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The first use of dementia care mapping in the care for older people with intellectual disability: a process analysis according to the RE-AIM framework
- Authors:
- SHAAP Feija D., et al
- Journal article citation:
- Aging and Mental Health, 22(7), 2018, pp.912-919.
- Publisher:
- Taylor and Francis
Introduction: The ageing of the population with intellectual disability (ID), with associated conseqences as dementia, creates a need for evidence-based methods to support staff. Dementia Care Mapping (DCM) is perceived to be valuable in dementia care and promising in ID-care. The aim of this study was to evaluate the process of the first use of DCM in ID-care. Methods: DCM was used among older people with ID and care-staff in 12 group homes of six organisations. The researchers obtained data on the first use of DCM in ID-care via focus-group discussions and face-to-face interviews with: care-staff (N = 24), managers (N = 10), behavioural specialists (N = 7), DCM-ID mappers (N = 12), and DCM-trainers (N = 2). The research used the RE-AIM framework for a thematic process-analysis. Results: All available staff (94%) participated in DCM (reach). Regarding its efficacy, staff considered DCM valuable; it provided them new knowledge and skills. Participants intended to adopt DCM, by continuing and expanding its use in their organisations. DCM was implemented as intended, and strictly monitored and supported by DCM-trainers. As for maintenance, DCM was further tailored to ID-care and a version for individual ID-care settings was developed, both as standards for international use. To sustain the use of DCM in ID-care, a multidisciplinary, interorganisational learning network was established. Conclusion: DCM tailored to ID-care proved to be an appropriate and valuable method to support staff in their work with ageing clients, and it allows for further implementation. This is a first step to obtain an evidence-based method in ID-care for older clients. (Edited publisher abstract)
Person-centered planning: evidence-based practice, challenges, and potential for the 21st Century
- Authors:
- TAYLOR James E., TAYLOR Jessica Averitt
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 12(3), 2013, pp.213-235.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Person-centered planning emerged in the 1990s as an innovative practice to assist persons with intellectual and developmental disabilities. The foundational purpose of person-centered planning is to assist the individual in developing service planning that reflects the needs and desires of the focal person with the disability. Despite its popularity with disability practitioners, advocates, and policy stakeholders, debate emerged at the beginning of the 21st century as to the viability of person-centered planning as an evidence-based practice. This article examines the historical development and evidence base, as well as the current challenges and potential of person-centered planning for adults with intellectual disabilities. (Publisher abstract)
Person centred practice for professionals
- Editors:
- THOMPSON Jeanette, KILBANE Jackie, SANDERSON Helen, (eds.)
- Publisher:
- Open University Press
- Publication year:
- 2008
- Pagination:
- 316p.
- Place of publication:
- Maidenhead
This text offers a range of practical, person centred and evidence based approaches to tackling challenges faced by professionals working with people with learning disabilities. It helps the reader to analyze issues relating to person centred practice and citizenship and considers the implications of this key government initiative for health and social care professionals. The authors aim to support professionals in working through this changing agenda, whilst identifying the interface between their own professional practice and person centred approaches to working with people who have a learning disability. In addition, the book also: explores the historical context of learning disability services and how this has contributed to the development of person centred services; introduces a range of practical person centred thinking tools that can be readily used within professional practice; contains a model to inform the delivery and integration of person centred practice within professional practice; considers the contribution of a range of different professional roles to the person centred and self directed support approach; and finally evaluates the relevance of person centred thinking and planning to people from different cultural backgrounds and those undergoing the transition from adolescence to adulthood.
Shaping the future together: a strategic planning tool for services supporting people with learning disabilities
- Authors:
- COLE Angela, LLOYD Ann
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 137p., CD ROM
- Place of publication:
- London
The Department of Health grant provided funding to look at how to aggregate the hopes, needs, and wishes of people involved in Person Centred Planning and how to use this evidence to improve services. A process and database have been developed to receive information from Person Centred Planning plans. This pack provides information and engages managers and commissioners in implementing improvements in individual and collective service delivery. It helps to build a blue print for the future shape of service by collating an evidence base. The evidence base consists of detailed information about people’s needs and aspirations that have been collected from person centred plans.
How best to support individuals with IDD as they become frail: development of a consensus statement
- Authors:
- OUELLETTE‐KUNTZ Helene, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(1), 2019, pp.35-42.
- Publisher:
- Wiley
Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey. Results: There is agreement that person‐centered planning and aging in place should be guiding principles. Frailty must be considered earlier than in the general population with the recognition that improvement and maintenance are viable goals. Intersectoral collaboration is needed to coordinate assessments and actions. Safety and planning for the future are important planning considerations, as are the needs of caregivers. Ongoing research is needed. Conclusion: The statement offers guidance to respond to frailty among adults with IDD and fosters ongoing exchange internationally on best practice. As new evidence emerges, the statement should be revisited and revised. (Edited publisher abstract)
Critical components in implementing evidence‐based practice: a multiple case study of individual placement and support for people with psychiatric disabilities
- Authors:
- BERGMARK Magnus, BEJERHOLM Ulrika, MARKSTROM Urban
- Journal article citation:
- Social Policy and Administration, 52(3), 2018, pp.790-808.
- Publisher:
- Wiley
When developing Community Mental Health Services to support people with psychiatric disabilities, European countries are advocating evidence‐based practice (EBP). Individual Placement and Support (IPS) is an evidence‐based model designed to support people in acquiring and maintaining competitive employment. Implementation science is a growing research field, with a focus on components that impact the process of implementing EBP programmes. In this multiple case study, three IPS demonstration sites are followed for two years, in order to describe and analyze barriers and facilitators for implementation, according to constructs described in the Consolidated Framework for Implementation Research(Damschroder et al. 2009). The results highlight the importance of strategic networking, as well as the need for planning and preparations carried out before the start of an EBP programme, since deficiencies related to these constructs are difficult to compensate for. (Edited publisher abstract)