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Identifying the key concerns of Irish persons with intellectual disability
- Authors:
- IRIARTE Edurne Garcia, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(6), 2014, pp.564-575.
- Publisher:
- Wiley
Aims: This paper aims to define the key concerns of adults with an intellectual disability in relation to their participation in society using an inclusive research strategy for both data gathering and data analysis. Methods: A national study involving 23 focus groups and 168 persons was conducted in Ireland with people with intellectual disability as co-facilitators. Findings: A thematic content analysis was undertaken of the verbatim transcripts initially by university co-researchers, and 19 themes were identified. Co-researchers with intellectual disability joined in identifying the eight core themes. These were as follows: living options, employment, relationships, citizenship, leisure time, money management, self-advocacy, and communication. Discussion: The concerns are discussed within the framework of the United Nations Convention for the Rights of Persons with Disabilities, and implications for transforming service policy are drawn. (Edited publisher abstract)
Themed visit to hospital units for the assessment and treatment of people with learning disabilities
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2012
- Pagination:
- 33p.
- Place of publication:
- Edinburgh
There has been widespread closure of long stay hospitals for people with learning disabilities. Today, excluding forensic beds, there are fewer than 240 people in acute and longer stay assessment and treatment beds in Scotland. However it is recognised that there is a need for a small number of inpatient beds for those with specialised or complex needs which cannot be met in the community. This report presents the findings of visits from June 2011 to September 2011 to all 20 hospital units (19 NHS and 1 private hospital) for the assessment and treatment of people with learning disabilities. Information was gathered from Clinical Service Managers, staff, service users, care plans and other records, and relatives. The care and treatment of 113 people was looked at. There were 4 general areas of enquiry: health needs; rights and restrictions; quality of life; and participation and involvement. The findings were mainly positive. A number of key messages and recommendations are provided based on these findings, and areas of best practice are highlighted.
Fulfilling the promises: proposals for a framework for services for people with learning disabilities; report to the National Assembly for Wales
- Author:
- LEARNING DISABILITY ADVISORY GROUP
- Publisher:
- Learning Disability Advisory Group
- Publication year:
- 2001
- Pagination:
- 83p.
- Place of publication:
- Cardiff
This report is based on the principle that people with learning disabilities are full citizens equal in status and value to other citizens of the same age and have an equal right to expect a high quality of life. In practice this means having exactly the same expectations of decent health, education, housing, safety and financial security, protection from harm, positive social relations and roles within family and community, employment opportunities, personal development, emotional well-being and civic rights. They also have a right to decide for themselves and to join in all decision making which affects their lives, with support if necessary of their families and their communities.
Aging, rights and quality of life: prospects for older people with developmental disabilities
- Editors:
- HERR Stanley S., WEBER Germain
- Publisher:
- Paul H. Brookes
- Publication year:
- 1999
- Pagination:
- 413p.,bibliogs.
- Place of publication:
- Baltimore, MD
Collection of papers on the rights of older people with learning difficulties in the United States. Contains sections on: human rights and legal considerations; quality of life and quality standards; service models and innovations; and future directions.
Quality of life for people with disabilities: models, research and practice
- Author:
- BROWN Roy I.
- Publisher:
- Stanley Thornes
- Publication year:
- 1997
- Pagination:
- 369p.
- Place of publication:
- Cheltenham
Examines critically the concepts and issues surrounding quality of life; looks at new ways of assessing and managing in the different fields of disabilities; re-examines professional training; and takes a holistic approach to the concept of quality of life. Includes chapters on: focusing on the individual; assessing the quality of life of adults with profound disabilities; developmental systems and narrative approaches to working with families of people with disabilities; disabled children; disabled people and ageing; environmental design and quality of life; sexual rights and people with learning difficulties; and human spirituality in relation to quality of life.
Quality in later life: rights, rhetoric and reality: British Society of Gerontology Annual Conference, (30th:Stirling; 2002, 31 August-2 September)
- Editors:
- TESTER S, ARCHIBALD C, ROWLINGS C, TURNER S
- Publisher:
- Department of Applied Social Science, University of Stirling
- Publication year:
- 2001
- Pagination:
- 294p.,bibliogs.
- Place of publication:
- Stirling
These conference papers explore the issue of quality in later life, the factors that affect older people's experience and their understanding of what matters to them. Gerontologists have much to contribute both to analysis and the promotion of quality in old age. This contribution continues to develop the means by which older people, including those with significant mental or physical disabilities can make themselves participate in the debates by defining their own experiences and what makes a difference to them.