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Deinstitutionalization and community living: outcomes and costs: report of a European study: volume 3: country reports
- Editors:
- BEADLE-BROWN Julie, KOZMA Agnes, (eds.)
- Publisher:
- University of Kent. Tizard Centre
- Publication year:
- 2007
- Pagination:
- 599p.
- Place of publication:
- Canterbury
These country reports form the third volume of the final report from the European Union Project Deinstitutionalisation and community living – outcomes and costs: report of a European Study. There are 28 country reports included. The aim of each report is three-fold: to summarise the data collated for the template for each of the service types identified for that country; to comment on the completeness and adequacy of the data collated; to provide a commentary on the context and current situation for people with disabilities in each country. In order to analyse, summarise and compare data across countries, information received on each template was recorded into categories. It is these categories which are included in the data summaries at the beginning of each of the country reports.
Deinstitutionalization and community living: outcomes and costs: report of a European study: volume 1: executive summary
- Authors:
- MANSELL Jim, et al
- Publisher:
- University of Kent. Tizard Centre
- Publication year:
- 2007
- Pagination:
- 14p.
- Place of publication:
- Canterbury
This project aimed to bring together the available information on the number of disabled people living in residential institutions in 28 European countries, and to identify successful strategies for replacing institutions with community-based services, paying particular attention to economic issues in the transition. The goal was seen as the provision of a flexible range of help and resources which can be assembled and adjusted as needed to enable all people with disabilities to live their lives in the way that they want but with the support and protection that they need. This is characterised by several features: separation of buildings and support; access to the same options as everyone else; choice and control for the disabled person and their representatives. Recommendations included: The European Commission should promote joint work between Member States and Eurostat to define a minimum data set for residential services for people with disabilities. The data set needs to be workable both for countries which still have services largely based in institutions, where the distinction between institutional care and care at home is very clear, and for countries which are in the advanced stages of replacing institutions with community-based services and independent living.
Deinstitutionalization and community living: outcomes and costs: report of a European study: volume 2: main report
- Authors:
- MANSELL Jim, et al
- Publisher:
- University of Kent. Tizard Centre
- Publication year:
- 2007
- Pagination:
- 134p.
- Place of publication:
- Canterbury
This detailed project aimed to bring together the available information on the number of disabled people living in residential institutions in 28 European countries, and to identify successful strategies for replacing institutions with community-based services, paying particular attention to economic issues in the transition. The overall aim of the project was to provide scientific evidence to inform and stimulate policy development in the reallocation of financial resources to best meet the needs of people with disabilities, through a transition from large institutions to a system of community-based services and independent living. The reports includes: the identification and collation of existing national data sources; description of the sequence and process of service development; comparison of the costs of community-based vs. institutional services; identification of transitional costs; and the analysis of political and economic strategies used to manage costs. Major recommendations included the harmonised data set at a European level, the publication of statistics demonstrating progress in each country, and the cost- effectiveness of community versus institutional models of residential care and change over time.
Personalisation for people and organisations delivering direct support
- Author:
- PITTS Jenny
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2009
- Pagination:
- 20p.
- Place of publication:
- Kidderminster
Personalisation is a different way of delivering care which means that the whole social care system becomes person centred. This will enable people with a learning disability to exercise more choice and control in their lives. This guide describes how services and organisations will need to change in response to personalisation.
Pie in the sky? Not at all
- Author:
- BROACH Steve
- Journal article citation:
- Community Care, 8.2.07, 2007, pp.32-33.
- Publisher:
- Reed Business Information
Despite Every Child Matters, outcomes for disabled children and their families are still very poor. The Every Disabled Child Matters campaign believes that services for disabled children need more funding, coupled with prioritisation within the performance management frameworks for local government and health agencies. The 2007 comprehensive spending review is the ideal time to address the inequalities in outcomes for disabled children and their families.
Regional development for inclusion: community development and learning disabled people in the north west of England
- Author:
- KAGAN Carolyn
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 23p., bibliog.
- Place of publication:
- Manchester
Outcomes of a project of research into the active inclusion of learning disabled people in community development plans in the north west of England.
Transitional outcomes, employment and human rights: ESSS Outline
- Author:
- BOCIOAGA Andreea
- Publisher:
- IRISS
- Publication year:
- 2021
- Pagination:
- 27
- Place of publication:
- Glasgow
This evidence summary explores the evidence on how employment outcomes for young people with additional support needs can be considered from a human rights perspective. The summary refers to young people with additional support needs which include: disability or health; learning environment; family circumstances; social and emotional factors. Young people can experience a succession of transitions in a short time span, such as further education and training, employment, and other options that lead to independence. The transition process is generally experienced as stressful, uncertain, and problematic, particularly in terms of the bureaucratic aspects. Moreover, studies report that young people with intellectual disabilities experience transitions as usually accompanied by several challenges including difficulty finding employment due to high unemployment levels, restricted community participation, continued living with parents and dependence on the family. Key areas where young people experience difficulties associated with transitions are often identified as: independence; transition planning; daytime activity; community participation. The review focuses specifically on employment and young people with ASN; and approaches which integrate human rights principles into employment transitions. (Edited publisher abstract)
Social care for adults aged 18-64
- Authors:
- IDRISS Omar, ALLEN Lucinda, ALDERWICK Hugh
- Publisher:
- Health Foundation
- Publication year:
- 2020
- Pagination:
- 48
- Place of publication:
- London
An analysis of publicly available data to understand the social care needs of younger adults in England, how they differ from those of older people, and how these needs are changing. The analysis explores: system context - what the social care system for younger adults looks like; care needs - including data on self-reported disability and levels of care needs; system performance - how well the social care system cares for younger adults and their carers; and outcomes - including data on the quality of life for service users and unpaid carers. The document reports that people aged 18–64 with learning disabilities, mental health problems, and other social needs make up around a third of care users accessing long-term support in England and over half of local authority spending on social care. Key findings from the analysis show that: the number of younger adults with care needs is growing but the number of people accessing public support has fallen; quality and outcomes for younger adults accessing social care vary; workforce problems are chronic across the social care system, with learning disability nursing courses struggling to attract students. Unpaid carers of younger adults also experience worse outcomes in some areas than carers of older people, for example they are more less likely to be satisfied with services and more likely to report financial difficulties. The report concludes that policies to reform adult social care will not be successful unless they understand and address the needs of younger adults. The report identifies five implications for policy based on the data in the analysis. (Edited publisher abstract)
Employment supports for adults with disabilities in low- and middle-income countries: a Campbell systematic review
- Authors:
- TRIPNEY Janice, et al
- Journal article citation:
- Research on Social Work Practice, 29(3), 2019, pp.243-255.
- Publisher:
- Sage
Objective: To identify, appraise, and synthesise studies of interventions to improve labour market outcomes of adults in developing countries with physical and/or sensory disabilities. Method: Systematic review methods, following Campbell Collaboration guidelines, were utilised. A comprehensive search was used to identify relevant studies published between 1990 and 2013, which were graded for study quality and a narrative approach used to synthesise the research evidence. Results: Fourteen studies covering a wide range of interventions met the inclusion criteria. Although individual studies reported improvements in outcomes, heterogeneity was high and studies were generally of poor methodological quality. Conclusions: There is a lack of high-quality research evidence to inform decision-making in this area. Stakeholders should be cautious when interpreting the results of the current evidence base. (Edited publisher abstract)
Mental health outcomes among youth in foster care with disabilities
- Authors:
- LEE Junghee, et al
- Journal article citation:
- Children and Youth Services Review, 94, 2018, pp.27-34.
- Publisher:
- Elsevier
Background: The mental health outcomes among youth in foster care with disabilities are under studied. Increasing our understanding of mental health risk and protective factors is essential for improving the mental health and quality of life of this population. This study tests the associations of risk and protective factors on mental health outcome variables of youth in foster care with disabilities. Methods: All Oregon youth in foster care who were ages 16.6–18.5 and attending study school districts were invited to participate in a federally-funded longitudinal RCT evaluation, which sought to assess the effectiveness of self-determination enhancement on outcomes of youth transitioning from foster care to adult life. Only baseline data was used with a final sample of 305. Receipt of special education services was used as the proxy for disability status. The risk factors included trauma exposure, hopelessness, placement type, perceived placement restrictiveness. The protective factors included social support and self-determination. The outcome variables included internalizing and externalizing mental health symptoms, quality of life. Preliminary analyses organized by special education (SPED) involvement vs. study variables were conducted, and stepwise regressions were followed. Results: Findings revealed SPED was associated with being in a restrictive foster placement. Youth involved in SPED reported higher perceived placement restrictiveness and hopelessness, but lower quality of life (QoL). Self-determination was a consistent protective factor. Post-traumatic symptomology was a consistent and strongest risk factor for all outcome variables. Conclusions: Although it is not possible to change previous adverse childhood experiences that result in currently experienced trauma, well-designed self-determination enhancement interventions and the support of caring adults may reduce negative mental health outcomes and improve QoL (Edited publisher abstract)