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Impediments to community-based care for people ageing with intellectual disability in rural New South Wales
- Authors:
- WARK Stuart, HUSSAIN Rafat, EDWARDS Helen
- Journal article citation:
- Health and Social Care in the Community, 22(6), 2014, pp.623-633.
- Publisher:
- Wiley
The emerging phenomenon of ageing with an intellectual disability has become subject to an increasing research focus in recent years. However, there remains little knowledge regarding the specific impediments that community workers face in supporting this cohort. The aims of the current study were to identify the major factors that, direct care staff believe, have most impact upon individuals ageing with an intellectual disability in the community. A three-round Delphi project was conducted across rural areas of New South Wales in Australia with 31 disability support workers to gain their perspectives on the main impediments facing a person ageing with intellectual disability. The 2010 study identified that the issue of ageing with an intellectual disability was presenting significant problems for community-based service delivery to this group of people. The panel identified 25 different impediments to the provision of support. A thematic analysis of the items indicated three main themes of ‘funding’, ‘training’ and ‘access to services’. By identifying these impediments to supporting people ageing with an intellectual disability in the community, both services and government funding bodies have the ability to plan to overcome both current and future problem areas. This identification of impediments may facilitate individuals to receive more appropriate assistance, which in turn may lead to an improved quality of life and maintenance of a community-based placement rather than premature admission to the congregate-care system. This study is particularly timely, given that Australia is in the midst of implementing a National Disability Insurance Scheme, and is an opportunity for all levels of government to agree on the mechanisms to appropriately assist individuals with an intellectual disability to continue to be supported in the community as they age. (Publisher abstract)
Moving home: social integration for adults with intellectual disabilities resettling into community provision
- Authors:
- AGER A., MYERS F., KERR P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), December 2001, pp.392-400.
- Publisher:
- Wiley
The present study examined levels of social integration for individuals resettling into community provision following the phased closure of Gogarburn Hospital, Edinburgh, UK, and the personal and service-related characteristics which were influential on such integration. The study sample comprised 76 out of 95 individuals consecutively discharged over a 19-month period. Post-move data were collected between 6 and 9 months after community resettlement. At this time, mean 'quality of life' scores, established using the Life Experiences Checklist (LEC), were broadly equivalent to those reported from previous reprovisioning studies in the UK. However, scores in the domains of Relationships and Freedom remained well below general population norms. A pre-move to post-move comparison across the domains of the LEC suggested that the greatest impact of reprovisioning was in the areas of physical quality of residential provision (with overall standards above general population norms) and personal freedoms. Index of Community Involvement (ICI) scores showed a general increase in community presence, although activities requiring a high degree of personal autonomy remained infrequent. Social contacts recorded through diaries suggested a heavy bias towards contacts with staff and other service users as opposed to general community contacts (e.g. neighbours and shop workers). On average, over half the time spent outwith the home was in specialist or segregated service settings. For 18 individuals, there were losses or no gains in community involvement pre-move to post-move. A majority of these individuals were elderly. These findings are discussed in the context of policy targeting community participation, and the need for strengthening service features which encourage higher levels of social integration.
Weighing up anchor
- Author:
- DOBSON Roger
- Journal article citation:
- Community Care, 29.9.94, 1994, p.18.
- Publisher:
- Reed Business Information
Talks to John Belcher, the new chief executive of Anchor Housing about the organisation and its future role.
Edinvar Neighbour Support Housing: an evaluation of supported accommodation for physically disabled people, frail elderly people, and people with learning difficulties
- Authors:
- FOSTER Kate, PORTER Mike
- Publisher:
- Edinvar Neighbour Support Housing/University of Edinburgh. Department of General
- Publication year:
- 1991
- Pagination:
- 45p.,bibliog.
- Place of publication:
- Edinburgh
Current policy and legislation in England regarding older people: what this means for older people with learning disabilities: a discussion paper
- Authors:
- TURNER Sue, UEKI Madeline Cooper
- Journal article citation:
- British Journal of Learning Disabilities, 43(4), 2015, pp.254-260.
- Publisher:
- Wiley
Background: This paper seeks to explore the opportunities and challenges generated by current policy, guidance and legislation in England relating to older people, in terms of the practical implications for older people with learning disabilities. Methods: Using the broad themes housing, employment, social inclusion and isolation, care and support, and promoting better health and well-being, this paper discusses potential practical opportunities and concerns for older people with learning disabilities arising from policy and legislation such as current initiatives regarding integration, personalisation and the dementia policy. Consideration is given to the implications of changing policy and practice for both current and future generations of people with a learning disability as they reach older age. Conclusions: This discussion paper concludes that whilst there is potential for older people with a learning disability to benefit from policy and practice aimed at improving the lives of older people generally, the tendency for policy to be targeted at specific groups without adequately considering the diversity of those groups often leaves those with a learning disability at the margins of being able to make the most of changes. (Publisher abstract)
Relationship between mobility limitations and the places where older adults with intellectual disabilities live
- Authors:
- CLEAVER Shaun, OUELLETTE-KUNTZ Helene, HUNTER Duncan
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 5(4), December 2008, pp.253-258.
- Publisher:
- Wiley
As the population ages, mobility limitations are associated with increased mortality and negative health-related states both in the general population and among people with intellectual disabilities. The influence of mobility limitations upon the lives and lifestyles of people with intellectual disabilities remains poorly understood. Specifically, the extent to which mobility limitations might limit residential options for individuals and families has not been evaluated. To determine the relationship between mobility limitations and place of residence for adults with intellectual disabilities, age 45 and older, a proxy-response telephone survey was completed for 128 adults with intellectual disabilities in Southeastern Ontario. A participant's place of residence was categorized as being "high support" (group homes and nursing homes) or "low support" (living alone, with family, roommates, or host family). People with a score of 12 or less on the Rivermead Mobility Index were considered to have a mobility limitation. The relationship between mobility limitations and high-support residential settings was analyzed using a multivariate logistic regression model. After adjusting for age, sex, and presence of cerebral palsy, communication problems and behaviour problems, people with mobility problems had 3.6 times greater odds of living in high-support settings. Authors concluded that mobility limitations are associated with residence in "high-support" settings and that further investigation is needed to determine the direction of causality and to create programs and services that equalize opportunities.
Beset by obstacles: a review of Australian policy development to support ageing in place for people with intellectual disability
- Author:
- BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 33(1), March 2008, pp.76-86.
- Publisher:
- Taylor and Francis
Australian government policy regards people with intellectual disability (ID) as citizens with equal rights, which means that they should have access to the same opportunities as the wider community. Ageing in place is central to aged care policy in Australia for the general population. This paper reviews policy to support the provision of similar opportunities to age in place for people with ID, and the reasons for its slow development. Due to lifestyle patterns earlier in the life course, many people with ID experience a mid-life disruption to their accommodation, and may live in a group home as they age or may move prematurely to residential aged care. The absence of mechanisms to adjust disability funding as needs change, and the existence of policy that denies residents in group homes access to community-based aged care, forces disability services to “go it alone” to support ageing in place. Despite a national priority to improve the interface between the disability and aged care sectors, administrative and funding characteristics continue to obstruct the development of implementation strategies to support ageing in place for people with ID, which remain at the stage of an exploration of the issues.
People with learning disabilities - an ageing population
- Author:
- BLACKMAN Noelle
- Journal article citation:
- Journal of Adult Protection, 9(3), August 2007, pp.3-8.
- Publisher:
- Emerald
The author discusses the increase in the population of older people with learning disabilities and raises issues that need to be considered for service provision in the future.
Care at a cost
- Author:
- McGARRY Jane
- Journal article citation:
- Roof, March 1999, pp.16-17.
- Publisher:
- Shelter
Housing benefit used to pay for some non-housing care services until a legal ruling in 1997 ruled this out. Assesses the implications of the new government proposal, in 'Supporting People', for all-in-one budgets for vulnerable people's homes and support services.
Assessment of the housing requirements of people with special needs over the next decade
- Authors:
- NATIONAL FEDERATION OF HOUSING ASSOCIATIONS, OFFICE FOR PUBLIC MANAGEMENT
- Publisher:
- National Federation of Housing Associations/Office for Public Management
- Publication year:
- 1993
- Pagination:
- 33p.,tables,diags.,bibliog.
- Place of publication:
- London