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Feeling settled project: guide for those involved in changing a service from a residential care home to supported living where the people stay in the same place
- Authors:
- STRONG Steve, HALL Claire
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2011
- Pagination:
- 49p.
- Place of publication:
- Bath
Many people with learning disability, unlike the rest of the population, do not choose were they want to live. More than half of people with learning disabilities live with their families and many live in residential care. It can be hard to get clear information about the different options. This guidance addresses moving from residential care to supported living supported by Valuing People Now, the Care Quality Commission and Association of Directors of Adult Social Care (ADASS). It describes how different agencies and people need to be involved and makes sure the person with a learning disability is at the centre of the planning all the time. Feeling Settled is launched together with the latest guidance from the Care Quality Commission on registration for supported living. It uses case studies and examples to help commissioners and providers to develop real person centred solutions.
Change for the worse
- Author:
- VALIOS Natalie
- Journal article citation:
- Community Care, 6.3.03, 2003, pp.34-36.
- Publisher:
- Reed Business Information
Many care home owners are de-registering their properties to create independent tenancies for people with learning difficulties. Asks whether this reflects a desire to implement Valuing People or an attempt to avoid the constraints of the Care Standards Act.
Quality of life and living arrangements for people with intellectual disability
- Authors:
- BERTELLI Marco, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(4), 2013, pp.220-231.
- Publisher:
- Emerald
Recent international experiences of community inclusion have produced a major change in residential care for people with intellectual disability (ID). Assignment and outcome assessment through new person-centred measures are raising increasing interest; however, the information on quality of life and accommodation is still limited. This paper aims to provide an overview of the application of quality of life models and the size of the provision of different living arrangements using a systematic mapping of the literature of the last decade and expert guided review of the available evidence. Quality of life (QoL) outcomes measures of living arrangements in people with ID show conceptual and methodological challenges. The following key topics were identified: individual level: issues related to health status, behavioural problems and other personal factors (ageing, choice and empowerment); family and peers; local level: accommodation, architecture and urbanization, and economic aspects (deprivation and costs); macro level: social participation (community inclusion). The residential solutions that are currently considered of highest efficiency are small apartments in the community and “cluster centers”. (Edited publisher abstract)
‘Being there’: the experiences of staff in dealing with matters of dying and death in services for people with intellectual disabilitie
- Author:
- TODD Stuart
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 26(3), 2013, pp.215-230.
- Publisher:
- Wiley
Research on staffed housing for people with intellectual disability has identified the challenges in achieving positive quality of life outcomes. However, a less well considered dimension of such services is that they are places of living and dying. This paper looks at the experiences of staff in dealing with issues of death and dying. In depth qualitative interviews were held with 22 staff in 5 different providers and who had experienced, in total, 27 deaths of people with intellectual disability. The data highlight that staff felt providing a good quality of care at the end of life was an important but unrecognised dimension of their work. This work could be broken down into several different phases, dying, death and beyond death. Bad deaths were felt to be those deaths which prevented staff from ‘being there’ with individuals over those phases. (Publisher abstract)
A comparison of activity levels among adults with intellectual disabilities living in family homes and out-of-family placements
- Authors:
- FELCE David, PERRY Jonathan, KERR Michael
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 24(5), September 2011, pp.421-426.
- Publisher:
- Wiley
Despite the fact that the majority of adults with intellectual disabilities live in the family home, little research has been done on their quality of life. This paper aims to compare the activities of adults with intellectual disabilities living in family homes with those in out-of-family placements. It examines 2 aspects of the quality of life: the range and frequency of social and community activities; and the extent of participation in family activity at home. The study involved secondary analysis of a dataset produced by merging data from 4 earlier studies. The merged dataset contained information on 30 adult participants living independently, 142 living in family homes, and 559 in staffed homes. Participant characteristics and household and community activity indicators were compared across places of residence. For those living in family or staffed homes, the association between the activity indicators and place of residence after controlling for participant characteristics was examined. The findings showed that the place of residence was a significant factor after controlling for participant differences. People living independently had higher household participation. People living in staffed housing had higher household participation and did more community activities more frequently than people living in family homes. The findings suggest that adults living in family homes may have fewer activity opportunities than those living in supported accommodation.
Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings
- Author:
- McCONKEY R.
- Journal article citation:
- Journal of Intellectual Disability Research, 51(3), March 2007, pp.207-217.
- Publisher:
- Wiley
The social inclusion of tenants living in two forms of supported living schemes – those clustered on one site and those dispersed in neighbourhoods – is contrasted with more traditional provision found on the island of Ireland, namely, small group homes, residential homes and campus-style settings. A standard pro forma based on measures used in past research was completed by the key-worker for each tenant or resident. In all, data were obtained on 620 persons, representing nearly all tenants in clustered schemes in Northern Ireland and over 40% of those in dispersed schemes. People in either form of supported living tended to have greater levels of social inclusion as measured by their use of community amenities and social contacts than did those in small group homes or residential homes, with participants from campus-style settings having the lowest levels of social inclusion. Moreover, multivariate analyses confirmed that the accommodation variable was a significant influence in addition to the social competence of the person. Although there were few differences between the two models of supported living, further research could usefully focus on decisions to place persons in either form of accommodation and their impact on wider indicators of social inclusion.
Learning disability and dementia: are we prepared?
- Authors:
- KERR Diana, CUNNINGHAM Colm, WILKINSON Heather
- Journal article citation:
- Journal of Dementia Care, 14(3), May 2006, pp.17-19.
- Publisher:
- Hawker
This article describes a research project funded by the Joseph Rowntree Foundation (JRF) which was undertaken to explore the needs of people with learning disabilities and dementia, the obstacles to meeting their needs and examples of good practice. The study explored the experiences of 18 people with learning disabilities living in small-scale, community-based residential homes. The study also looked at the knowledge and experience of service providers, look at the impact of different models of provision, and to identify examples of good practice. The three models of care considered were: ageing in place (where individuals remain in their own accommodation); in place progression (where staff are trained and the environment developed to become increasingly specialised); and referral out (where the person is moved to a long-term nursing facility, usually outside of the learning disability service).
Care home or supported housing?
- Author:
- CONVERY Linda
- Journal article citation:
- Housing Care and Support, 6(4), November 2003, pp.19-21.
- Publisher:
- Emerald
In June 2003 the Care Standards Tribunal heard an appeal from Alternative Futures Limited against a decision by the National Care Standards Commission to refuse Alternative Futures' application for voluntary cancellation of the registration of 11 care homes under Section 15(1)(b) of the Care Standards Act 2000. Alternative Futures had applied for the cancellation of registration because it felt that the homes were no longer functioning as registered residential homes but were supported housing with domiciliary care. The service users had learning disabilities and had been granted tenancies. The article summarises some of the key points of the judgement which help to clarify what is and what is not a registered care home under the terms of the Care Standards Act 2000.
Quality is up my street: measuring and monitoring the quality of housing services for and with people with learning disabilities: key findings from commissioner and service provider surveys
- Authors:
- DURELL Shirley, et al
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2020
- Pagination:
- 24
- Place of publication:
- Bath
Most adults with learning disabilities who need support and a place to live are offered either residential care or housing with support (called supported living). The idea of supported living is that it gives people more rights and control over their lives. However, very little is known about how good these services are. The report forms part of a crowdfunded research project exploring what is important to different groups in terms of housing decisions. Presenting the data from surveys of commissioners and housing service providers, the report aims to provide evidence to support more informed decision-making by commissioners in this area and to gain a better understanding of what matters to people in terms of their housing and support. Key learning from the surveys include: commissioners and service providers agreed on what a quality service should look like – affordable, values led, personalised, with choice, flexibility, good staff, community links and the involvement of the person and their family in all aspects of service delivery; service providers and commissioners prioritised choice, good support and community links; service providers emphasised the importance of compatibility and matching – of housemates and support staff; barriers to quality for commissioners and service providers are costs, affordability, lack of time and limited resources, including suitable housing and staff; commissioners and service providers want to work together on quality issues, in partnership with people with learning disability and their families. (Edited publisher abstract)
Housing choices discussion paper 3: characteristics of housing and support options: inclusion, rights, choice and control
- Authors:
- HARFLETT Naomi, et al
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2017
- Pagination:
- 12
- Place of publication:
- Bath
This paper sets out the different characteristics of housing and support options in terms of the level of choice, control, rights and inclusion they offer to people with care or support needs. Using the housing and support categories identified in the typology in briefing paper 2, the paper uses a table to show what each of the options offer. Characteristics cover: choice over who to live with, choice in relation to nature and level of support, choice over who supports, control over what happens in the home, own front door, security of tenure, rights to full welfare benefits, CQC regulated, community location, sole or shared ownership, and which client groups the housing caters for. The discussion paper aims to stimulate feedback and comments which will be used to inform a final position paper. It focuses specifically on housing and support available for older people, people with learning disabilities and people with mental health problems (Edited publisher abstract)