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Premature deaths - how many could be avoided?
- Authors:
- MARRIOTT Anna, HESLOP Pauline
- Journal article citation:
- Community Living, 27(1), 2013, pp.26-27.
- Publisher:
- Hexagon Publishing
An inquiry into premature deaths among people with learning disabilities revealed that over a third could have been avoided through good quality health care. The authors, who were part of the research team, report on their findings. (Publisher abstract)
Making a difference: the impact of the Confidential Inquiry into premature deaths of people with learning disabilities
- Author:
- HESLOP Pauline
- Journal article citation:
- British Journal of Learning Disabilities, 43(2), 2015, pp.142-149.
- Publisher:
- Wiley
The Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD) was commissioned by the Department of Health in England in 2010 to investigate the avoidable or premature deaths of people with learning disabilities through retrospective reviews of deaths. Both the process of conducting CIPOLD and the findings of the study itself made an impact on the way in which professionals thought about issues relating to people with learning disabilities and led to changes in policy and practice. Much of the impact of CIPOLD came from arming practitioners, family carers, people with learning disabilities and policy makers with the research findings and encouraging them to take on the mantle of change from there, for example, by increasing the provision of training or reviewing their current practice. There were a number of challenges that the research team faced. First, they needed to ensure the assiduous recording of any impact that took place throughout the duration of the research and beyond. Secondly, they were careful to make sure that as far as possible, professionals were involved and that it was a learning experience for them from which they had something to gain. Thirdly, self-reflexivity on the part of the research team was required in order for them to understand where their own strengths and limitations lay. (Publisher abstract)