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Discussing the menopause with women with learning disabilities
- Authors:
- McCARTHY Michelle, MILLARD Lorraine
- Journal article citation:
- British Journal of Learning Disabilities, 31(1), 2003, pp.9-17.
- Publisher:
- Wiley
Traditionally, little attention has been paid to the menopause as it affects women with learning disabilities. Consequently, older women with learning disabilities have rarely been adequately prepared for, or supported through, what for most women is a significant 'change of life'. None of the existing literature focuses on the women's perspectives, but rather, looks at menopause from a medical angle, in particular focusing on the timing of onset. The research study described in the present paper is an attempt to gain some insights into the ways in which women with learning disabilities perceive the menopause. The main informants were women with learning disabilities themselves, but also general practitioners, staff in learning disability services and parents who still cared for their middle-aged daughters at home. The research project also involved the non-disabled researchers working alongside two groups of women with learning disabilities, who acted as advisors and consultants to the project.
Going through the menopause: perceptions and experiences of women with intellectual disability
- Author:
- McCARTHY Michelle
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.281-295.
- Publisher:
- Taylor and Francis
This article explores the perceptions, experiences and support needs of women with intellectual disability as they go through the menopause. Findings are presented from semi-structured interviews with 15 women with mild to moderate intellectual disability aged 43-65 years. Levels of knowledge about what the menopause was, when it happened, and whether it happened to all women, were found to be generally low. More significantly, the majority of the women did not understand the significance of the menopause on a woman's reproductive capacity. The women's experiences of change and transition were on a predominantly physical level, with some emotional effects, but little or no psychological and social impact noted.
Responses to women with learning disabilities as they go through the menopause
- Author:
- McCARTHY Michelle
- Journal article citation:
- Tizard Learning Disability Review, 7(1), January 2002, pp.4-12.
- Publisher:
- Emerald
The research investigated how women with learning disabilities understand and experience the menopause, and the support available. This paper reports the experiences and attitudes of those people to whom women with learning disabilities might turn for support. GPs generally reported re;actively little experience in treating women with learning disabilities for menopause-related symptoms and some recognised the need for pro-active work. Carers played a key role on facilitating women' s access to primary health care. Staff in residential and day services recognised the role they played in supporting women through the menopause, but were hampered by lack of time and resources. Mothers of middle-aged women with learning disabilities and viewed this transition positively. The need for specialist educational materials was emphasised by all who took in this research.