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Living in a supervised home, (staffed or unstaffed): a questionnaire of quality of life: revised version
- Authors:
- CRAGG Rod, HARRISON Jane
- Publisher:
- Lea Castle Hospital
- Publication year:
- 1986
- Pagination:
- 40p., tables.
- Place of publication:
- Kidderminster
-
Development and psychometric evaluation of the Group Home Culture Scale
- Authors:
- HUMPHREYS Lincoln, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(3), 2020, pp.515-528.
- Publisher:
- Wiley
Background: Organizational culture in group homes for people with intellectual disabilities has been identified as influencing staff behaviour and residents’ quality of life (QOL). Despite this influence, culture has been under‐researched, with no published and validated instrument to measure its dimensions in group homes. The aim was to develop such a measure. Method: The Group Home Culture Scale (GHCS) was developed using a theory‐driven approach. Items were generated from the research literature, which were reviewed by experts and tested in cognitive interviews. Data from 343 front‐line staff were used for exploratory factor analysis. Results: The content and face validity of the GHCS were found to be acceptable. Exploratory factor analysis indicated that the GHCS measured seven dimensions of group home culture. Cronbach's alpha for the dimensions ranged from 0.81 to 0.92. Conclusions: The GHCS has potential use in research to determine whether dimensions of group home culture predict the quality of staff support and residents’ QOL. (Publisher abstract)
Relocating people with intellectual disability to new accommodation and support settings: contrasts between personalized arrangements and group home placements
- Authors:
- McCONKEY Roy, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.109-120.
- Publisher:
- Sage
- Place of publication:
- London
Internationally the relocation of people with intellectual disability from institutions has brought significant gains to their quality of life. This study contrasted three groups of persons in Ireland who moved either to personalised arrangements (n = 29) or to community group homes (n = 31) with those who remained in congregated settings awaiting relocation (n = 29). Persons moving to rented accommodation with personalized support tended to be younger and had fewer support needs than those in group homes. They had greater control and choice in their lives, more community engagement and increased personal relationships compared to residents in group homes but those remaining in congregated settings fared worse of all. However, average staff costs were significantly higher in the latter settings. The implications for the future provision of group living arrangements are discussed along with the need for further longitudinal research to assess the sustained impact of personalized arrangements and their funding. (Edited publisher abstract)
Quality of life and living arrangements for people with intellectual disability
- Authors:
- BERTELLI Marco, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(4), 2013, pp.220-231.
- Publisher:
- Emerald
Recent international experiences of community inclusion have produced a major change in residential care for people with intellectual disability (ID). Assignment and outcome assessment through new person-centred measures are raising increasing interest; however, the information on quality of life and accommodation is still limited. This paper aims to provide an overview of the application of quality of life models and the size of the provision of different living arrangements using a systematic mapping of the literature of the last decade and expert guided review of the available evidence. Quality of life (QoL) outcomes measures of living arrangements in people with ID show conceptual and methodological challenges. The following key topics were identified: individual level: issues related to health status, behavioural problems and other personal factors (ageing, choice and empowerment); family and peers; local level: accommodation, architecture and urbanization, and economic aspects (deprivation and costs); macro level: social participation (community inclusion). The residential solutions that are currently considered of highest efficiency are small apartments in the community and “cluster centers”. (Edited publisher abstract)
Quality of life in group homes and older persons' homes
- Authors:
- HIGGINS Laura, MANSELL Jim
- Journal article citation:
- British Journal of Learning Disabilities, 37(3), September 2009, pp.207-212.
- Publisher:
- Wiley
A non-equivalent comparison group design was used to compare the quality of life of 59 people in three groups; older people without an intellectual disability living in older people's homes (n = 20), older people with an intellectual disability living in older people's homes (n = 19) and older people with an intellectual disability living in intellectual disability homes (n = 20). Data were collected on participant characteristics, adaptive behaviour and three aspects of quality of life; community involvement, participation in domestic living and choice making. The three groups were comparable in terms of gender, ethnicity and additional impairments but the older people without an intellectual disability were older and had more adaptive skills than the other groups. Older people with an intellectual disability experienced better quality of life outcomes in terms of participation in meaningful activity and community access when they lived in intellectual disability homes compared with older people's homes. It was not possible to achieve reliability on the measure of choice-making. This study provides some evidence to suggest that older people with an intellectual disability may be best served in intellectual disability homes rather than older people homes and that it is an area of research which needs further exploration.
Individual characteristics associated with community integration of adults with intellectual disability
- Authors:
- VINE Xanthe K. L., HAMILTON David I.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 30(3), September 2005, pp.171-175.
- Publisher:
- Taylor and Francis
This Australian study identified individual characteristics associated with community integration of adults with an intellectual disability. A group of 37 males with high support needs, and who had previously lived in a large institution, participated in the study. Using proxy respondents, data were collected on three measures of community integration, and on the participants' adaptive and maladaptive functioning. Chronological age and years of institutionalisation were also examined for their associations with community integration. Level of daily living skills predicted life circumstances. There were no significant associations among the measures of community integration. The examination of the relationships between participant characteristics and community integration produced similar conclusions to previous research. Only daily living skills scores were uniquely associated with variations in life circumstances. Further research is required to determine whether these findings will be replicated with other cohorts of participants.
An evaluation of specialized community-based residential supports for people with challenging behaviour
- Authors:
- GOLDING Laura, EMERSON Eric, THORNTON Amanda
- Journal article citation:
- Journal of Intellectual Disabilities, 9(2), June 2005, pp.145-154.
- Publisher:
- Sage
- Place of publication:
- London
This study explored the effects of relocation from institutional to specialized community-based residential provision for six men with mild to moderate intellectual disabilities and challenging behaviour and for a comparison group of six men with mild to moderate intellectual disabilities and challenging behaviour who were already living in specialized community based residential provision. Relocation was associated with: (1) a significant increase in participants’ domestic activity skills; (2) a decrease in the observed occurrence of some problem behaviours; (3) an increase in quality of life; and (4) an increase in engagement and staff contact. The community group, however, also showed some improvements over time, most notably in their levels of engagement in meaningful activity and staff contact. The implications of these results for service provision and suggestions for future research are discussed.
The effect of individual and environmental characteristics on outcomes in residential services
- Author:
- JOYCE Theresa
- Journal article citation:
- Mental Handicap Research, 7(2), 1994, pp.134-146.
- Publisher:
- BIMH Publications
Research over a number of years has shown the damaging and dehumanising effects of institutional living on people with learning difficulties, and has exposed the fact that the quality of life experienced in such settings is not solely the consequence of having a learning difficulty, but as much as consequence of the nature of the service offered. Data from some London residential services is used to compare the outcomes for clients of different types of residential service, and to investigate the actual factors and processes which contribute to those outcomes.
44 Lancaster place: a story of resettlement
- Author:
- KING'S FUND
- Publisher:
- King's Fund
- Publication year:
- 1990
- Pagination:
- 81p.
- Place of publication:
- London
Evaluates the quality of life of five young men who moved out of a long-stay mental handicap hospital to take up the tenancy of their own home in the community.
Effects of Dementia Care Mapping on well‐being and quality of life of older people with intellectual disability: a quasi‐experimental study
- Authors:
- SCHAAP Feija D., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(4), 2019, pp.849-860.
- Publisher:
- Wiley
Background: The ageing of people with intellectual disability, accompanied with consequences like dementia, challenges intellectual disability‐care staff and creates a need for supporting methods, with Dementia Care Mapping (DCM) as a promising possibility. This study examined the effect of DCM on the quality of life of older people with intellectual disability. Methods: This study performed a quasi‐experimental study in 23 group homes for older people with intellectual disability in the Netherlands, comparing DCM (n = 113) with care‐as‐usual (CAU; n = 111). Using three measures, this study assessed the staff‐reported quality of life of older people with intellectual disability. Results: DCM achieved no significantly better or worse quality of life than CAU. Effect sizes varied from 0.01 to −0.22. Adjustments for covariates and restriction of analyses to people with dementia yielded similar results. Conclusion: The finding that DCM does not increase quality of life of older people with intellectual disability contradicts previous findings and deserves further study. (Edited publisher abstract)