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Sibling roles in the lives of older group home residents with intellectual disability: working with staff to safeguard wellbeing
- Authors:
- BIGBY Christine, WEBBER Ruth, BOWERS Barbara
- Journal article citation:
- Australian Social Work, 68(4), 2015, pp.453-468.
- Publisher:
- Taylor and Francis
When parents die, siblings of older people with intellectual disability are likely to take responsibility for oversight of their wellbeing and negotiation with formal support services. This study explored the roles siblings played in the lives of older people with intellectual disability who live in group homes, and the relationships between residents’ siblings and group home staff. The siblings of 13 group home residents and the 17 supervisory staff associated with these services were interviewed, initially face-to-face and then intermittently by phone over a period of three years. Data were analysed using an inductive analytical approach. Siblings valued the relationship with their brother or sister with intellectual disability and played a significant role in safeguarding their wellbeing. Sibling–staff relationships fluctuated over time, sometimes becoming tense and difficult. Few protocols guided these relationships. A principle-based framework could facilitate negotiation between staff and siblings about expectations of communication and decision making. (Publisher abstract)
Staff responses to age-related health changes in people with an intellectual disability in group homes
- Authors:
- WEBBER Ruth, BOWERS Barbara, MCKENZIE-GREEN Barbara
- Journal article citation:
- Disability and Society, 25(6), October 2010, pp.657-671.
- Publisher:
- Taylor and Francis
The purpose of this study was to explore how supervisors in group homes caring for people with intellectual disability responded to the development of age-related health changes in their residents. It examined how staff in Victoria, Australia, viewed age-related changes, how they decided when a resident should go to residential aged care, and how they supported people who stayed despite significant age-related health problems. Information from in-depth interviews with 10 group home supervisors working in the disability sector was analysed using dimensional analysis. The article discusses factors related to care including resident health characteristics, resources, skills and comfort level of supervisors, ability to navigate health and disability sector rules and regulations, and concern about impact on other residents. The findings from the study suggested that group home supervisors are the primary decision-makers about whether residents can remain in the group home or will be relocated to residential aged care, and that although supervisors consistently expressed the belief that, at some point, residents with serious health conditions may require more intensive or skilled care, there was less consistency in their views about the criteria determining when a resident can no longer be accommodated in the home.