Search results for ‘Subject term:"learning disabilities"’ Sort:
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Commentary on "The NICE guidelines and quality standards on learning disabilities and behaviour that challenges"
- Author:
- BUSK Mary
- Journal article citation:
- Tizard Learning Disability Review, 22(2), 2017, pp.82-86.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a commentary, from a parent carer perspective, on Murphy’s overview of the NICE guidelines and quality standards on learning disabilities and behaviour that challenges. Design/methodology/approach: The paper discusses the NICE approach, the content of these specific guidelines and quality standards and considers their practical relevance, with a particular focus on families of children and young people with learning disabilities and behaviour that challenges. Findings: Gaps in research affect recommendations in some key areas including around transition and early intervention. Risk factors are not linked to clear recommendations for early identification and prevention. For families, additional work is needed to highlight where these guidelines fit with related national law and policies. Families also need to see how the guidelines can positively influence commissioners to improve life outcomes and avoid crises and deterioration in behaviour. Although NICE guidelines are often condition specific, many of our children and young people have co-existing conditions and so do not fit neatly into just one set of guidelines. That is why data collection is very important to understanding needs and to effective commissioning. There is a need to urgently identify and address the research gaps so that essential interventions are included in future NICE guidelines and standards. Originality/value: A family carer perspective suggests ways in which implementation of the NICE guidelines can be supported and argues for the importance of the further research that will strengthen future versions of the guidelines. (Publisher abstract)
The Art of partnership: a practical guide
- Author:
- CAMERON Anita
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2001
- Pagination:
- 96p.,bibliog
- Place of publication:
- Kidderminster
This guide is aimed at anyone in learning disability services about to embark on joint working, or looking for ways to improve their current practices. Draws on case studies and experiences of successes and failures to look at the realities of partnership working, including: working towards partnership; the different kinds of partnership arrangements; developing a joint investment plan; partnership work with people with learning difficulties and their families; the ingredients of a successful partnership; and maintaining quality standards.
We miss her when she goes away: respite services for children with learning disabilities and additional health needs
- Authors:
- PLATTS Helen, et al
- Publisher:
- National Development Team
- Publication year:
- 1995
- Pagination:
- 52p.,bibliog.
- Place of publication:
- Manchester
Presents ideas for service planners, purchasers, and providers, as well as parents of children with learning difficulties for improving respite or short term care services. Draws on 3 real life visits to identify the service elements most valued by children and their families.
Learning, candour and accountability: a review of the way NHS trusts review and investigate the deaths of patients in England
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 76
- Place of publication:
- Newcastle upon Tyne
Reports on a review carried out by the Care Quality Commission to investigate how NHS trusts identify, investigate and learn from the deaths of people under their care. This review was carried out in response to the very low numbers of investigations or reviews of deaths at Southern Health NHS Foundation Trust. It draws on evidence from a national survey of NHS trusts and visits to 12 acute, community healthcare and mental health trusts; the views of over 100 families, collected through interviews, events and an online form; and consultation with charities and NHS professionals. The findings are discussed in five areas: the involvement of families and carers; the identification and reporting of deaths; making decisions to review and investigate; decisions to review or investigate; and governance arrangement and learning. Examples of promising practice are also included. The results found that that many carers and families had a poor experience of investigations and are not always treated with respect and honesty. This was especially true of deaths involving people with a learning disability or people with mental problems. The review also found that opportunities are missed to learn across the system from deaths that may have been prevented. It concludes that learning from deaths needs to be a much greater priority for all working within health and social care. The report makes recommendations for improvement. (Edited publisher abstract)
Services for children with learning disability: international perspectives on residential child care
- Editor:
- BARLOW Gerald
- Publisher:
- University of Strathclyde. Centre for Residential Child Care
- Publication year:
- 1999
- Pagination:
- 50p.,bibliogs.
- Place of publication:
- Glasgow
Includes papers on: services for children with learning difficulties; between the ideal and the reality; exploring the relationship of the child educator; the Camphill Diploma Course in Curative Education; respite care in the Ottawa Rotary Home; a holistic approach at the Linn Moor Special Residential School; twenty two years of residential care for special needs children; education, care and therapy at the St. Margaret's School; the network family programme in Tasmania; and putting the concept of quality of care into operation.
Values and visions: changing ideas in services for people with learning difficulties
- Editors:
- PHILPOT Terry, WARD Linda
- Publisher:
- Butterworth-Heinemann
- Publication year:
- 1995
- Pagination:
- 422p.,bibliogs.
- Place of publication:
- Oxford
Includes chapters on: supporting families of children and adults with learning difficulties; achieving supported housing; supported employment and real jobs; continuing education for adults with learning difficulties; institutional trends in services; developing better relationships between health and social services; assessment and care management; making contracts work for people with learning difficulties; user participation in services; complaints procedures; developing better services for people from black and minority ethnic communities; gender issues; older people with learning difficulties; self advocacy; challenging behaviour; sexuality; parents with learning difficulties; poverty; and media images of people with learning difficulties. Also contains sections on services provision in the United States and Canada.