Search results for ‘Subject term:"learning disabilities"’ Sort:
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End-of-Life decision-making for people with intellectual disability from the perspective of nurses
- Authors:
- WAGEMANS A.M.A., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(4), 2015, pp.294-302.
- Publisher:
- Wiley
The aim of this study was to investigate the involvement of nurses in the process of making end-of-life decisions for people with intellectual disability (ID). This qualitative study involved nine semistructured interviews with nurses working in chronic care, conducted after the deaths of patients with ID in the Netherlands. The interviews were transcribed verbatim and analysed using Grounded Theory procedures. The core characteristic of the position of the nurses and of the way they supported the patient was "Being at the centre of communication." Related categories of topics emerging from the interviews were "Having a complete picture of the patient," "Balancing involvement and distance," "Confidence in one's own opinion," and "Knowledge about one's own responsibility," all of which were focused on the patient. This focus on the patient with ID might explain why the nurses could make valuable contributions to such an important subject as end-of-life decisions. People with ID themselves were not involved in the decisions. The nurses were not always aware who was ultimately responsible for the end-of-life decisions. Nurses are in a unique position to support the process of end-of-life decision-making. It is important to use their knowledge and give them a more prominent position in this decision-making process. It should be clear to all involved who is ultimately responsible for making the end-of-life decisions. (Edited publisher abstract)
Cancer screening for people with learning disabilities and the role of the screening liaison nurse
- Authors:
- MARRIOTT Anna, et al
- Journal article citation:
- Tizard Learning Disability Review, 20(4), 2015, pp.239-246.
- Publisher:
- Emerald
Purpose: This paper describes the role of the screening liaison nurses for adults with learning disabilities employed by Peninsula Community Health. Design/methodology/approach: This paper reports on the national situation in regard to cancer screening for people with learning disabilities and explores the barriers which limit their participation in these screening programmes. It describes the screening liaison nurse role and presents case examples of the work they do. Findings: The local screening rates for people with learning disabilities have increased since the creation of this role in 2011. (Edited publisher abstract)
Learning disability nursing in the criminal justice system: achieving justice for all – understanding need and enabling change for young people in the youth offending team and resolution and understanding for victims
- Authors:
- HEPWORTH Karina Louise, WILLIAMS Helen-Askell
- Journal article citation:
- Journal of Intellectual Disabilities and Offending Behaviour, 6(1), 2015, pp.15-22.
- Publisher:
- Emerald
Purpose: The learning disability nursing role in the multi-professional Youth Offending Team (YOT) enables the recognition, acknowledgement and understanding of the needs of people entering the Criminal Justice System (CJS) and provides a platform to ensure appropriate identification, assessment, planning and delivery of care ensuring successful completion of the Order and subsequent recidivism and reduction in reoffending. The purpose of this paper is to share the experience of working with young people who have committed a crime and are found to have unmet or undiagnosed additional needs. Design/methodology/approach: This paper seeks to consider how learning disability nursing skills compliment the range of expertise in the multi-professional YOT and discusses the case of a young woman and her experience of the CJS from pre-sentence to completion of the Order. Findings: Working together enables effective care delivery to ensure the needs of the person are recognised, understood and acted upon and achieves a balance between welfare for the person and justice and understanding for the victim. Originality/value: This paper’s value is to demonstrate that recognition of need enables the appropriate intervention and delivery of care. Through working together a reduction in young people returning into the CJS as well as building skills and understanding in staff working with young people with additional needs can be achieved. (Publisher abstract)
Job stress, burnout and job satisfaction in staff working with people with intellectual disabilities: community and criminal justice care
- Authors:
- SONDENAA Erik, et al
- Journal article citation:
- Journal of Intellectual Disabilities and Offending Behaviour, 6(1), 2015, pp.42-52.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to examine and compare levels of burnout, traumatic stress and resilience amongst Norwegian nursing care staff in two intellectual disability (ID) services. Design/methodology/approach: This was a cross-sectional survey in which 137 staff completed questionnaires measuring work-related stress, burnout, compassion and resilience. Two groups were compared; staff in the national forensic ID services and staff in the community ID caring services. Findings: Nursing staff in the community ID caring services had significantly more signs of stress and burnout compared to the other group. At the same time they were more compassionate. Originality/value: The different caring cultures examined in this study indicated that the forensic ID staff tended to focus on the physical aspects of the caring role whilst the community ID staff tended to focus on the relational issues. The impact of serious events resulted in a higher level of stress and burnout symptoms, however the community carers showed more compassion to their work. (Publisher abstract)
The role of nurses/social workers in using a multidimensional guideline for diagnosis of anxiety and challenging behaviour in people with intellectual disabilities
- Authors:
- PRUIJSSERS Addy, et al
- Journal article citation:
- Journal of Clinical Nursing, 24(13-14), 2015, pp.1955-1965.
- Publisher:
- John Wiley and Sons
Aims and objectives: This study seeks (1) to investigate the impact of the implementation of the ‘Diagnostic Guideline for Anxiety and challenging behaviours in clients with intellectual disability’ on nurses/social workers' knowledge and self-efficacy; and (2) to evaluate the role of nurses/social workers in the diagnostic process when applying the guideline. Background: Nurses/social workers have extensive contact with clients with intellectual disabilities. Despite this key position, the contribution of nurses/social workers to the diagnosis of mental health problems and challenging behaviours is rather limited. The authors developed the multidimensional ‘Diagnostic Guideline for Anxiety and challenging behaviours’. In this article, the implementation of this guideline is evaluated concerning knowledge and self-efficacy of nurses/social workers, as well the role of nurses/social workers in the diagnostic process. Design: This study employed a comparative multiple case study design. Methods: Qualitative and quantitative research methods. Results: Working with the ‘Diagnostic Guideline for Anxiety and challenging behaviours’ led to a statistically significant increase in knowledge and self-efficacy among the nurses/social workers in the experimental condition, compared with nurses/social workers in the control condition. Nurses/social workers and psychologists appreciated the more active contribution of the nurses/social workers in the diagnostic process. Conclusions: Working with the guideline increased the knowledge and self-efficacy of nurses/social workers, and led to more active participation of nurses/social workers in the diagnostic process. Relevance to clinical practice: After following a training programme, nurses/social workers can effectively contribute to the diagnostic process in clients with anxiety and related challenging behaviours. (Publisher abstract)
Sustainability, innovation and empowerment: a five year vision for the independent social care sector
- Author:
- CARE ENGLAND
- Publisher:
- Care England
- Publication year:
- 2015
- Pagination:
- 31
- Place of publication:
- London
Sets out Care England’s vision for the next five years on how the organisation and the sector plan to deal with a number of issues facing the health and social care system. The report focuses on critical areas of the current social care landscape, including: integrated and person-centred care; falling fees and local authorities’ budgetary constraints; recruitment of nurses; recruitment, pay and training of the care workforce; raising awareness of the value of the sector; the Care Quality Commission and the need for further improvement of the regulation process; learning disabilities; and dementia. The report warns of the risk of a collapse in the system if providers and commissioners do not work together and more nurses are not recruited into the independent sector. (Edited publisher abstract)
Unit costs of health and social care 2015
- Authors:
- CURTIS Lesley, BURNS Amanda
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2015
- Pagination:
- 274
- Place of publication:
- Canterbury
This report provides unit costs estimates for a range of health and social care services and staff. It comprises five sections. Section 1 estimates the costs of services for older people, people with mental health problems, people who misuse drugs or alcohol, people with learning disabilities, adults with physical disabilities, children and their families, hospital and related services and care package. Sections 2, 3 and 4 provides cost estimates for community-based health and social care staff and hospital-based staff. These include: allied health professionals, nurses, general practitioners, social workers, home care staff, scientific and professional staff and specialist doctors. Section V details the sources of information used. The report also includes four discussion and research papers, examining some of the implications of the 2014 Care Act, the development of a new survey tool to gather self-reported data about respondents’ care needs, use of formal care, and their use and provision of informal care, the costs of vision rehabilitation services in England, and resource-use questionnaires used in trial-based economic evaluations. (Edited publisher abstract)