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An evaluation of a community living initiative in Ireland
- Authors:
- SHEERIN Fintan, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 19(3), 2015, pp.266-281.
- Publisher:
- Sage
- Place of publication:
- London
One of the central principles underpinning Irish intellectual disability policy is that of decongregation. Allied to this is the belief that life in community settings offers greater opportunities and richer experiences than does life in institutional settings. This study explores the experiences of a group of adults with intellectual disabilities who moved from residential settings to living units in the community. Using a qualitative descriptive approach, it considers the significance of that move for them and seeks to understand the extent to which their lives have changed. Whereas it emerges that this was a positive period in their lives, it is clear that a number of issues remain to be addressed and these provide useful information for similar developments in the future. (Publisher abstract)
Evaluation toolkit for providers: an assessment tool and action plan for organisations to improve the quality of life for people with learning disabilities as they grow older
- Author:
- TOWERS Christine
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2014
- Pagination:
- 34
- Place of publication:
- London
This evaluation toolkit is to help provider organisations to improve the quality of support for people with learning disabilities as they grow older. It aims to enable providers to understand the values, knowledge and skills that need to be in place to support people as they grow older so that their lives are as happy, healthy and fulfilling as possible and draw up and deliver an action plan to improve the support provided to people as they grow older. It uses the 8 outcomes from the Association for Real Change 'Real Change Challenge on Older People'. It provides indicators for each of the eight outcome that providers can use to assess themselves against using a traffic light system (red, amber and green). The toolkit suggests resources to help achieve each outcome. There is also a template for developing an action plan to help organisations implement the necessary changes. (Edited publisher abstract)
Inclusion: progress and promise. Beyond the disability bubble
- Authors:
- GARDNER James F., MATHIS Elizabeth A.
- Journal article citation:
- International Journal of Leadership in Public Services, 5(2 Supplement), July 2009, pp.38-45.
- Publisher:
- Emerald
This paper focuses on people with learning and developmental disabilities. It explores the ideas of inclusion, social networks and social capital; discusses the feasibility of using person-centred quality of life measures to examine inclusion and social networks; and presents strategies for increasing inclusion and social capital beyond the disability bubble and other important strategies for making inclusion a reality. Finally, four complementary strategies for collaboration for inclusion are highlighted: asset-based community development, organisation development, person-directed services and public policy.
Named Social Worker: programme evaluation - final report
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, INNOVATION UNIT
- Publishers:
- Social Care Institute for Excellence, Innovation Unit
- Publication year:
- 2018
- Pagination:
- 71
- Place of publication:
- London
Final evaluation of the Named Social Worker pilot, which looked at how having a named social work can contribute to people with learning disabilities, autism or mental health needs achieving better outcomes. Specifically it looked at how they and their family can be in control of decisions about their own future, and are supported to live with dignity and independence. This report presents learning from the second phase of the pilot, which ran from October 2017 to March 2018 and involved the six sites of Bradford, Halton, Hertfordshire, Liverpool, Sheffield and Shropshire. Three sites focused on transition cases while the other three worked with individuals who were from learning disability or Transforming Care cohorts. The report provides profiles of each of the pilot sites, defines the NSW approach and its impact. Each site tailored their own approach to reflect local needs, but the objectives for all the sites was to provide excellent person-centred support, equip social workers to be enablers of person-centred and asset-based care; build more effective and integrated systems that bring together health, care and community support and deliver efficiency savings. Key findings show that despite the short implementation period, sites were highly positive about their experience of the Named Social Work pilot. The evaluation evidence suggests that the NSW pilot had significant impact at three levels of impact: improving outcomes and experiences for individuals with learning disabilities, autism and mental health conditions and the people around them; changing social work practice, by enabling NSWs to develop their knowledge and skills and develop ‘good social work’ practice; and enabled pilot sites to trial new ideas for working and explore and tackle wider systemic conditions. The report makes recommendations for government, training and professional bodies; and recommendations for other sites looking to embed an NSW approach. (Edited publisher abstract)
Named Social Worker: ten steps to creating your own cost benefit analysis
- Authors:
- RODGER John, STEWART Brian
- Publisher:
- York Consulting
- Publication year:
- 2018
- Pagination:
- 22
- Place of publication:
- Leeds
This guide developed by York Consulting to help Named Social Worker (NSW) teams to conduct their own economic assessment using a predictive cost benefit analysis (CBA) methodology. CBA aims to quantify in monetary terms as many of the costs and benefits. Both hard outcomes - such as savings on care home places, GP visits and police callout; and soft benefits - such as confidence, wellbeing, satisfaction, independence, aspiration of an intervention as feasible. The approach presented recognises that NSW teams had limited opportunities, given the short time scales, to collect much client outcome information. The initial focus is therefore on constructing a model of impact based on a range of assumptions. This provides an illustrative projection which can be checked with actual outcomes data at a later date. While the methodology presented is not definitive, it should provide NSW teams, and others piloting a similar approach, with sufficient information to get started and specify their own cost benefit models. (Edited publisher abstract)
Evaluating service users’ experiences using Talking Mats®
- Authors:
- STEWART Kitty, BRADSHAW Jill, BEADLE-BROWN Julie
- Journal article citation:
- Tizard Learning Disability Review, 23(2), 2018, pp.78-86.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to establish the effectiveness of Talking Mats® (TM) in evaluating service users’ experiences, and explore their views of the implementation of person-centred active support (PCAS). Design/methodology/approach: This is a mixed-methods study, employing qualitative interviewing and observational measures. Findings: Both qualitative and quantitative measures indicated inconsistent implementation of PCAS. It was possible to effectively gain participants’ views on positive and negative aspects of quality of support and quality of life, using TM, across three themes, My life, My support and Self-determination. Research limitations/implications: Generalisability of the research may be limited due to the sample, and the potential for researcher and interviewer bias is acknowledged. Practical implications: TM provides a mechanism that may facilitate the inclusion of the views and experiences of people with intellectual and developmental disability (PWIDD) who have limited verbal skills. Their views need to be reflected in adaptions made to PCAS. Originality/value: This study included a population who are often left out of qualitative research because of the methodologies adopted. It also included older PWIDD, where there has been less research about the effectiveness of TM. (Edited publisher abstract)
Improving the quality of life for people with learning disabilities as they grow older: a challenge for providers
- Author:
- WARD Cally
- Publisher:
- Association for Real Change
- Publication year:
- 2013
- Pagination:
- 24
- Place of publication:
- Chesterfield
This document is uses eight outcomes statements to identify what learning disability providers must do to meet the Real Change Challenge of improving the quality of life for people who have a learning disability as they grow older. It provides advice and sets out practical steps on how to ensure that people with learning difficulties continue to have lives that are healthy, happy and fulfilled. The eight outcomes aim to ensure that people are supported, involved, have good health, feel safe, are able to take part in activities, are in contact with people in their social networks, are supported when people close to them die, and that they can come to terms with their own end of life. Bullet points provide advice on how to deliver outcomes and implications for staff development. (Original abstract)
Using goal analysis to drive improvements in performance and outcomes
- Authors:
- LAWLOR David, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 17(4), 2013, pp.301-313.
- Publisher:
- Sage
- Place of publication:
- London
Economic pressures for public health and human services systems to control budgets are increasing the need for demonstrating value of support services provided to persons with intellectual disabilities. The authors build on their earlier work that presented a method for assessing goal attainment to expand the study of goal characteristics as a means to gain an improved understanding of individual outcomes and service performance. The study results suggest a positive relationship between targeting intentional skill teaching in person-centered planning and service delivery and increasing the ability of individuals to live more independently in communities with decreased levels of paid staff support. Additional areas meriting further exploration are presented and implications for current system trends are discussed. (Edited publisher abstract)
Payment by Results in intellectual disability services – a vehicle for personalising healthcare
- Authors:
- ROY Ashok, BHAUMIK Sabyasachi
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 6(2), 2012, pp.89-98.
- Publisher:
- Emerald
Payment by Results (PbR) aims to provide a transparent rule-based system to pay providers for interventions based on health need. An outcome focussed version of PbR will be implemented nationally from 2012 in an incremental manner in mental health services for adults and older people. Though intellectual disability services are currently excluded, this article proposes that the needs led principles underlying PbR would improve the quality and efficiency of specialist intellectual disability services. The aim of this paper is to review the components of the PbR process and to examine possible benefits for intellectual disability health services. Health needs are scoped, and care pathways are defined as primarily consisting of ‘needs’, ‘interventions’ and ‘outcomes’. The mandated cluster groups to be used for PbR in adult mental health and older people's services are extended to cover the non-overlapping needs of people with intellectual disability to provide an integrated framework of health needs usually met by specialist services. A framework of interventions is suggested and components of ‘assessment’ and ‘therapeutic’ activities are outlined. An outcome framework is described. A case example illustrates the application of these components to design a care pathway to provide a personalised, needs-led service.
An evaluation of the implementation of hand held health records with adults with learning disabilities: a cluster randomized controlled trial
- Authors:
- TURK Vicky, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 23(2), March 2010, pp.100-111.
- Publisher:
- Wiley
Adults with learning disabilities (AWLD) have high health needs, yet have little involvement with their health care. This research assessed the impact of implementing a hand held health record, called the Personal Health profile (PHP), on GP consultations and on the health knowledge of AWLD and/or their carers. Forty GP practices were randomised to the PHP implementation, including a control group. Two hundred and one AWLD were interviewed at baseline and 163 followed up after 12 months intervention. Findings showed that annual consultation rates in the intervention and control groups at baseline were low (2.3 and 2.6 visits respectively), with a slightly greater increase occurring over the year in the intervention group averaging 0.6 visits per year compared with the control group. AWLD in PHP group reported more health problems at follow-up. AWLD liked their PHP (92%) but only 63% AWLD and 55% carers reported PHP usage. In conclusion, the authors found no significant outcomes were achieved by the intervention.