Search results for ‘Subject term:"learning disabilities"’ Sort:
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Caregiver experiences of supporting adults with intellectual disabilities in pain
- Authors:
- FINDLAY Laura, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 28(2), 2015, pp.111-120.
- Publisher:
- Wiley
Methods: Information was collected from 11 caregivers using semi-structured interviews about their experiences of caring for adults with intellectual disabilities who were suspected or definitely in pain. Transcripts were analysed using Interpretative Phenomenological Analysis. Results: Six superordinate themes were identified from participants' experiences: suffering in silence; searching for meaning to explain the complaint; knowledge and skills needed to recognize and manage pain; perceptions of the pain experience; acting to try and reduce pain; and the emotional impact of pain. Conclusions: There seems an art to detect pain using existing skills and knowledge of the individual's ways of expressing pain. Despite best efforts, recognising and treating pain was experienced as complex and ambiguous. Some caregivers described a negative emotional impact and dissatisfaction with the management of pain by health care services. (Edited publisher abstract)
If only they could understand: day centre workers and the parents of adults with learning difficulties
- Author:
- ROBERTS Hilary
- Publisher:
- University of Warwick. Department of Applied Social Studies/Social Care Associat
- Publication year:
- 1990
- Pagination:
- 73p.,bibliog.
- Place of publication:
- Coventry
Results of a study examining the conflict between the staff of day care establishments for adults with severe learning difficulties and the parents of this group of service users.
Therapeutic intervention for children with learning disabilities affected by sexual abuse
- Authors:
- JESSIMAN Tricia, CARPENTER John, UNIVERSITY OF BRISTOL. School for Policy Studies
- Publisher:
- NSPCC
- Publication year:
- 2018
- Pagination:
- 62
- Place of publication:
- London
This report provides an evaluation of 'Letting the Future In' for children with learning disabilities (LTFI-LD), a therapeutic intervention developed by the NSPCC to support children and young people with learning disabilities who have been sexually abused. It also summarises the findings of a scoping review of the literature on the effects of sexual abuse on children with learning disabilities and the effectiveness of existing therapeutic approaches. LTFI-LD, is based on a service which supports children who have experienced sexual abuse, but places a greater emphasis on creative therapies, such as artwork, drama, sandplay and therapeutic play to help children express their feelings. The evaluation used interviews and feedback questionnaires to explore the views of NSPCC practitioners; children and young people; and ‘safe’ parents and carers. The results of interviews with carers (and one child), NSPCC practitioners, and quantitative feedback received from 13 cases, found that all stakeholders felt that LTFI-LD benefits both children with learning difficulties and their carers. Positive impacts reported by carers and practitioners included that children had improved mood, increased confidence, and that there was a reduction in the frequency and type of challenging behaviours. There was less agreement over whether the intervention had been successful in supporting children with learning difficulties to avoid further abuse. (Edited publisher abstract)
The experiences of children with learning disabilities, their carers and staff during a hospital admission
- Authors:
- JACKSON BROWN Freddy, GUVENIR Jane
- Journal article citation:
- British Journal of Learning Disabilities, 37(2), June 2009, pp.110-115.
- Publisher:
- Wiley
Government policy is that people with learning disabilities should have their healthcare needs met by mainstream services. This study interviewed the carers of 13 children with learning disabilities admitted to hospital for a period longer than 24 hours. Nursing staff and two children were also interviewed. Five themes were identified as having a significant impact: (i) child, carer and staff anxiety, (ii) preparedness for the admission, (iii) difficulties managing the child's behaviour, (iv) carer presence during the admission and (v) ward environment. This study presents edited responses from children, their carers and ward staff and identifies areas for service improvement. These include an emphasis on the value of emotional support, ensuring staff are prepared for hospital admission, agreeing strategies for supporting the child's behaviour, clarifying carers and staff roles during an admission, ensuring the child has an individual room if required. Study limitations are discussed and directions for future research recommended.
Parental involvement in the residential care of persons with intellectual disability: the impact of parents' and residents' characteristics and the process of relocation
- Authors:
- SCHWARTZ Chaya, TSUMI Ayelet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(4), December 2003, pp.285-293.
- Publisher:
- Wiley
This study addresses three goals: (i) to describe the extent of parental involvement in residential care (post-placement); (ii) to describe the extent of parental involvement in the relocation process (pre-placement); and (iii) to examine the impact of residents' characteristics, parents' characteristics and pre-placement parental involvement on post-placement parental involvement. Ninety-seven parents of residents living in residential care facilities for people with intellectual disability completed the Parental Involvement in Residential Care Questionnaire that was constructed for this study. Post-placement involvement was expressed by parents' high level of visiting to the residence, close direct contact with the resident and the staff, and low level of participation in decision making concerning their son/daughter and the operation of the residence. Most parents were not actively involved in the relocation process, did not participate in selecting the current residence and did not visit the residence prior to the move. However, the majority participated in a preparation programme for parents whose son/daughter were candidates for out-of-home placement. Participants whose sons/daughters lived in the residence for fewer years or whose son's/daughter's level of intellectual disability was less severe reported a higher level of post-placement involvement. These parents had fewer children at home and had participated in a longer preparation pre-relocation programme.
Advocacy services for the residents of the Behavioural Unit in Strathmartine Hospital, Dundee: a feasibility study
- Author:
- LAMBE Loretto
- Publisher:
- ENABLE
- Publication year:
- 1992
- Pagination:
- 42p.,list of orgs.,bibliog.
- Place of publication:
- Glasgow
Examines the feasibility and desirability of developing an advocacy scheme for people with challenging behaviour in a Behavioural Unit in Strathmartine Hospital, Dundee. Looks at models of advocacy; the views of staff, residents and relatives; and the perceived need for an advocacy service. Also presents a detailed strategy and costing for introducing an advocacy scheme.
Mentally handicapped people coping with relationships: proceedings of the twenty-first Spring Congress on Mental Retardation, University of Exeter, 15-17 April 1988
- Editor:
- WYNN-JONES A.
- Publisher:
- MENCAP. South West Region
- Publication year:
- 1988
- Pagination:
- 81p.
- Place of publication:
- Taunton
Empowered or discouraged: a study of people with learning disabilities and their experience of engaging in intimate relationships
- Authors:
- WHITE Emily, BARNITT Rosemary
- Journal article citation:
- British Journal of Occupational Therapy, 63(6), June 2000, pp.270-276.
- Publisher:
- Sage
Vulnerable people constitute the majority of referrals to occupational therapy services, due to age and social, psychological and economic circumstances. A collaborative study was carried out on eight adults with learning disabilities who lived in a community residential home. Interviews were completed which dealt with aspects of intimate relationships. The findings showed that the people interviewed had a generally positive experience of such relationships. However, while the attitudes of staff and family towards intimate relationships were mostly empowering, some negative views still existed. The results have implications for occupational therapists working with people with learning disabilities.
Taking a break: Liverpool's respite services for adult citizens with learning disabilities
- Authors:
- FLYNN Margaret, et al
- Publisher:
- National Development Team
- Publication year:
- 1994
- Pagination:
- 59p.,tables,bibliog.
- Place of publication:
- Manchester
Review of respite services provided by Liverpool SSD for children, young people and adults with learning difficulties. Based on interviews with users, carers, service providers and staff.
Expanding systems of service delivery for persons with developmental disabilities
- Editor:
- POWERS Michael D.
- Publisher:
- Paul H. Brookes
- Publication year:
- 1988
- Pagination:
- 354p., tables, bibliogs.
- Place of publication:
- Baltimore, MD
An American text which examines current service delivery systems and the roles and relationships of key service areas: family, community, education, medical care and central government's role and legislation.