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The changing face of the ‘good mother’: trends in research into families with a child with intellectual disability, and some concerns
- Author:
- KNIGHT Kathryn
- Journal article citation:
- Disability and Society, 28(5), 2013, pp.660-673.
- Publisher:
- Taylor and Francis
This article reviews changing perspectives in recent social science research into families of children with intellectual disability. These latest trends emphasise family resilience, adaptation, and transformation, with the focus predominantly on mothers and their ability to psychologically adjust to their caring challenges. A concern is that by concentrating on the adaptive strategies of mothers, researchers risk minimising the socio-political dimensions of this experience. The theme of the ‘good mother’ figures strongly in this research, linked to the limiting socio-cultural narratives available to mothers of children with intellectual disability that, it is argued, may condone their continuing marginalisation. (Publisher abstract)
Parents with learning disabilities
- Authors:
- STEWART Ailsa, MCINTYRE Gillian
- Publisher:
- Institute for Research and Innovation in Social Services
- Publication year:
- 2017
- Pagination:
- 16
- Place of publication:
- Glasgow
This Insight brings together the key research findings on supporting parents with learning disabilities to help practitioners in considering approaches for working with this group of parents. It highlights the importance of early identification and of assessing levels parenting capacity of parents with learning disabilities. It also identifies different models of support, including: early intervention, pre-birth support, supported parenting programmes, provision of accessible information for parents with learning disabilities, and access to advocacy support. It highlights examples of good practice throughout. It concludes that there is a growing body of evidence to suggest that parents with learning disabilities can become good enough parents when the right support is in place. Although there has been good progress made in providing this support, it highlights the need for more work to ensure there is good access to support, that support is available on a longer-term basis, and that there is flexibility around key transition points in the life of the child and parents. (Edited publisher abstract)
Parental experiences of caring for a child with intellectual disabilities: a UK perspective
- Author:
- WILLINGHAM-STORR Gemma Louise
- Journal article citation:
- Journal of Intellectual Disabilities, 18(2), 2014, pp.146-158.
- Publisher:
- Sage
- Place of publication:
- London
A structured literature search and thematic analysis of six research articles relating to stress and parenting of a child with an intellectual disability in the United Kingdom identified four key themes: impact upon families, service provision and support networks, coping and transition. The findings identified that parenting a child with an intellectual disability is not always a negative role; it is a role that parents find both rewarding and empowering. However, the findings of the literature review primarily related to mothers of children with an intellectual disability with very little focus on the experiences of fathers. (Publisher abstract)
A review of outcome measures in early childhood programs
- Authors:
- MANNAN Hasheem, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 3(4), December 2006, pp.219-228.
- Publisher:
- Wiley
The authors undertook a review of measures available for assessing outcomes of early childhood services for children with disabilities and their families. With principles of family-centered practice mandating the inclusion of both family and child outcome measures in effective evaluation plans, the review examined measures with established psychometric properties for (a) documenting the effectiveness of partnerships with families, and (b) documenting the effectiveness of services and supports for families. Constructs and their associated measures related to partnerships include satisfaction with the overall program and empowerment. The constructs for outcomes of supports and services include social support, parenting, and family quality of life. The authors reviewed measures for each of the five constructs. They note that the selection of appropriate measures to assess the outcomes of family support and services depends on the specific configuration of support services provided by the program and that each program may have to be explicit about the outcomes it wants to impact and therefore measure.
Child aware practice in adult social services: a scoping review
- Authors:
- TILBURY Clare, WALSH Peter
- Journal article citation:
- Australian Social Work, 69(3), 2016, pp.260-272.
- Publisher:
- Taylor and Francis
The development of “child aware” practice is about the capacity and capability of adult health and social service providers to identify and respond to the needs of children. A scoping review of the literature considered five adult adversities associated with family stress and reduced parenting capacity: mental illness, alcohol and substance abuse, homelessness, intellectual disability, and domestic violence. Although there are specific needs for children pertaining to particular adversities, there was substantial commonality of potential effects. These included emotional and psychological difficulties, physical and mental health problems, academic difficulties, language delays, peer difficulties, stigma, trauma reactions, loss and grief, instability, and social exclusion. How children react to difficulties in their family depends upon various protective factors, a child's frame of reference, and other dynamics within the family that can offset risks. The findings aim to inform policy, programme development, and practice in adult social services, enhancing their responsiveness to children. (Publisher abstract)
Equalities scoping study
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 23p., bibliog.
- Place of publication:
- London
The Office of the National Co-Directors for Learning Disability asked the Foundation for People with Learning Disabilities to look at whether the experiences of adults with learning disabilities and their families were getting better in the context of Valuing People Now and its associated Equality Impact Assessment. Databases and other resources were used to identify articles, reports, websites and information focusing on specific topics in relation to people with learning disabilities: ageing and older people; gender; sexual orientation and identity; religion, belief and spirituality; race, culture and ethnicity; and relationships, sex and parenting. For each topic, the report sets out evidence of action or change since January 2009, emerging issues, and examples of good practice. The report includes brief discussion of the issues raised.