Search results for ‘Subject term:"learning disabilities"’ Sort:
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Re-thinking community care: the Camphill Village model. A critical appraisal
- Author:
- LYONS Maria
- Publisher:
- Centre for Welfare Reform
- Publication year:
- 2015
- Pagination:
- 37
- Place of publication:
- Sheffield
This discussion paper summarises research on Camphill Communities and looks at some of the positive learning that can be gained from the movement. It ask questions about how we think about concepts like inclusion, community and love. It finds that there is good evidence that there is much to learn from the Camphill movement and that these communities do offer a way of respecting human diversity and equality. It calls for greater openness from researchers and advocates the possibility of greater dialogue and learning. (Edited publisher abstract)
‘He was a secret’: family narratives and the institutionalization of people with intellectual disabilities
- Author:
- BURGHARDT Madeline
- Journal article citation:
- Disability and Society, 30(7), 2015, pp.1071-1086.
- Publisher:
- Taylor and Francis
This article examines family narratives concerning the existence of an institutionalised family member with an intellectual disability. A research study investigating the experiences of institutional survivors and members of their families in post-World War II Ontario, Canada reveals ambiguous family narratives in which the story of an institutionalized family member with an intellectual disability was absent or uncertain. Secretive family narratives and their impact on family life are discussed from the perspectives of siblings of institutional survivors. Drawing from narrative enquiry literature, the potential repercussions of false or ambiguous narratives on the lives of people with intellectual disabilities are also examined. (Publisher abstract)
A review of literature exploring the possible causes of abuse and neglect in adult residential care
- Authors:
- HUTCHISON Andrew, KROESE Biza Stenfert
- Journal article citation:
- Journal of Adult Protection, 17(4), 2015, pp.216-233.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to present a systematic review of empirical research, which explores possible causal and risk factors linked to abuse or neglect in residential care facilities. Design/methodology/approach: Electronic database searches were conducted to identify and synthesise studies reporting on empirical research aimed at exploring causal and/or risk factors associated with abuse or neglect in adult residential care services. Sample characteristics, design characteristics and outcome data were extracted from each paper. This information was then collated and summarised. Each study was evaluated using Sale and Brazil’s (2004), cross-paradigm framework of trustworthiness and rigour. Findings: In all, 17 papers, reporting on 15 separate research studies, met the inclusion criteria for this review. Results revealed that research in this area has utilised a diverse range of methodological approaches to explore abuse and/or neglect within the context of residential services for older adults and adults with learning disabilities. Possible causal and risk factors identified were separated into those that operated at a cultural or organisational/environmental level and those that operated at an individual or interpersonal level. Originality/value: While there are limitations associated with presenting a review of such a diverse group of studies, this paper presents a valuable synthesis of the empirically derived causal and risk factors linked to the abuse and neglect of adults in care. Additionally, readers are able to obtain a comprehensive overview of the quality of empirical research in this area. Finally, a number of applied implications and future research directions are highlighted, which may contribute to the development of further research and ultimately to improvements in residential care standards and a reduction in future instances of abuse and neglect.
Characteristics of the most expensive residential placements for adults with learning disabilities in South East England: a follow-up survey
- Authors:
- DEVEAU Roy, McGILL Peter, POYNTER Jo
- Journal article citation:
- Tizard Learning Disability Review, 20(2), 2015, pp.97-102.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to investigate the characteristics of the highest cost residential placements provided for adults with learning disabilities in the South East of England, comparing findings with a previous survey. Design/methodology/approach: Lead commissioners for NHS and Local Authority teams in the South-East of England were asked to provide information on the five highest cost placements that they currently commissioned. Findings: The average placement cost was £200,000 per annum with a range from £81,000 to £430,000 per annum. Individual characteristics of people placed were broadly similar to those identified in previous studies. The paper also reports on differences between in and out-of-area-placements and factors associated with higher costs. Originality/value: Significant resources are used to support relatively few individuals. These individuals’ needs and characteristics suggest areas for research and practice development. (Edited publisher abstract)
Staff perceptions of the quality of life of individuals with an intellectual disability who transition from a residential campus to community living in Ireland: an exploratory study
- Authors:
- KILROY Sarah J., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 40(1), 2015, pp.68-77.
- Publisher:
- Taylor and Francis
Background: This study explores the quality of life (QoL) of individuals with a severe intellectual disability (ID) who had recently moved from an institutional setting (i.e., “residential campus”) to independent housing in the community (i.e., “community living”) and whether aspects of their QoL were perceived to have changed over the course of this move. Method: A qualitative approach was adopted by interviewing the key workers of 8 individuals with an ID (M age = 37.38, range: 26–44, male n = 6, female n = 2). An interview tool focusing on aspects of QoL was utilised and the interviews were analysed using thematic analysis (Braun & Clarke, 2006). Results: Ten themes emerged from the analysis that provided insight into the experience of transitioning to community living. Conclusions: The emotional wellbeing, health, privacy, freedom, and material wellbeing of all the individuals were perceived to have improved, as well as independence, choice, and social opportunities for many. (Publisher abstract)
Statistics on community care for adults in Northern Ireland 2014 - 2015
- Authors:
- O'HAGAN Joanne, et al
- Publisher:
- Northern Ireland. Department of Health, Social Services and Public Safety. Community Information Branch
- Publication year:
- 2015
- Pagination:
- 92
- Place of publication:
- Belfast
Summarises information on a range of community care services collected from Health and Social Care Trusts in Northern Ireland. Data includes: contacts with Trusts (including care for older people, people with learning disabilities, people with physical and sensory disabilities); care packages in effect (residential and nursing home care); meals on wheels services; residential and nursing accommodation; and day care registrations. The report includes trend analysis over the past five years. (Edited publisher abstract)
Sibling roles in the lives of older group home residents with intellectual disability: working with staff to safeguard wellbeing
- Authors:
- BIGBY Christine, WEBBER Ruth, BOWERS Barbara
- Journal article citation:
- Australian Social Work, 68(4), 2015, pp.453-468.
- Publisher:
- Taylor and Francis
When parents die, siblings of older people with intellectual disability are likely to take responsibility for oversight of their wellbeing and negotiation with formal support services. This study explored the roles siblings played in the lives of older people with intellectual disability who live in group homes, and the relationships between residents’ siblings and group home staff. The siblings of 13 group home residents and the 17 supervisory staff associated with these services were interviewed, initially face-to-face and then intermittently by phone over a period of three years. Data were analysed using an inductive analytical approach. Siblings valued the relationship with their brother or sister with intellectual disability and played a significant role in safeguarding their wellbeing. Sibling–staff relationships fluctuated over time, sometimes becoming tense and difficult. Few protocols guided these relationships. A principle-based framework could facilitate negotiation between staff and siblings about expectations of communication and decision making. (Publisher abstract)
The impact of personalisation on the lives of the most isolated people with learning disabilities: a review of the evidence
- Authors:
- HARFLETT Naomi, TURNER Sue, BOWN Helen
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2015
- Pagination:
- 12
- Place of publication:
- Bath
This paper provides a short summary of the findings of an evidence review of impact of personalisation for the most isolated people with learning disabilities. The study focused in particular, but not exclusively, on people in residential care, and people in out of area placements. As well as searching for evidence on the impact of taking a general personalised or person-centred approach, the research also looked at the impact of specific mechanisms including personal budgets, direct payments and person-centred planning. Systematic searches were conducted using an academic search engine, the Social Care Online database, reference lists and websites and publication databases of relevant organisations. The review has revealed a clear gap in the evidence around how personalisation has impacted on the lives of the most isolated people with learning disabilities. As no research was found which looked at this specific question, the conclusions should be considered as tentative but they appear to suggest that: some of the most isolated people with learning disabilities are missing out on personalised approaches to care altogether; some of the most isolated people with learning disabilities do not have access to the support or resources to get the most positive outcomes from particular elements of personalisation; and some of the most isolated people are also less likely to have access to advocacy - the mechanism which should be in place to address this inequality. (Edited publisher abstract)
Therapeutic communities for people with intellectual disability and complex needs
- Authors:
- TAYLOR Jon, CROWTHER Simon, BRYANT Christian
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 9(3), 2015, pp.124-131.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to describe the use and value of therapeutic communities (TCs) in services for people with intellectual disabilities (IDs) and complex needs. Design/methodology/approach: A structured literature review of TC in ID services. Findings: TCs have been used in a range of in-patient services for people with IDs. Although outcome studies are scarce, those that exist offer promising indications of such service designs. Originality/value: TCs have seen a recent increase of interest in ID services. This paper provides an overview of these services and outlines the benefits that such a residential culture can offer for both service users and staff members. (Publisher abstract)
Families' experiences of seeking out-of-home accommodation for their adult child with an intellectual disability
- Authors:
- GREY Jillian M., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(1), 2015, pp.47-57.
- Publisher:
- Wiley
Research exploring the experiences of families during the process of seeking out-of-home accommodation for an adult son or daughter with intellectual disability is scarce. A study was undertaken to examine this process. Nine families currently seeking out-of-home accommodation for their adult son or daughter were interviewed and interview data were analysed using thematic analysis. Two main themes were identified: (1) reasons for seeking housing and (2) experiences of seeking housing. Parents' ageing and increased health problems along with the offspring's wish for greater independence were the main reasons for seeking out-of home accommodation. Experiences of looking for a house were not straightforward in that parents often wanted to plan ahead but were prevented from doing so as the housing system prioritizes 'housing crises.' Findings showed that families experienced seeking housing as stressful and frustrating and would like to see social care and housing professionals acknowledge them as collaborative partners in the process. The authors conclude there also needs to be greater clarity of expectation of the duration of finding suitable accommodation, a process that needs to be started early in a young adult's life. (Publisher abstract)