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Growing older together: ageing and people with learning disabilities and their family carers
- Authors:
- WALKER Carol, WARD Cally
- Journal article citation:
- Tizard Learning Disability Review, 18(3), 2013, pp.112-119.
- Publisher:
- Emerald
This article explores the new challenge posed by the first generations of people with learning disabilities who are now living into older age in significant numbers. Most are living with family carers, who are themselves ageing. This represents a major transition in people's lives and one to which services must respond if a normal life event is not to be turned into a crisis. The article draws on the work of the authors for over a decade in this field. It examines the implications for both the older people themselves and for the ageing family carers with whom the majority live and of current government policy in social care and welfare benefits for this very vulnerable group. Learning disabled people are likely to experience the age discrimination common in much older people provision and practice and the caring relationship is undermined in the short and long term. Evidence on the extension of personalisation indicates that it presents very considerable challenges for this group of families. More information is needed on this growing population. More preventative support is needed to sustain the caring relationship while the family is living together, to support families to plan for the future, and to provide support when the caring relationship breaks down. (Edited publisher abstract)
Preparing for a positive future: meeting the age related needs of older people with learning disabilities
- Author:
- WARD Cally
- Publisher:
- Association for Residential Care
- Publication year:
- 1998
- Pagination:
- 211p.,list of orgs.,bibliog.
- Place of publication:
- Chesterfield
Report from a development project, Positive Futures, looking at people with learning difficulties in the context of an ageing population and at what models of service and best practice should be developed as the needs of people with learning difficulties change as they grow older. Focuses on the challenges and opportunities for commissioners and purchasers, and service providers themselves, emphasising throughout the need to listen to users. Section four contains resources and information.
Improving the quality of life for people with learning disabilities as they grow older: a challenge for providers
- Author:
- WARD Cally
- Publisher:
- Association for Real Change
- Publication year:
- 2013
- Pagination:
- 24
- Place of publication:
- Chesterfield
This document is uses eight outcomes statements to identify what learning disability providers must do to meet the Real Change Challenge of improving the quality of life for people who have a learning disability as they grow older. It provides advice and sets out practical steps on how to ensure that people with learning difficulties continue to have lives that are healthy, happy and fulfilled. The eight outcomes aim to ensure that people are supported, involved, have good health, feel safe, are able to take part in activities, are in contact with people in their social networks, are supported when people close to them die, and that they can come to terms with their own end of life. Bullet points provide advice on how to deliver outcomes and implications for staff development. (Original abstract)
Perspectives on ageing with a learning disability
- Author:
- WARD Cally
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2012
- Pagination:
- 15p.
- Place of publication:
- York
This Perspectives paper explored what people with learning disabilities and their families have to say about getting older, their experiences and feelings, and what is most important to them in later life. It gathered views from a range of people with learning disabilities, who often had high levels of unmet health needs as a result of the inequalities they have experienced in the health system. Contributors talk about: coming to later life with their own unique life experiences and hopes and fears for the future; the work of the Growing Older with a Learning Disability (GOLD) group and older families from the Sharing Caring Project in Sheffield; valuing the opportunity to speak for themselves, having someone spend time with them and listen to what they had to say – this was especially difficult if people have communication difficulties; and the fact that independence has brought new risks - people with learning disabilities are often exposed to bullying and hate crime.