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Dying matters: a workbook on caring for people with learning disabilities who are terminally ill
- Authors:
- BROWN Hilary, BURNS Sophie, FLYNN Margaret
- Publisher:
- Mental Health Foundation
- Publication year:
- 2005
- Pagination:
- 132p.,loose-leaf
- Place of publication:
- London
Dying Matters is a workbook for support staff and managers in learning disability services to help them address the needs of people with learning disabilities who are dying, and to explore their role in providing care and support. It will assist staff and managers to talk together about how to support someone in their service who is dying and/or plan ahead for the time when someone in their service needs care through terminal illness. It will also provide a guide to the roles of healthcare professionals and how best to communicate and work with them in the best interests of the dying person. The workbook is based on a research study funded by the Foundation for People with Learning Disabilities as part of the Growing Older with Learning Disabilities (GOLD) programme. It includes case studies of people who had been terminally ill while living in a range of residential services. People with learning disabilities should have good support and care when they are terminally ill. What does this mean in practice for staff working in residential and group settings? How can hospice staff best address the needs of people with learning disabilities? How can health professionals, home managers and support staff work together? How can they involve family members sensitively? By exploring the themes in this workbook and planning ahead, everyone can play their part in ensuring that there will be a range of high quality care and support consistently available to people with learning disabilities when they are dying.
Bron's legacy - a lesson that must not be ignored
- Authors:
- FLYNN Margaret, et al
- Journal article citation:
- Llais, 77, Summer 2005, pp.3-7.
- Publisher:
- Learning Disability Wales
This article describes Cartrefi Cymru's experience of supporting a tenant with a learning disability in secondary care. It presents a diary of events towards the end of the clients life, and raises concerns about practice at the interface of health and social care in Wales.