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Cancer screening for people with learning disabilities and the role of the screening liaison nurse
- Authors:
- MARRIOTT Anna, et al
- Journal article citation:
- Tizard Learning Disability Review, 20(4), 2015, pp.239-246.
- Publisher:
- Emerald
Purpose: This paper describes the role of the screening liaison nurses for adults with learning disabilities employed by Peninsula Community Health. Design/methodology/approach: This paper reports on the national situation in regard to cancer screening for people with learning disabilities and explores the barriers which limit their participation in these screening programmes. It describes the screening liaison nurse role and presents case examples of the work they do. Findings: The local screening rates for people with learning disabilities have increased since the creation of this role in 2011. (Edited publisher abstract)
Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework
- Authors:
- GLOVER Gyles, CHRISTIE Anna, HATTON Chris
- Journal article citation:
- Tizard Learning Disability Review, 19(4), 2014, pp.194-198.
- Publisher:
- Emerald
This paper presents information from the Joint Health and Social Care Self-Assessment Framework (JHSCSAF) on reported rates of cervical cancer, breast cancer and bowel cancer screening for eligible people with learning disabilities in England in 2012/2013 compared to screening rates for the general population. Between 94 and 101 Learning Disability Partnership Boards, as part of the JHSCSAF, provided information to allow the calculation of rates of cervical cancer, breast cancer and bowel cancer screening in their locality, for eligible people with learning disabilities and for the population as a whole. At a national level, reported cancer screening coverage for eligible people with learning disabilities was substantially lower than for the population as a whole (cervical cancer screening 27.6 per cent of people with learning disabilities vs 70 per cent of total population; breast cancer screening 36.8 per cent of people with learning disabilities vs 57.8 per cent of total population; bowel cancer screening 28.1 per cent of people with learning disabilities vs 40.5 per cent of the general population). There were considerable geographical variations in reported coverage for all three screening programmes. It is concluded that there is an urgent need to address data availability and quality issues, as well as reasonable adjustments to cancer screening programmes to ensure uniformly high rates of cancer screening for people with learning disabilities across England. (Edited publisher abstract)
Cancer screening in women with intellectual disabilities an Irish perspective
- Authors:
- REIDY Mary, DENIEFFE Suzanne, FORAN Sinead
- Journal article citation:
- Journal of Intellectual Disabilities, 18(1), 2014, pp.51-60.
- Publisher:
- Sage
- Place of publication:
- London
In the Republic of Ireland, more than 8000 women with intellectual disabilities (IDs), aged 20 years and over, are registered for service provision. Their health needs challenge preventative health services including breast and cervical cancer screening programmes. This review explores the literature about cancer screening participation rates and issues related to screening for Irish women with IDs. Low cancer screening participation rates are evident in Irish women with IDs; and the women shed light on the barriers they perceive related to the screening experience. These experiences are reflected in the international literature for women with IDs. Further research involving the assessment of the breast and cervical cancer awareness in Irish women with IDs and their participation in cancer screening programmes is recommended. Strategies are required to increase their participation in screening programmes that may lead to the earlier diagnosis with better outcomes. (Publisher abstract)
Better cervical screening for women with learning disabilities
- Author:
- SHAUGHNESSY Philomena
- Journal article citation:
- Nursing Times, 3.11.99, 1999, pp.44-45.
- Publisher:
- Nursing Times
Issues of consent, acceptability and assumptions concerning women with learning disabilities often block their access to screening programmes. This article reports on the efforts of the Horizon NHS Trust in Hertfordshire to remedy this situation.