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Learning disability: physical therapy, treatment and management: a collaborative approach
- Editors:
- RENNIE Jeanette, (ed.)
- Publisher:
- John Wiley and Sons
- Publication year:
- 2007
- Pagination:
- 355p.
- Place of publication:
- Chichester
- Edition:
- 2nd ed.
Most learning disability literature focuses on psychiatry, education and behaviour. This book, written by a physiotherapist, examines the effect of these aspects along with neurological deficits on physical ability. It is a fully updated, and better referenced, version of the text written for health professionals working with people (primarily adults) who have learning disabilities. It provides an overview of the diverse approaches to treatment and management issues, as well as methods to help service users achieve rehabilitation aims, including the usage of non-healthcare facilities. The book is divided into three main sections: underlying theory; assessment; and practical methods of physical treatment and management. The latter covering: postural care, managing severe physical disability, hydrotherapy, riding; group therapy, sport, and complementary therapy.
Hereditary spastic paraplegia, bipolar affective disorder and intellectual disability: a case report
- Authors:
- WHITTY Marie, KELLY Fionnuala, RAMSAY Louis
- Journal article citation:
- Journal of Intellectual Disabilities, 12(1), March 2008, pp.41-48.
- Publisher:
- Sage
- Place of publication:
- London
This is a case report of a gentleman with an intellectual impairment who presented with both hereditary spastic paraplegia (HSD) and bipolar affective disorder (BPAD), a combination that has not yet been described in the professional literature. A limited number of articles have suggested an association between HSP and an organic personality disorder. The article describes the case of a gentleman who was diagnosed with BPAD in his early adult life and displayed neurological symptoms of HSP at around the same time. Diagnosis of both HSP and BPAD can be difficult and is further compounded by an intellectual impairment. Treatment options may be limited by the propensity of many psychotropic medications to cause movement disorders and thus worsening neurological symptoms.
Young, disabled and forgotten: report of the John Grooms inquiry into the needs of young disabled people
- Author:
- CHRISTOPHIDES Rachael
- Publisher:
- John Grooms
- Publication year:
- 2006
- Pagination:
- 134p.
- Place of publication:
- London
Young disabled people, often with severe and complex conditions, are being denied a real choice about how and where they live. Lack of government funding, a postcode lottery of services, a chronic lack of data and negative attitudes about "residential care" among some policy-makers and professionals are to blame. More than a third of young disabled adults living in care homes are housed inappropriately, the report shows. According to the best available data, at least 9,000 are living in settings designed for a different client group - often in homes for older people.
Young, disabled and forgotten: report of the John Grooms inquiry into the needs of young disabled people: summary findings and recommendations
- Author:
- CHRISTOPHIDES Rachael
- Publisher:
- John Grooms
- Publication year:
- 2006
- Pagination:
- 9p.
- Place of publication:
- London
Young disabled people, often with severe and complex conditions, are being denied a real choice about how and where they live. Lack of government funding, a postcode lottery of services, a chronic lack of data and negative attitudes about "residential care" among some policy-makers and professionals are to blame. More than a third of young disabled adults living in care homes are housed inappropriately, the report shows. According to the best available data, at least 9,000 are living in settings designed for a different client group - often in homes for older people.
Advocating for equality
- Authors:
- LEWINGTON Wendy, CLIPSON Caroline
- Publisher:
- SCOPE
- Publication year:
- 2003
- Pagination:
- 41p.
- Place of publication:
- London
The aims of this research were: to establish the level of advocacy provision for people with physical, sensory, communication and profound and multiple impairments; to make recommendations to Government, policy-makers and others on how to ensure that people with sensory, physical, communication and profound and multiple impairments are able to access appropriate independent advocacy provision; to identify what support and resources current advocacy providers would require to develop their schemes to include people with physical, sensory, communication and profound and multiple impairments; to establish whether local authorities have a local advocacy plan and whether advocacy providers feel this would be beneficial in their area The main findings from the research also included the following.. Many disabled people with physical, sensory, communication and profound and multiple impairments would benefit from the support of an independent advocate.. There is inadequate independent advocacy provision, especially for people with physical, sensory, communication and profound and multiple impairments. The main causes of lack of independent advocacy provision are funding issues and a lack of skills and experience around working with these groups of people. The types of independent advocacy undertaken by advocacy schemes may not always meet the needs of these groups of people. Finally, there is very little evidence of advocacy plans at a local level, but overwhelming support for their development among advocacy schemes.
Telling our own stories: reflections on family life in a disabling world
- Editors:
- MURRAY Pippa, PENMAN Jill
- Publisher:
- Parents with Attitude
- Publication year:
- 2000
- Pagination:
- 276p.,bibliog.
- Place of publication:
- Sheffield
Personal accounts of disability, from disabled people and their families, introduced from the perspective of human rights, inclusion, and a social model of disability.
Snoezelen: its effects on concentration and responsiveness in people with profound multiple handicaps
- Authors:
- ASHBY Mark, et al
- Journal article citation:
- British Journal of Occupational Therapy, 58(7), July 1995, pp.303-307.
- Publisher:
- Sage
An initial investigation into the effects of Snoezelen on concentration and responsiveness in people who have profound and multiple handicaps. The results suggest that all the subjects except one, who failed to score, responded in some way with improvements in scores. The improvements in concentration were significant for two subjects, moderate for four and minimal for one.
The significant touch
- Author:
- TISSIER Gerry
- Journal article citation:
- Community Care, 20.5.93, 1993, pp.20-21.
- Publisher:
- Reed Business Information
Visits a new community care project for people with learning difficulties, sensory impairment and physical disability. The project was initiated by the parents forming a local branch of SENSE in Maidstone, Kent; and they approached HI Kent and Kent SSD to show how the project would benefit social services. Describes how the service was sent up and looks at its aims.
CREDO east: evaluation report
- Author:
- BYERS Richard
- Publisher:
- CREDO East
- Publication year:
- 2006
- Pagination:
- 22p., appendices
- Place of publication:
- Rugby
Based in the east of England, CREDO east is a charitable organisation that works with teenagers who have multiple impairments and who require high levels of support to live their lives as they wish. The author was commissioned by CREDO east to evaluate their work in order to inform future planning. The research centred on four young people, all of whom had Circles of Support initiated and facilitated by CREDO east. Most of them also participated in CREDO east’s community activities and events. Data were gathered through interviews with three of the young people, family members, and Circle members, some of whom were also involved professionals. Questionnaires were also sent to professionals to obtain their views more generally on the work of CREDO east and its impact. Responses were overwhelmingly positive. CREDO east was said to have given young people and families a voice, opened up a range of opportunities for young people and their families, and developed community support networks that are powerful, creative and sustainable. Young people and family members valued CREDO east’s independence very highly. Professionals were also very positive about CREDO east and its work although they reported that there were sometimes tensions between the work of CREDO east and budgetary and procedural constraints that they themselves experienced. The author concludes that in the future CREDO east should continue to develop personalised initiatives while also expanding their capacity to engage more significantly with services, professionals and larger numbers of service users.
Yes! she knows she's here
- Author:
- SCHAEFER Nicola
- Publisher:
- Inclusion Press
- Publication year:
- 1997
- Pagination:
- 154p.
- Place of publication:
- Toronto
Through this book readers are treated to the work that Catherine, her friends and family have accomplished in buying an ordinary home and setting up a supportive household. In the late '90's, living in one's own home is still controversial in the world of disability, particularly for an individual who doesn't speak in words and who participates with 24 hour per day support from others. Catherine has now been on this path for more than eleven years. In 1986, days before her 25th birthday, Catherine moved from her parents’ into her own home. It was an exciting, somewhat anxious time, the culmination of two years of planning and hard work on the part of many people. Everyone was eager to help Cath create a home for herself where she would have both the necessary paid, live-in support and the freely given friendship and help of others living in the two upstairs apartments. This book celebrates Cath’s 35th birthday and the 10th anniversary of her move.