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Struggles with time: the careers of parents with adult sons and daughters with learning disabilities
- Authors:
- TODD Stuart, SHEARN Julia
- Journal article citation:
- Disability and Society, 11(3), September 1996, pp.379-401.
- Publisher:
- Taylor and Francis
The experiences of parents with adult offspring with learning disability and the meanings their parental careers have for them, has been the subject of very little empirical research. This paper describes and examines some of the features that have given shape and meaning to the day to day lives of parents of co-resident adults with learning disabilities. Their accounts of their situations reveal that 'time' was a factor of some importance. Participants suggested that socialisation into the parental role was one that continued over the life course. In addition, they also felt that the services they received were based upon an inadequate and too narrow an understanding of how they experienced 'time'. The data reveal that both 'over time' and 'in time', parents struggled to maintain a set of aspirations for a typical life. The data show that for many parents there was a slow accommodation to the constraints of service provision and, as a result, their needs for service support became less extensive.
Time and the person: the impact of support services on the lives of parents of adults with intellectual disabilities
- Authors:
- TODD Stuart, SHEARN Julia
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 9(1), 1996, pp.40-60.
- Publisher:
- Wiley
Employing data derived from a qualitative, in depth study of the experiences of parents of co-resident adult offspring with intellectual disabilities, this article examines some features of parents' lives which shape parents' need for support and their assessment of the adequacy of support received. Support services were positively received in the what they interrupted, what would otherwise be, a continuous cycle of care. The development of support services is discussed in terms of two phases. The first phase involves supporting parents through sharing the parental workload. The second involves supporting the person and his/her range of personal aspirations and interests. The implications which this latter phase may have for other forms of service provision are briefly discussed.