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"I want to see the Queen": experience of service use by ageing people with an intellectual disability
- Authors:
- BIGBY Christine, KNOX Marie
- Journal article citation:
- Australian Social Work, 62(2), June 2009, pp.216-231.
- Publisher:
- Taylor and Francis
People with intellectual disability are a relatively new but growing minority group within Australia's ageing population. Disability policies point to the equal right of people with disabilities to a quality of life similar to that of other citizens. Disability services are increasingly required to provide individualised and responsive services, irrespective of age, for people with lifelong disabilities. The present study explored the everyday lives of older people with intellectual disability in Victoria and Queensland, examining their experiences of using disability services and the ways in which services responded to their ageing. The aim of the study was to inform practice and service development for older people with intellectual disability. The findings suggest that services facilitate important social relationships with other service users and staff. Most older people had a sense of belonging and led busy but directionless lives in two disconnected worlds. Their lives were subject to significant external present-focused control. Yet, despite this, neither services nor family members took responsibility for ensuring their sense of continuity or supporting the development of plans about their future. The experiences described suggest an urgent need for, but significant challenges in the implementation of, holistic individualised planning similar to the UK concept of person-centred planning.
An analysis of key principles in valuing people: implications for supporting people with dementia
- Author:
- FORBAT Liz
- Journal article citation:
- Journal of Intellectual Disabilities, 10(3), September 2006, pp.249-260.
- Publisher:
- Sage
- Place of publication:
- London
This article reports an analysis of practitioner and policy implementers' views on implementing the strategy document Valuing People. It is based on empirical data generated from the first phase of a research project that seeks to develop best practice in supporting people with an intellectual disability and dementia. The analysis focuses on how Valuing People's four key principles (choice, independence, rights and inclusion) were drawn on and talked about spontaneously by participants. Each of these four principles has important implications for the provision of services for people with intellectual disabilities and dementia. This article adds to the growing dialogue on service provision for this group.
Equalities scoping study
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 23p., bibliog.
- Place of publication:
- London
The Office of the National Co-Directors for Learning Disability asked the Foundation for People with Learning Disabilities to look at whether the experiences of adults with learning disabilities and their families were getting better in the context of Valuing People Now and its associated Equality Impact Assessment. Databases and other resources were used to identify articles, reports, websites and information focusing on specific topics in relation to people with learning disabilities: ageing and older people; gender; sexual orientation and identity; religion, belief and spirituality; race, culture and ethnicity; and relationships, sex and parenting. For each topic, the report sets out evidence of action or change since January 2009, emerging issues, and examples of good practice. The report includes brief discussion of the issues raised.
People with learning difficulties isolated in care homes for older people
- Author:
- WELLARD Sarah
- Journal article citation:
- Community Care, 11.10.01, 2001, pp.18-19.
- Publisher:
- Reed Business Information
Campaigners are calling for an end to placing people with learning difficulties in residential care homes. Asks whether there is a strategy for an alternative.
Aging, rights and quality of life: prospects for older people with developmental disabilities
- Editors:
- HERR Stanley S., WEBER Germain
- Publisher:
- Paul H. Brookes
- Publication year:
- 1999
- Pagination:
- 413p.,bibliogs.
- Place of publication:
- Baltimore, MD
Collection of papers on the rights of older people with learning difficulties in the United States. Contains sections on: human rights and legal considerations; quality of life and quality standards; service models and innovations; and future directions.
Quality of life for people with disabilities: models, research and practice
- Author:
- BROWN Roy I.
- Publisher:
- Stanley Thornes
- Publication year:
- 1997
- Pagination:
- 369p.
- Place of publication:
- Cheltenham
Examines critically the concepts and issues surrounding quality of life; looks at new ways of assessing and managing in the different fields of disabilities; re-examines professional training; and takes a holistic approach to the concept of quality of life. Includes chapters on: focusing on the individual; assessing the quality of life of adults with profound disabilities; developmental systems and narrative approaches to working with families of people with disabilities; disabled children; disabled people and ageing; environmental design and quality of life; sexual rights and people with learning difficulties; and human spirituality in relation to quality of life.