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Outcomes for disabled service users
- Authors:
- HARRIS Jennifer, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2004
- Pagination:
- 90p.
- Place of publication:
- York
Social service provision to younger disabled people is not often at the forefront of policy debate. However, the Government recognises the distinct contribution that disabled people make to the economy and the waste of potential that ensues when key services do not assist them. Often the type of assistance that younger disabled people require needs to be more flexible, or of a different type, than that offered by social services. For example, people may require assistance with making decisions concerning work, both paid and voluntary, or in parenting. This study explored ways of incorporating these and other types of assistance into assessment processes. In the study these were called ‘outcomes’ and they were incorporated into new assessment documents for use by a multi-disciplinary team of professionals.
Perceived barriers and facilitators to positive therapeutic change for people with intellectual disabilities: client, carer and clinical psychologist perspectives
- Authors:
- RAMSDEN Sarah, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(3), 2016, pp.241-262.
- Publisher:
- Sage
- Place of publication:
- London
Studies have highlighted successful outcomes of psychological therapies for people with intellectual disabilities. However, processes underlying these outcomes are uncertain. Thematic analysis was used to explore the perceptions of three clinical psychologists, six clients and six carers of barriers and facilitators to therapeutic change for people with intellectual disabilities. Six themes were identified relating to: what the client brings as an individual and with regard to their wider system; therapy factors, including the therapeutic relationship and adaptations; psychologists acting as a ‘mental health GP’ to coordinate care; systemic dependency; and the concept of the revolving door in intellectual disability services. The influence of barriers and facilitators to change is complex, with facilitators overcoming barriers and yet simultaneously creating more barriers. Given their potential impact on the psychologists’ roles and access to therapy for people with intellectual disabilities, findings suggest these factors should be formulated as part of the therapeutic process. (Publisher abstract)
Service user satisfaction with individual psychotherapy for people with intellectual disabilities
- Authors:
- KHAN Mahbub Munir, BEAIL Nigel
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(5), 2013, pp.277-283.
- Publisher:
- Emerald
Purpose: Psychological therapies are increasingly being made available to adults with intellectual disabilities. However, little is known about service user satisfaction with this type of intervention. The aim was to ascertain quantitative and qualitative data on user satisfaction with the psychological therapy they had received. Design/methodology/approach: In total, 20 recipients of psychological therapy completed the Satisfaction with Therapy and Therapist Scale – Revised (STTS-R; Oei and Shuttleword, 1999) and the Experience of Service Questionnaire (Commission for Health Improvement, 2002). The scales were adapted for language and administered in an assisted completion format by an independent researcher after a course of psychological therapy had been completed. Descriptive statistics were used to analyse the quantitative data and thematic analysis was used to analyse the qualitative data. Findings: Generally, recipients were highly satisfied with their therapist and the therapy they received. Originality/value: The results confirm previous findings from two small-scale qualitative studies. Service user satisfaction is a key quality outcome measure and can be collated in routine practice for people with intellectual disabilities. The collation of qualitative responses in addition to quantitative measures is important to enable the expression of dissatisfaction and greater detail in order to inform service improvement. (Publisher abstract)
Care standards in homes for people with intellectual disabilities
- Authors:
- BEADLE-BROWN Julie, HUTCHINSON Aislinn, MANSELL Jim
- Publisher:
- Tizard Centre
- Publication year:
- 2005
- Pagination:
- 13p.
- Place of publication:
- Canterbury
National minimum standards for residential care homes were introduced following the Care Standards Act 2000 in response to concern about lack of consistency and poor quality services. These standards are intended to reflect outcomes for service users and to be comprehensive in scope. This study compared ratings made by care standards inspectors with research measures for 52 homes for people with intellectual disabilities serving 299 people. The research measures focused on the lived experience of residential care, including engagement in meaningful activity, choice and participation in activities of daily living. They also included measures of related care practices and organisational arrangements. The research measures were in general significantly correlated with each other. Most of the care standards ratings were also correlated with each other.
Planning and action
- Authors:
- EMERSON Eric, STANCLIFFE Roger J.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 17(1), March 2004, pp.23-26.
- Publisher:
- Wiley
Raises a a number of concerns about the possible impact of the systematic introduction of person-centred planning (PCP) across services for people with intellectual disabilities in the UK. The authors foresee a danger that system-wide adoption of PCP will be characterised over zealous 'selling' of the purported benefits without sufficient attention to the difficulties and without the necessary changes to system architecture to ensure that those involved in PCP have the authority or resources to achieve the plan's goals. If so, PCP will become another fad, and service users, and their families will become even more discouraged, disheartened and alienated by a system characterised by rhetoric rather than meaningful action. Where the authors differ, is in the interpretation of the existing evidence regarding the impact of individual planning systems in general and, perhaps, in the way forward.
Individual programme planning: where is the 'individual'?
- Author:
- CARNABY Steven
- Journal article citation:
- Tizard Learning Disability Review, 4(3), July 1999, pp.4-9.
- Publisher:
- Emerald
Individual programme planning, or person-centred planning, is widely recognised as a tool for assisting learning disability services to structure and co-ordinate the support offered to the service. This article reviews the research evidence, to assess the extent to which planning processes are considered person-centred, and how services ensure that users have a major say in planning and determining the help they receive. A case study describes the role of working groups and the importance of communication in determining specific person-centred planning processes.
Speaking up for yourself: description and evaluation of an assertiveness training group for people with learning disabilities
- Authors:
- WESTON Clive, WENT Fleur
- Journal article citation:
- British Journal of Learning Disabilities, 27(3), 1999, pp.110-115.
- Publisher:
- Wiley
Current service philosophies place emphasis on service users making choices for themselves. Partly in response to this, practitioners have attempted to help service users develop skills of assertiveness. This paper describes an assertiveness training group for people with learning disabilities, and includes a range of outcome measures at intervals of up to 16 months from the first session. Modest increases in assertive behaviour are reported for the majority of participants. The importance of seeing assertiveness training in the wider context of service user empowerment is emphasised.
Working with families : developing a partnership between parents and professionals in the mental handicap services
- Authors:
- CHARNOCK Sybil, et al
- Journal article citation:
- Mental Handicap, 19(1), March 1991, pp.11-13.
- Publisher:
- British Institute of Mental Handicap
Describes the planning, aims, content, and outcome of ten workshop sessions run by parents of young adults with severe mental handicaps for a group of professional staff from health and social services departments. Concludes that the sessions went some way towards breaking down the barriers between parents and professionals but that there is still a long way to go.
Exploring maintaining gains following therapy during the coronavirus pandemic with adults with an intellectual disability
- Authors:
- PURRINGTON Jack, NYE Arthur, BEAIL Nigel
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 15(6), 2021, pp.253-268.
- Publisher:
- Emerald
Purpose: The novel coronavirus and associated mitigation efforts have caused significant increases in stress for adults with intellectual disabilities. Such increases in life stress predict an increased risk of relapse following psychological therapy. This contributes to the high global disease burden of common mental health difficulties. Therefore, this paper aims to explore service user experiences of maintaining gains following therapy within the context of the Covid-19 pandemic. Design/methodology/approach: A mixed-methods evaluation was completed in a psychology service based in the North of England which specialises in supporting adults with intellectual disabilities. Descriptive statistics and effect size calculations were used to examine therapeutic outcomes pre-therapy, post-therapy, and at follow-up. These findings informed a framework analysis of eight semi-structured interviews. Findings: Overall, outcome results improved post-therapy and regressed at follow-up. The framework analysis revealed facilitators to maintenance include a recollection of specific aspects of therapy and the regular utilisation of strategies and resources. Conversely, barriers to maintenance include a recollection focussed on personal outcome, a reliance on social support and an inability to remember therapy. Originality/value: This is the only study to the authors’ knowledge examining service user experiences of maintaining gains following therapy within the context of Covid-19. It is hoped that these findings will inform further research and be useful for services in preparing service users for discharge as the Covid-19 pandemic continues and moves towards the post-pandemic phase. (Edited publisher abstract)
Quality of life Is to experience adult social status
- Authors:
- CARLSSON Oie Umb, ADOLFSSON Päivi
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 15(4), 2018, pp.272-283.
- Publisher:
- Wiley
Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well‐being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users´ perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organised, rather the interrelation between them is emphasized. (Edited publisher abstract)