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Developing a comprehensive research agenda for people with intellectual disability to inform policy development and reform
- Author:
- TOWNSEND Clare Elizabeth
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(2), June 2011, pp.113-124.
- Publisher:
- Wiley
There is a consensus in the literature that more research is required to inform the development and reform of policy and service systems for people with intellectual disability (ID). Currently, there are concentrations and gaps in the research knowledge in this area. Strategically developed research agendas underpinned by a strict adherence to human rights principles can optimally inform policy and service development and reform. This article describes the development of a framework to facilitate the conceptualisation of a comprehensive and structured research agenda for ID that can underpin policy. The framework is informed by templates developed in mental health and health and consists of external parameters and internal domains and elements. The external parameters are human rights, national and state priorities, research knowledge, and research capacity. The internal domains are context, resources, provision, and outcomes. The framework is applicable in a range of settings and can be used to prioritise and optimise research efforts and resources in the area of ID.
Will new Mental Capacity Bill stop further breaches of human rights?
- Author:
- GILLEN Sally
- Journal article citation:
- Community Care, 14.10.04, 2004, pp.16-17.
- Publisher:
- Reed Business Information
Asks whether the new Mental Capacity Bill will do enough to protect the human rights of people with mental health problems. Looks at the recent ruling of the Bournewood Case where the European Court of Human Rights ruled that the detention of an autistic man in a psychiatric hospital had breached his human rights.
Draft Incapacity Bill does not protect people's human rights
- Author:
- -
- Journal article citation:
- Community Living, 17(2), 2003, pp.10-11.
- Publisher:
- Hexagon Publishing
People First, an organisation run by people with learning difficulties, comment on the Scrutiny Committees report on the Government's Draft Incapacity Bill. Stresses that people with learning difficulties must have support to make their own decisions to prevent abuse by other people.
Multi-element behaviour support as a model for the delivery of a human rights based approach for working with people with intellectual disabilities and behaviours that challenge
- Author:
- DOODY Christina
- Journal article citation:
- British Journal of Learning Disabilities, 37(4), December 2009, pp.293-299.
- Publisher:
- Wiley
This paper, using the story of Mary, a 40 year old woman with moderate intellectual disabilities who is nonverbal and exhibits poor comprehension skills, demonstrates the effectiveness of the multi-element behaviour support (MEBS) model in meeting the rights of people with intellectual disabilities and behaviours that challenge. By explicitly linking the multi-element model to the guiding principles of a human rights based approach, these guiding principles are: rights; participation; empowerment; non-discrimination; and accountability. The background and functional assessment phase of the MEBS process enables the identification of rights infringements while the MEBS plan addresses those rights. The accountability tool in the MEBS model, the periodic service review, is then used as a measure of implementation of the MEBS plan and, as a result, the enabling of those rights. Implications in relation to the rights of those supporting persons in receipt of MEBS and those living with the person receiving MEBS are highlighted.
Independent living and the Human Rights Act 1998
- Author:
- PARKER Camilla
- Publisher:
- Disability Rights Commission
- Publication year:
- 2004
- Pagination:
- 10p.
- Place of publication:
- London
This paper has been commissioned by the Disability Rights Commission (DRC), the National Centre for Independent Living (NCIL) and Social Care Institute for Excellence (SCIE). Its purpose is to assist the work of these three organisations in promoting independent living for disabled people by: identifying areas of social care policy and practice that are of relevance to independent living and the human rights of disabled people; considering the opportunities created by the Human Rights Act 1998 (the HRA) to promote independent living; and in the light of this analysis, suggesting future research in social care practice.
Life choices
- Author:
- SHARPE Leslie
- Journal article citation:
- Professional Nurse, September 2003, pp.10-11.
- Publisher:
- Emap Healthcare
Provides comment on the draft Mental Incapacity Bill.
Core human rights concepts in Irish health and housing policy documents: in search of equity for people with ID
- Authors:
- O'DONOVAN Mary‐Ann, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 15(4), 2018, pp.307-313.
- Publisher:
- Wiley
If specific groups and their needs are excluded from policy, this exclusion may extend to service delivery and add to the inequities that already exist in health and housing access for vulnerable groups. The extent to which Irish housing/de‐institutionalisation and health policies include core human rights concepts has not been examined previously. This article examines the extent to which the core human rights concepts for people with ID are represented in health and housing policies. EquiFrame was the analytical tool for examining six health and housing policies. EquiFrame analyses policy content on commitment to core concepts of human rights and inclusion of vulnerable groups. Health and housing policies in Ireland, despite outlining a commitment to reducing health inequities, were not found to have a commitment to the core human rights concepts in relation to the specific needs of people with disabilities and people with an intellectual disability. Equity means inclusion of all people and includes recognition, acknowledgement, and monitoring of the specific needs and challenges faced by particular vulnerable population groups, and that these needs are being addressed through policy administered by federal oversight agencies. An implication of the findings is that the EquiFrame tool previously used in the health sector is also useful in considering housing policy. Furthermore, equity concerns need to be examined closely for people with ID because including all vulnerable groups in one aggregated category has been shown to conceal the specific needs and challenges that need to be addressed for specific vulnerable groups. (Publisher abstract)
Quality of home life for adults with learning disabilities: the interplay of economic policy and professional practice
- Author:
- DALRYMPLE John
- Journal article citation:
- Tizard Learning Disability Review, 23(1), 2018, pp.8-11.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a commentary on the article (in the same issue) which describes changing patterns in the provision and take-up of accommodation services for adults with learning disabilities in Ireland, in the context of the types of reductions in funding that have been apparent internationally for some time. Design/methodology/approach: The commentary examines some of the implications and discusses some of the underlying quality of life issues implicit in the data presented. It also explores the tensions between owning one’s home and receiving specialist support and examines what supported living might enable services to achieve. Findings: The paper concludes that the nature of economic policy and professional practice, alike, have implications for the quality of home life enjoyed by adults with learning disabilities; and that the interplay between them is more complex than is often allowed. Originality/value: These issues are not new, but frustratingly enduring. Their fresh consideration might assist the urgent need to achieve a more coherent narrative capable of consistent application for present and future generations. (Edited publisher abstract)
Report on mobility and inclusion of people with disabilities and the European disability strategy 2010-2020 (2010/2272(INI))
- Author:
- EUROPEAN PARLIAMENT. Committee on Employment and Social Affairs
- Publisher:
- European Parliament
- Publication year:
- 2011
- Pagination:
- 44p.
- Place of publication:
- Brussels
The basic premise of this report is that the human rights of people with disabilities must be upheld. It suggests that the Member States should not only sign and ratify the UN Convention on the Rights of the Disabled and its additional protocols, they should also consider developing national policies and strategies on disabilities in harmony with the European Commission’s European Disability Strategy (EDS) and the EU2020 strategy, as well as reviewing the existing national-level documents on this matter. In line with the EU2020 strategy, one of the most important objectives is increasing the employment level for the nearly 80 million people with disabilities living in the EU. The focus must be on long-term investment for people with disabilities rather than short-term expenditure. In terms of implementing the EDS, there is a need for more detailed and precise deadlines and mechanisms to be determined, particularly with regard to strengthening the role of the European Parliament. Issues considered in this report include: civil and human rights; the importance of data collection and consultation; demographic changes and a barrier-free environment; free movement of persons and barrier-free services; equal opportunities; investing in people with disabilities; and the fight against poverty.
Extra agreement under the International Agreement on the Rights of Disabled People
- Author:
- INSPIRED SERVICES
- Publisher:
- Great Britain. Department for Work and Pensions
- Publication year:
- 2007
- Pagination:
- 9p.
- Place of publication:
- London
The United Nations Convention on the Rights of Persons with Disabilities is an international human rights treaty that makes it clear that disabled people have, and should be able to enjoy, the same human rights as others. The Convention sets an internationally recognised benchmark for the human rights of disabled people against which countries, including the UK, will be measured. The Convention also has an additional section called the Optional Protocol. This Protocol allows individuals who believe that their rights under the Convention have been breached to bring complaints to the UN Committee established to monitor the Convention. The Committee can also undertake enquiries into alleged grave or systematic violations of the Convention. The Convention applies to all disabled people and covers all areas of life including access to justice, personal mobility, health, education, work and recreation. This document is the easy read version of the Convention, and outlines how: disabled people - or groups of disabled people - can complain to the special Committee if they feel they are not getting their rights under the International Agreement; anyone who makes a complaint has to give their name, or the name of their group; when a complaint is made the Committee will privately tell the government of the country where it happened what it is about; in a very urgent and serious case the Committee may ask a country to do something straight away to help the person who has made the complaint. It also explains how the Committee will talk about complaints in private. Afterwards it will send its views to the government of the country and the person who complained.