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It's good to be part of things: working with older people with learning disabilities
- Author:
- WERTHEIMER Alison
- Publisher:
- Age Concern
- Publication year:
- 2004
- Pagination:
- 78p.
- Place of publication:
- London
This publication is intended to assist and encourage local Age Concern groups to develop services and activities for older people with learning disabilities and their older carers. It explores common attitudes, myths and misconceptions about people with learning disabilities.
Retirement or just a change of pace: an Australian national survey of disability day services used by older people with disabilities
- Authors:
- BIGBY Christine, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 29(3), September 2004, pp.239-254.
- Publisher:
- Taylor and Francis
Definitions of old age selected by researchers should reflect differences in culture and life expectancy within and between developing and developed nations. Fifty-five years was used to denote older people in both the Australian national survey and a Victorian study. Consequently, 55 years and older has been used to denote older people in this study. people with a lifelong disability are discussed. A postal survey of 596 day programmes for people with disabilities was conducted, with a response rate of 28%. Findings show that only 19% of service users were aged over 55, and the largest subgroup were people with intellectual disability. Many older people attended programs that were not age specific and a typology of the seven program types utilised was constructed. Individualised planning, flexibility and choice were perceived as fundamental to a successful program. The location of activities in the community, maintenance of social relationships, and opportunities to develop new contacts were also seen as important. Little understanding, however, of the diversity of the ageing process or notions of healthy ageing was demonstrated by service providers, many of whom had limited expectations of older people. Challenges identified in providing day support for older people were lack of financial resources, knowledge and expertise amongst staff, and difficulties interfacing with other service systems.
Later life planning training programme: a pre-test assessment in Israel
- Author:
- LIFSHITZ Hefziba
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.87-103.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Data are provided on the outcome of an assessment on a knowledge of aging andfutures planning tool administered to 38 adults, age 40 and older, with an intellectual disability living in community residences in Israel. The subjects participated in the Later Life Planning Training Programme (LLPTP) which is designed to teach people with intellectual disability about later life planning issues, and increase their participation in choice making. Comparisons were made between two samples, one Israeli and one American. Differences were found on three areas of the LLPTP: Choice-making, Life Satisfaction, and Social Support.
Transitions in the lives of older adults with intellectual disabilities: “having a sense of dignity and independence”
- Author:
- STRNADOVA Iva
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 16(1), 2019, pp.58-66.
- Publisher:
- Wiley
Older people with intellectual disabilities (ID) experience numerous transitions in their lives, which include transitions between jobs, places of residence, relationship transitions, and transitions to retirement. Ensuring quality planning for the future is important so that older people with ID can live good lives. Thus, the aim of this study was to explore planning for the future and transitions experienced by older people with ID. The author conducted semi‐structured in‐depth interviews with 17 people with ID aged 40 years and more. The interviews were analyzed using inductive content analysis. The three main themes were types of transitions, planning for future, and barriers to planning for future. The implications for research and practice are discussed, with a focus on enhancing independence and choice‐making. (Edited publisher abstract)
Housing with care and support: a snapshot of the sector and its challenges and opportunities
- Author:
- SKILLS FOR CARE
- Publisher:
- Skills for Care
- Publication year:
- 2017
- Pagination:
- 36
- Place of publication:
- Leeds
Using five in-depth case studies of housing with care and support providers, this paper explores the strategic and operational issues they face, the influence these have on their workforce and what they saw as the future challenges ahead. The five case studies focused on extra care housing for older people and supported living for people with learning disabilities. The services were set up using different delivery models, some splitting the landlord function from the housing support function and some separating the housing from the care function, with some keeping all three together. Issues discussed include: the structure of the service and its effect on learning and development, workforce planning; recruitment and retention; progression and career development; and partnership, integration and changing expectations of commissioners and their influence on the workforce. Common themes identified across the sites included: challenges in recruitment and retention; lone working as a factor in poor staff retention; and an increasing number of people with high levels of need living in extra care housing, placing the model at risk. Common gaps in learning included mental health, substance dependence, anti-social behaviour, challenging behaviour and preventing loneliness. (Edited publisher abstract)
Siblings of adults with developmental disabilities: psychosocial outcomes, relationships, and future planning
- Authors:
- HELLER Tamar, ARNOLD Catherine Keiling
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.16-25.
- Publisher:
- Wiley
As a result of longer lifespan and the aging of their parents, siblings play an increasing role in the lives of people with intellectual and developmental disabilities. In this article, the authors reviewed the literature on siblings of adults with intellectual and developmental disabilities, concentrating on three main questions: what are the psychosocial outcomes of having a sibling with an intellectual and developmental disabilities on the sibling without a disability?; what factors relate to the nature of the sibling relationship?; and what factors relate to future planning, including expected and future relationships when parents can no longer provide care? The authors examined 23 relevant published studies for the period 1970–2008 on adult siblings over 21 years of age that addressed the relationships, psychosocial outcomes, and involvement in future planning. In conclusion, the authors suggest that these studies present a mixed, but positive picture of the psychosocial outcomes of having a sibling with a disability. They also indicate that siblings tend to have long-lasting close relationships with their siblings with a disability and anticipate taking on greater supportive roles as both grow older.
Older carers of adults with a learning disability confront the future: issues and preferences in planning
- Authors:
- BOWEY Laura, McGLAUGHLIN Alex
- Journal article citation:
- British Journal of Social Work, 37(1), January 2007, pp.39-54.
- Publisher:
- Oxford University Press
The Valuing People White Paper (Department of Health, 2001) requires services to secure a plan for all service-users with learning disabilities living with older carers and promises them and their families more choice and control over how and where they live. This paper examines the views of the older carers (aged over seventy) of sixty-two adults with a learning disability about planning for the future. Fifty-six took part in interviews in their own homes and six completed a questionnaire. All carers were white and recruited from one local authority in response to the requirements of the White Paper. Findings indicate that a significant proportion is either not ready or is unwilling to make future plans. Barriers to planning include a perceived lack of need due to the existence of two carers, a lack of awareness of timescales involved in securing housing, difficulties in letting go, a lack of confidence in available housing options, and the existence of mutually supportive relationships. The findings show a need for a proactive approach to information and support provision to enable these families to work through a process of making plans for the future. This is essential to prevent the need for emergency placements in response to crisis and in turn to ensure that adults with learning disabilities have genuine choice and involvement in how and where they live.
Adults with a learning disability living with elderly carers talk about planning for the future: aspirations and concerns
- Authors:
- BOWEY Laura, McGLAUGHLIN Alex
- Journal article citation:
- British Journal of Social Work, 35(8), December 2005, pp.1377-1392.
- Publisher:
- Oxford University Press
The majority of adults with a learning disability live with family carers, many of whom are ageing and have support needs of their own. Planning for the future thus becomes the key to preventing a crisis situation when family care is no longer viable because of death or ill health. Existing knowledge and practice are largely based upon the perspective of professionals and carers. This study explores the views, aspirations and concerns of adults with a learning disability, about living at home and planning for the future. Findings show that participants were very aware of the need for alternative housing or support in the future and had clear preferences about their future options. However, they also showed extensive concern for their family carers and this often impacted on their willingness to plan for the future or to move to alternative housing. Their demonstrable awareness of the inevitable death or ill health of family carers, and willingness to engage with the implications, emphasize the importance of involving adults with a learning disability in planning for their future, as well as providing them with bereavement support.
Learning difficulties
- Author:
- WARD Linda
- Journal article citation:
- Research Matters, October 2001, pp.26-28.
- Publisher:
- Community Care
Looks at some of the research to come out of the Growing Older with Learning Disabilities (GOLD) Programme at the Foundation for People with Learning Disabilities. The article focuses on projects in housing, residential services for older people and involving people with learning disabilities in planning their futures.
Uncertain futures: people with learning difficulties and their ageing family carers
- Authors:
- WALKER Carol, WALKER Alan
- Publisher:
- Pavilion
- Publication year:
- 1998
- Pagination:
- 60p.,bibliog.
- Place of publication:
- Brighton
Provides an overview of research, policy and practice relating to service responses to adults with learning difficulties living at home with older family carers. Highlights issues raised by service users, carers and service providers and finds a broad consensus on what is wrong and what needs to be done. Argues that future needs of this group of people are predictable and that there is an urgent need for service providers to work with families to provide the necessary and planning which will replace uncertain futures with security and peace of mind.