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Parents of adults with intellectual disabilities: quality of life and experiences of caring
- Authors:
- WALDEN Sarah, PISTRANG Nancy, JOYCE Theresa
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 13(2), 2000, pp.62-76.
- Publisher:
- Wiley
This study examined a UK sample of parents caring for their adults offspring with intellectual disabilities, and the factors contributing to their quality of life and experiences of caregiving. Structured interviews were conducted with 62 parents of adults with intellectual disabilities. On several indices of quality of life, parents did not seem to be functioning as well as caregiving parents in the USA, or as well as adults in the general American population. The offspring's level of challenging behaviour and physical dependency and the parent's satisfaction with informal support were associated with parental quality of life. The salience that parents placed on their post-parental life style was also associated with quality of life, with 'captive' parents facing more poorly than 'captivated' parents.
Parents' perceptions of portage: towards a standard measure of parent satisfaction
- Authors:
- CLARE Linda, PISTRANG Nancy
- Journal article citation:
- British Journal of Learning Disabilities, 23(3), 1995, pp.110-117.
- Publisher:
- Wiley
Describes the development of a measure of client satisfaction with Portage services, the Huntingdon Portage Client Feedback Questionnaire, and presents data from a survey of past and present recipients of one local Portage service. It is suggested that this measure could be adopted by Portage services and used as an ongoing means of self-evaluation.