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Working alongside older people with a learning disability: informing and shaping research design
- Authors:
- HERRON Daniel, PRIEST Helena M., READ Sue
- Journal article citation:
- British Journal of Learning Disabilities, 43(4), 2015, pp.261-269.
- Publisher:
- Wiley
Background: There has been an increase in inclusive research in the learning disability field; however, this has not been reflected within learning disability and dementia research, where little is known from the perspective of people with learning disabilities. This paper will define inclusive research, explore reasons for the dearth of inclusive dementia research, and identify the challenges of conducting dementia research involving people with learning disabilities. Materials and Methods: Examples of working with people with learning disabilities to develop elements of a PhD research study will be detailed and critically discussed. Results: These experiences aided the creation of accessible material about dementia for a PhD research study. Subsequently, this helped to overcome challenges of communication within the research study and helped to promote the participation of people with learning disabilities and dementia. Conclusion: Sharing these ideas about how we worked together will help others who are seeking to engage and achieve more inclusive research practices with marginalised populations.
Normalisation emancipatory research and inclusive research in learning disability
- Author:
- WALMSLEY Jan
- Journal article citation:
- Disability and Society, 16(2), March 2001, pp.187-205.
- Publisher:
- Taylor and Francis
This article traces the influence of two major sets of ideas: normalisation/srv, and the social model of disability on inclusive research in learning disability. The argument is that normalisation set the agenda for learning disability research for two or more decades. Inclusive researchers continue to apply normalisation thinking to work with people with learning difficulties, particularly in assuming the role of advocate. Latterly, a number of researchers have tried to rise to the challenges posed by emancipatory research, particularly in attempting to find ways to put people with learning difficulties in control. Whilst some ideas from emancipatory research have been applied in learning disability, there are debates in the disability literature that have not been addressed in learning disability research to date. The result is that inclusive research in learning disability is in danger of being marginalised, both in the context of disability studies and in the context of the broad sweep of learning disability research.
International ethical safeguards: genetics and people with learning disabilities
- Author:
- DIESFELD Kate
- Journal article citation:
- Disability and Society, 14(1), January 1999, pp.21-36.
- Publisher:
- Taylor and Francis
Discusses the ethical issues and international standards relating to genetic research on people with learning disabilities. This research provides a brief historical context and considers five issues of fundamental importance to people with learning disabilities through a discussion of participating in the research design, independent advocacy, justice, non-discrimination and autonomy.