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Application of the Rasch rating scale model to the assessment of quality of life of persons with intellectual disability
- Authors:
- GOMEZ Laura E., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 37(2), June 2012, pp.141-150.
- Publisher:
- Taylor and Francis
Individual quality of life is a concept referring to core domains influenced by personal characteristics and environmental factors, and has received increasing attention in the field of intellectual disability. This study aimed to test and improve the psychometric properties of the INTEGRAL quality of life scale (a questionnaire to measure quality of life for adults with intellectual disability), including the observed fit of data to the Rasch model. The research involved a sample of 271 adults from provinces across Spain who had intellectual disability and used social services, and questionnaires were completed by qualified interviewers. The article describes and discusses the methodology, data analysis and results.
Value added
- Authors:
- McINTOSH Barbara, SANDERSON Helen
- Journal article citation:
- Community Care, 20.04.06, 2006, pp.30-31.
- Publisher:
- Reed Business Information
This article reviews the findings of a major evaluation of person-centred planning for people with learning difficulties. The research, funded by the Department of Health, shows that person-centred planning has led to significant changes in the areas of social networks, contact with family, contact with friends, community-based activities, scheduled day activities, and levels of choice.
Family quality of life among families with a member who has an intellectual disability: an exploratory examination of key domains and dimensions of the revised FQOL Survey
- Authors:
- WERNER S., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 53(6), June 2009, pp.501-511.
- Publisher:
- Wiley
The Family Quality of Life Survey (FQOLS-2006) was developed as the result of increased interest in family quality of life (FQOL) among families with a member who has an intellectual disability (ID). The instrument includes nine life domains and six dimensions reflecting the main areas and characteristics of FQOL. The aim of the current study was to provide a descriptive analysis of the domains and dimensions of the survey and to explore their relationship to one another and to global satisfaction. A convenience sample of 35 participants with a family member who had ID completed the FQOLS-2006 in a large urban centre in Canada. The data were analysed using descriptive analyses. The findings showed that although participants differentiated between different domains and dimensions, as reflected in their variability, stability was also found. For example, support from others was rated lowest across most dimensions, while family relationships and health of the family were generally rated higher. The findings strengthen the importance of examining both the overall perception of FQOL as well as the perceptions in individual life domains. Moreover, they highlight the need to examine each life domain according to its various dimensions. In sum, the results call for further examination of the FQOLS-2006 as a useful tool for assessing FQOL and for implementing services based on it.
Individual planning: an exploration of the link between quality of plan and quality of life
- Authors:
- ADAMS Lynn, MANSELL Jim, BEADLE-BROWN Julie
- Journal article citation:
- British Journal of Learning Disabilities, 34(2), June 2006, pp.68-76.
- Publisher:
- Wiley
In this study individual plans for people with intellectual disabilities were evaluated for quality and effectiveness in improving quality of life. Quality was assessed by rating whether goals were relevant, observable, age appropriate, necessary, timetabled, developmental, measurable, realistic, assigned to staff and improving at least one of O'Brien's five service accomplishments. Effectiveness was assessed by examining quality of life outcomes for participants with and without individual plans rated as higher quality. No significant difference in outcomes associated with having a higher quality individual plan was found. Findings present a challenge to current expectations that presence and quality of individual plan goals are associated with improved outcomes. Written individual plan goals may not be directly correlated with actual practice, and further research is required to examine this.
Quality of life issues in the development and evaluation of services for people with intellectual disability
- Authors:
- McVILLY Keith R., RAWLINSON Rosanne B.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 23(3), September 1998, pp.199-218.
- Publisher:
- Taylor and Francis
This article reviews and evaluates methodologies for the assessment and promotion of quality of life (QOL), a multidimensional and dynamic construct frequently used to measure psychological and physiological wellbeing in people with intellectual disability (ID). Objective and subjective components of QOL are critically reviewed, together with the social and psychological factors that impinge on it. Discusses contrasting approaches to the assessment of QOL, including process-centred approaches to evaluation. Proposes that the future research should directly address the question of concurrence in QOL evaluations between and people with ID and their proxies.
The evaluation of PASS (Programme Analysis of Service Systems): report of the first phase
- Authors:
- PILLING Doria, MIDGLEY Gerald
- Publisher:
- University of Hull. School of Management Systems and Sciences
- Publication year:
- 1990
- Pagination:
- 11p.,bibliog.
- Place of publication:
- Hull
Critical assessment of the progress of PASS, an evaluation instrument that sets out to quantitatively assess the quality of human service systems and which is used widely in the evaluation of services for people with learning difficulties.
An evaluation of positive behavioural support implemented within an intensive community support service for people with learning disabilities who present with behaviours that challenge
- Authors:
- LEWIS Nicola, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 25(3), 2021, pp.348-356.
- Publisher:
- Sage
- Place of publication:
- London
This article evaluates the effectiveness of a multidisciplinary intensive community support service, using positive behavioural support (PBS) as a core intervention model to reduce behaviours of concern and to improve the quality of life and occupational involvement of individuals with a learning disability who present with behaviours that challenge. The service used outcome measures to evaluate the effectiveness of the PBS model. The study looks at pre- and post-outcome measures which showed a significant improvement in behaviour, quality of life and occupational outcomes for individuals with a learning disability presenting with complex behaviours of concern. This study contributes to the growing evidence base for PBS being delivered by specialist community learning disability teams. (Edited publisher abstract)
Development and psychometric evaluation of the Group Home Culture Scale
- Authors:
- HUMPHREYS Lincoln, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(3), 2020, pp.515-528.
- Publisher:
- Wiley
Background: Organizational culture in group homes for people with intellectual disabilities has been identified as influencing staff behaviour and residents’ quality of life (QOL). Despite this influence, culture has been under‐researched, with no published and validated instrument to measure its dimensions in group homes. The aim was to develop such a measure. Method: The Group Home Culture Scale (GHCS) was developed using a theory‐driven approach. Items were generated from the research literature, which were reviewed by experts and tested in cognitive interviews. Data from 343 front‐line staff were used for exploratory factor analysis. Results: The content and face validity of the GHCS were found to be acceptable. Exploratory factor analysis indicated that the GHCS measured seven dimensions of group home culture. Cronbach's alpha for the dimensions ranged from 0.81 to 0.92. Conclusions: The GHCS has potential use in research to determine whether dimensions of group home culture predict the quality of staff support and residents’ QOL. (Publisher abstract)
Using quality of life to evaluate outcomes and measure effectiveness
- Authors:
- KOBER Ralph, EGGLETON Ian R.C.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.40-51.
- Publisher:
- Wiley
Evaluating the outcomes achieved by service providers who assist people with intellectual disabilities is extremely important in terms of ascertaining whether service providers achieve their goals. The authors provide support for the emerging view that quality of life is an outcome measure that can be utilized to assess service providers' performance. To do this they modified a performance measurement framework to illustrate how quality of life can be incorporated in a comprehensive analysis of the outcomes achieved by various stakeholders of the service provider. They then used three examples drawn from the literature (relating to employment services, the U.S. state of Nebraska, and family quality of life), to highlight how this framework could be applied. Ideas are also presented on other areas where a comprehensive stakeholder analysis, incorporating quality of life measures, could form part of a service provider's performance evaluation. The authors review some issues that should be considered in relation to the implementation of a comprehensive performance measurement system that incorporates quality of life as one of the outcome measures.
The BiLD life experiences checklist: manual
- Author:
- AGER Alastair
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 1998
- Pagination:
- 31p., bibliog., checklists
- Place of publication:
- Kidderminster
The revised and updated BILD Life Experiences Checklist is widely used in a range of service settings to evaluate and measure improvements in home life, leisure, relationships, freedom and opportunities. Each assessment takes around 10 minutes to complete and no special expertise is needed.