Search results for ‘Subject term:"learning disabilities"’ Sort:
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End-of-Life decision-making for people with intellectual disability from the perspective of nurses
- Authors:
- WAGEMANS A.M.A., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(4), 2015, pp.294-302.
- Publisher:
- Wiley
The aim of this study was to investigate the involvement of nurses in the process of making end-of-life decisions for people with intellectual disability (ID). This qualitative study involved nine semistructured interviews with nurses working in chronic care, conducted after the deaths of patients with ID in the Netherlands. The interviews were transcribed verbatim and analysed using Grounded Theory procedures. The core characteristic of the position of the nurses and of the way they supported the patient was "Being at the centre of communication." Related categories of topics emerging from the interviews were "Having a complete picture of the patient," "Balancing involvement and distance," "Confidence in one's own opinion," and "Knowledge about one's own responsibility," all of which were focused on the patient. This focus on the patient with ID might explain why the nurses could make valuable contributions to such an important subject as end-of-life decisions. People with ID themselves were not involved in the decisions. The nurses were not always aware who was ultimately responsible for the end-of-life decisions. Nurses are in a unique position to support the process of end-of-life decision-making. It is important to use their knowledge and give them a more prominent position in this decision-making process. It should be clear to all involved who is ultimately responsible for making the end-of-life decisions. (Edited publisher abstract)
St Lawrence's staff: then and now
- Authors:
- COOPER Mabel, FERRIS Gloria, ABRAHAM Jane
- Journal article citation:
- Ethics and Social Welfare, 7(3), 2013, pp.272-276.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
Mabel Cooper and Gloria Ferris lived in St Lawrence's Hospital, .one of the large learning disability institutions which were built round the edges of London. In this paper, Mabel and Gloria share their memories of three nurses at St Lawrence's, supported by Jane Abraham. The article also includes an interview Gloria carried out with MW, one of the nurses at St Lawrences, to help hear the story from a nurse's viewpoint. These accounts of the work and life of nurses and domestics in the hospital raise a number of ethical issues which are still relevant today. (Edited publisher abstract)
An oral history of the ethics of institutional closure
- Authors:
- INGHAM Nigel, ATKINSON Dorothy
- Journal article citation:
- Ethics and Social Welfare, 7(3), 2013, pp.241-256.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
This paper examines the ethical dimensions of the closure process of an English large long-stay institution for people with learning difficulties, Royal Albert Hosptial, during the last quarter of the twentieth century. It does this primarily through an analysis of oral historical interview data stemming from those managers who implemented rundown. The paper illustrates the ways in which their testimonies indicate the presence of a morally infused dominant rhetoric, which was based upon the therapeutic benefits of closure, informed by the ideas of normalisation and social role valorisation. However, the paper argues that this principled managerial perspective had unfortunate ethical consequences, in that it under-acknowledged, marginalised and discredited staff viewpoints which raised pertinent issues relating to the downsizing of this particular hospital. (Publisher abstract)
Learning disabilities: themes and perspectives
- Editors:
- MARKWICK Anne, PARRISH Anne
- Publisher:
- Butterworth-Heinemann
- Publication year:
- 2003
- Pagination:
- 206p.,bibliogs.
- Place of publication:
- London
This book provides a practical look at the way in which the care of those with learning disabilities is changing from an autocratic to a democratic approach, encouraging clients to become more responsible for their own treatment regimes. The book shows how the caring professions can have the client at the centre of their concerns whilst still complying with policy. The book discusses sensitive issues such as sexuality and spirituality, opening new avenues to enhanced care in difficult circumstances. It also looks at the implications for learning-disabled clients when directives from policy-makers have to be implemented.
Community care for nurses and the caring professions
- Authors:
- MALIN Nigel, et al
- Publisher:
- Open University Press
- Publication year:
- 1999
- Pagination:
- 217p.,bibliogs.
- Place of publication:
- Buckingham
Textbook providing a concise introduction to policy and practice issues in community care. Contains chapters on: background developments 1957-88; the reforms and the mixed economy of care; towards a conceptual framework; values, assumptions and ideologies; values, theories and realities in learning disability services; users and carers perspectives; professional directions; professions in community care (including interprofessional relations); and teams in community care.
The laying on of hands: nursing staff talk about physical restraint
- Author:
- EDWARDS R.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(3), 1999, pp.136-143.
'Care and responsibility', previously labelled 'Control and Restraint' is a nationally recognized approach to physical restraint. This study explores how nursing staff, who work with people with learning disabilities and behaviour that challenges services, evaluate the method. Whilst there has been considerable debate in the literature concerning physical restraint methods there is no consensus about the appropriateness of different approaches. Peculiarly, the opinions of the staff are at the periphery, or worse still, absent from the arena. In this qualitative project, this issue is addressed by using intensive, semi-structured interviews to probe the views of participants. The interviewees discussed a range of topics and identified a number of main themes.
Changing practice in health and social care
- Editors:
- DAVIES Celia, FINLAY Linda, BULLMAN Anne
- Publisher:
- Sage
- Publication year:
- 2000
- Pagination:
- 400p.,bibliogs.
- Place of publication:
- London
Collection of papers exploring current challenges facing practitioners across a broad spectrum of the caring professions. Includes chapters on: reshaping welfare; the public administration model of welfare delivery; community care in the 1990s; changes in maternity policy; human behaviour and social policy; theory and practice in health and social care; applying reflective practice; reflection and reflective practice; requirements of a caregiver; social work values; anti oppressive theory and practice in social work; working with diversity; keys to collaboration; collaboration and conflict within the treatment team; using psychotherapeutic concepts to understand team conflict; the missing link in quality assurance for disabled people; developing the role of user involvement in the UK; the role of women support staff in relation to men with learning difficulties who have difficult sexual behaviour; care costs; confidentiality, accountability and the boundaries of client worker relationships; obstacles to medical audit; the accreditation experience; the resettlement of people with severe learning difficulties; the creative work of care package purchasing; voluntary sector boards in a changing public policy environment; professional practice in social work and health care; a new social basis for welfare; and user voice, interprofessionalism and postmodernity.