursuing privacy in residential group settings
- Author:
- HOLLOMOTZ Andrea
- Journal article citation:
- British Journal of Learning Disabilities, 37(2), June 2009, pp.91-97.
- Publisher:
- Wiley
Many residential group settings for people with learning difficulties do not provide individuals with the private space in which they can explore their sexual relationships in a safe and dignified manner. Lack of agreed private spaces seriously infringes the individual's human rights. Many people with learning difficulties who lack privacy have no other option but to escape to isolated public or semi-private spaces to be sexually active. This places individuals at risk. It is suggested that self-advocacy driven policy guidance must be developed which must require residential services to review their practice to ensure that they accommodate residents' need for privacy, whilst supporting them to lead safe sexual relationships.
Citizen advocacy in Camden and Westminster: an independent evaluation funded by BILD; April 2003
- Author:
- CAMDEN AND WESTMINSTER CITIZEN ADVOCACY. The Advocacy Project
- Publisher:
- Camden and Westminster Citizen Advocacy
- Publication year:
- 2003
- Pagination:
- 36p.
- Place of publication:
- London
The BILD Citizen Advocacy Project currently working with local advocacy groups and advocacy organisations in Camden and Westminster to: produce common guidelines for citizen advocacy groups; explore the benefits of local affiliations between advocacy groups; and map the existing provision of advocacy groups. BILD is part of the new consortium which will be responsible for distributing the additional monies for citizen advocacy referred to in Valuing People.
The Learning Disability Strategy: the user group report
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2004
- Pagination:
- 24p.
- Place of publication:
- London
'Valuing People’ places considerable emphasis on the importance of developing services in the light of person-centred planning and on modernising day centres. In brief, this means that the wishes and aspirations of individuals should be taken as the starting point and that holistic, individualised services should be created around them rather than their fitting into pre-determined services.
Jargon-free zone
- Author:
- WARD Linda
- Journal article citation:
- Community Care, 1.12.94, 1994, pp.30-31.
- Publisher:
- Reed Business Information
Ten years ago People First was launched by a group of people with learning difficulties, who had been to America to find out more about self advocacy. In the London boroughs there are now 30 People First groups, and many more through the UK. Reports from their tenth anniversary conference and discovers the aims of People First and where they want to be in the future.