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Self-advocacy and supported learning for mothers with learning difficulties
- Authors:
- BOOTH Tim, BOOTH Wendy
- Journal article citation:
- Journal of Learning Disabilities, 7(2), June 2003, pp.165-193.
- Publisher:
- Sage
This article describes the work of the Supported Learning Project (SLP). The SLP was a DfEE ACLF funded programme designed to provide personal support and development in self-advocacy to mothers with learning difficulties. The authors provide an account of the project, an overview of the learning gains made by the mothers and the obstacles to progress they encountered, and an evaluation of the project's success in achieving its intended aims. The article concludes with a discussion of the transferable lessons that emerged from working with this hard-to-reach group of excluded mothers.
Speaking up
- Author:
- EUSTACE Andrew
- Journal article citation:
- Community Care, 10.01.02, 2002, pp.36-37.
- Publisher:
- Reed Business Information
Reports on a study that analysed the workings of a local advocacy project and evaluated its success.
"Like the secret service isn't it". People with learning difficulties', perceptions of staff and services: mystification and disempowerment
- Author:
- GOBLE Colin
- Journal article citation:
- Disability and Society, 14(4), July 1999, pp.449-461.
- Publisher:
- Taylor and Francis
Seven people with learning difficulties were interviewed about their perceptions of staff in services they use. Three major themes emerged, which were perceptions relating to the physical presence and absence of staff; the emotional impact of interactions with staff; and the political impact of interactions with staff. It was found that the participants had only superficial knowledge of staff identities and roles, and of service systems and structures, and consequently lack the knowledge and awareness necessary to negotiate what these roles might be, or even that negotiation might be possible. The findings are discussed in relation to a developmental model of empowerment, and empowerment issues generally.
Bringing about positive change
- Authors:
- HUNTER Susan, MILLS Lisa
- Journal article citation:
- Community Living, July 1997, pp.10-11.
- Publisher:
- Hexagon Publishing
Discusses collective self-advocacy groups and why they have had relatively little impact. Puts forward a prototype to help evaluate the effectiveness of advocacy groups.
The impact of self-advocacy on families
- Author:
- MITCHELL Paula
- Journal article citation:
- Disability and Society, 12(1), February 1997, pp.43-56.
- Publisher:
- Taylor and Francis
The impact of self-advocacy on families of people with learning difficulties has rarely been investigated. This article argues that adulthood is central. The meanings attached to self-advocacy by people with learning difficulties are examined to support this, and the family context explored to discover the likely experiences and influences which will condition the reception for self-advocacy. The early findings of the research - from discussions with self-advocacy groups - are presented. Concludes that self-advocacy will impact on families and for this impact will exhibit itself in a variety of ways. Because of the experiences and conditioning of families and people with learning difficulties the impact is expected to be complicated.
Changing organisational culture: another role for self-advocacy?
- Author:
- MILLER Robin
- Journal article citation:
- Tizard Learning Disability Review, 20(2), 2015, pp.69-76.
- Publisher:
- Emerald
Purpose: Improvements in organisational culture are a common recommendation of enquiries into system failure and an aspiration of policy. The purpose of this paper is to explore an initiative to change culture in a low-secure service for men with a learning disability and mental health needs through the introduction of a self-advocacy group. Design/methodology/approach: An independent evaluation was carried out by a university research team. A theory-based methodology was deployed with qualitative data gathered through observations, interviews and focus groups. Findings: Culture change was reported by senior managers and clinicians in relation to the transparency of the service, decision making regarding resources, and engagement of patients in redesign. Self-advocacy group members reported a different relationship with senior management which in turn enabled greater influence in the organisation. Achieving these impacts relied on independent and skilled external facilitation, support from senior managers, and a calm and democratic atmosphere in the meetings. Ward staff were kept at an arms-length from the group and were less certain that it had made any difference to the way in which the ward operated. Research limitations/implications: The research was only based in one organisation and the impacts of the initiative may vary with a different local context. Research in a wider sample of organisations and culture change initiatives will provide greater insights. Practical implications: Self-advocacy groups can lead to organisation culture change alongside benefits for individual group members but require funding, external and independent facilitation, and organisational endorsement and support. (Edited publisher abstract)
Positive approaches to reviewing care plans: a workbook to support the mandatory units of the Certificates in Working with People who have Learning Disabilities
- Author:
- BRADLEY Alice
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 65p.
- Place of publication:
- Plymouth
Covers: the process of monitoring, evaluation and review; care planning, self advocates’ views, monitoring, evaluation and review in action.
Positive approaches to promoting advocacy: a workbook to support the advocacy optional units of the Certificates in Working with People who have Learning Disabilities
- Author:
- BROOKE John
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 62p.,bibliog
- Place of publication:
- Kidderminster
This workbook uses case studies, activities, and clear information based on current best practice to cover the underlying principles of different forms of advocacy. Topics examined include: the advocacy relationship; how to put advocacy into action; ways to overcome barriers to advocacy; advocacy in the workplace; and evaluation of advocacy. The guide is intended for staff who are working through the optional units of the LDAF certificates at levels 2 and 3 and who wish to develop the understanding and skills required to support service users in self-advocacy, and to promote citizen, peer and short term advocacy. The workbook covers all the learning outcomes for the LDAF level 2 unit 015 Understand Advocacy and the level 3 unit 111 Promote Advocacy.
Changing day service for people with learning disabilities: a case study of Staffordshire social services
- Author:
- SCRAGG Terry
- Journal article citation:
- Community Care Management and Planning, 4(2), April 1996, pp.61-68.
- Publisher:
- Pavillion
Describes developments in day services for people with learning disabilities in Staffordshire since 1993 when a major review of these services began a process of change, with the intention of creating a community based service more responsive to service users' needs. The case study reports on an evaluation of two key recommendations of the review; the introduction of an individual planning system and self-advocacy initiatives in adult training centres.