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Using photovoice to include people with profound and multiple learning disabilities in inclusive research
- Author:
- CLULEY Victoria
- Journal article citation:
- British Journal of Learning Disabilities, 45(1), 2017, pp.39-46.
- Publisher:
- Wiley
Background: It is now expected that projects addressing the lives of people with learning disabilities include people with learning disabilities in the research process. In the past, such research often excluded people with learning disabilities, favouring the opinions of family members, carers and professionals. The inclusion of the voices of people with learning disabilities is a welcome and much needed change. While there has been many valuable inclusive researches carried out in the past 10–15 years, much of this research has included people with mild and/or moderate learning disabilities. Far less published research has included people with profound and multiple learning disabilities. Materials and Methods: This research article outlines how the visual method ‘photovoice’ can be successfully used to include people with profound and multiple learning disabilities in the research process. Results and discussion: It is argued that inclusive research is often limited by the choice of research methods, which result in the exclusion of people with profound and multiple learning disabilities from the research process. The article advocates a mediated and flexible approach to inclusive research that embraces and supports the needs of all involved. A practical example of photovoice research with people with learning disabilities demonstrates how this can be achieved. Conclusion: When planning inclusive research, researchers should be mindful of both the variety of needs that people with learning disabilities can bring to the research process and the need to tailor methods to these needs. Such action requires a flexible approach to the inclusive research process. (Publisher abstract)
Dramatizing physical education: using drama in research
- Author:
- FITZGERALD Hayley
- Journal article citation:
- British Journal of Learning Disabilities, 35(4), December 2007, pp.253-260.
- Publisher:
- Wiley
Using drama in research means people who communicate in different ways can take part in research. This article discusses a research project that adopted a number of data generation strategies, including a drama pilot project. The article focuses on the drama pilot project by reviewing the processes involved in working with drama as a research approach. Issues concerning the process of transcription and the competing discourses of research and engaging in a creative performance are discussed. A number of challenges encountered in the drama pilot are also identified, but the author argues that the technique remains a worthwhile and relevant strategy for engaging with many students, including those experiencing severe learning disabilities.
Researching learning difficulties: a guide for practitioners
- Authors:
- PORTER Jill, LACEY Penny
- Publisher:
- Paul Chapman
- Publication year:
- 2005
- Pagination:
- 189p.,bibliog.
- Place of publication:
- London
This book is for researchers, teachers and other professionals working with children and people with learning difficulties. It will enable them to: access research in learning difficulties, drawing on other disciplines; understand different types of research methodology and their strengths and limitations; examine how researchers must consider the constraints on methodology because of the characteristics of the field; and understand the particular issues of small-scale research and participatory research; and explore new methodologies that are developing in the field. The authors recognize that there are tensions, especially the difficulty of validating research on small varied populations in a wide range of schools, community and other settings . The book will also help readers to critically evaluate the implications of research reports for their own practice.
Making it work: strategies for success in supported employment
- Authors:
- JONES Stephanie, et al
- Publisher:
- Pavilion/Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 50p.
- Place of publication:
- Brighton
Explores the experiences and strategies for success of supported employees, employers, colleagues and job coaches. The report focuses on the experiences of people with learning difficulties themselves and was carried out in collaboration with members of the self advocacy group People First Wales.
A validity study of the Screening Tool of Feeding Problems (STEP)
- Authors:
- KUHN David E., MATSON Johnny L.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(3), September 2002, pp.161-167.
- Publisher:
- Taylor and Francis
The Screening Tool of Feeding Problems (STEP) was developed as a means to identify feeding problems presented by persons with an intellectual disability, for diagnosis, treatment and evaluating treatment outcome. Rarely is assessment comprehensive and often problems are not identified until they are severe. Items for the scale were developed to target feeding problems identified in the literature in the areas of risk of aspiration, food selectivity, feeding skills deficits, food refusal and associated behaviour problems, and nutrition related behavior problems. The current study examines the validity of the STEP as a means to identify feeding problems.
The validity and utility of subjective quality of life: a reply
- Author:
- CUMMINGS Robert A.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 15(3), September 2002, pp.261-268.
- Publisher:
- Wiley
This article concentrates on two major themes. The first concerns the psychological reality and measurement of the quality of life (QOL) construct for people with an intellectual disability. A substantial weight of evidence supports the psychological reality of the construct, and that reliable and valid measurement of subjective life quality can be achieved for the majority of people. The second theme concerns the usefulness of subjective life quality measurement for service delivery. Such measurement can have major benefits for both respondents and service providers provided that the psychometric character of the data is understood.
Quality of life measurement and people with intellectual disabilities: a reply
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 15(3), September 2002, pp.254-260.
- Publisher:
- Wiley
This article addresses the continuing debate concerning three major issues: the utility of measuring subjective well-being in assessing service quality; the validity of quality of life as a construct; and the wider context within which quality of life assessment takes place. Evidence is presented to argue that subjective well-being should not be used to assess service quality, as it is a largely dispositional trait and measures of subjective well-being can only be reliably completed by a minority of people with intellectual disabilities. Some concerns are raised concerning the validity of current measures of quality of life, in terms of combining objective and subjective aspects of quality of life, summing quality of life domains, and the lack of investigation of the 'psychological reality' of quality of life as a construct. Finally, arguments concerning the potentially unfortunate consequences of adopting a quality of life approach within services are outlined.
Ethics in quasi-experimental research on people with severe learning disabilities: dilemmas and compromises
- Authors:
- KELLETT Mary, NIND Melanie
- Journal article citation:
- British Journal of Learning Disabilities, 29(2), June 2001, pp.51-55.
- Publisher:
- Wiley
Examines the theme of research ethics focusing on the authors' quasi-experimental study evaluating the Intensive Interaction approach for pupils who are preverbal. Questions their own practice, and illustrates some of the dilemmas which they faced in their research and some of the compromises which they reached.