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Carers of people with learning disabilities, and their experience of the 1995 Carers Act
- Authors:
- ROBINSON Carol, WILLIAMS Val
- Journal article citation:
- British Journal of Social Work, 32(2), March 2002, pp.169-183.
- Publisher:
- Oxford University Press
This paper seeks to highlight the impact of the Carers (Recognition and Services) Act of 1995 on carers of people with learning disabilities. It draws on research conducted in the south west between 1997 and 1999, which examined the views and experiences of carers who had an assessment of their needs, together with those of the person they care for and the professional conducting the assessment. It concludes that the Carers Act is not widely used, or understood, by this group of carers. Recommendations for improving practice include changes to the current terminology, new triggers for a carer's needs assessment, and a greater input from other agencies, especially health services. Although the current paper focuses on the views and experiences of carers, an exploration of the Carers Act, and its effect on potential conflicts of interest with the person with learning disabilities, is available elsewhere.
Give us a break
- Authors:
- COTTERILL Lesley, HAYES Lesley, SLOPER Tricia, FLYNN Margaret
- Journal article citation:
- Community Care, 23.3.95, 1995, pp.20-21.
- Publisher:
- Reed Business Information
In the main respite provision for adults with learning difficulties is associated with the notion of 'care burden'. Looks at a service provided by Natural Breaks which differs from most respite services in that it meets the needs of service users and not the carers.
Short breaks support is failing family carers: reviewing progress 10 years on from Mencap's first Breaking Point report
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2013
- Pagination:
- 49
- Place of publication:
- London
Updates the findings of an earlier Mencap report to investigate whether recent policy initiatives have improved the availability and provision of short breaks provision for people caring for family members learning disabilities. It also examines the extent to which cuts to central and local budgets have impacted on services. A total of 264 family carers responded to a survey on short breaks provision and caring. Freedom of Information requests were also sent to 152 local authorities in England that provide social services. The survey found that 8 out of 10 family carers have reached breaking point due to the lack of short breaks. Families also felt that services they were not having regular assessments and that services were not meeting their needs. The lack of access to short breaks has also a serious impact on family carers, such as stress or having to give up work. The report includes quotes from family carers who responded to the survey. Recommendations are also made for local authorities, central government and service providers. (Original abstract)
Shifting the balance of services. A review of respite care in Torfaen
- Author:
- -
- Journal article citation:
- Management Issues in Social Care, 9(1), Autumn 2003, pp.16-21.
- Publisher:
- OLM Systems
Torfaen is a small unitary authority in South East Wales. Reports on a study into respite services which was carried out between June and September 2002. The study was carried out to review services in light of Torfaen's split from the four other authorities in the former Gwent; the emphasis on supporting carers in the strategy of the Welsh Assembly; practice concerns relating to the low level of services to disabled people in Wales. This article describes the approach taken and some of the findings.
Families of children with profound learning difficulties are let down by statutory services
- Author:
- WINCHESTER Ruth
- Journal article citation:
- Community Care, 22.11.01, 2001, p.20.
- Publisher:
- Reed Business Information
Reports on how a new report from Mencap calles for an overhaul of support services for carers of children with profound learning difficulties.
Planning care for children in respite settings: hello, this me
- Authors:
- LAVERTY Helen, REET Mary
- Publisher:
- Jessica Kingsley
- Publication year:
- 2001
- Pagination:
- 171p.,bibliog.
- Place of publication:
- London
This book offers an approach to planning respite care provision for disabled children and children with learning difficulties, based on the child's abilities and needs. The model set out in this book, the "Hello, this is me model" provides a method of assessing and planning care for children with a variety of special needs. Throughout the book an emphasis is placed on partnership between families and carers that enables children and their parents to make their wishes known when planning respite care so that the unique needs of each child can be met.
Identifying the need for respite care for people with learning disabilities in Northern Ireland
- Author:
- SINES D.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(2), June 1999, pp.81-91.
Describes the methods employed to investigate the range and models of respite care services provided for people with learning disabilities and their carers in Northern Ireland. Carers were surveyed to determine their perceptions and levels of satisfaction regarding the range of services provided for them. In addition, local respite care services were examined and interviews conducted with commissioners, providers and professional support staff to assess the perceptions of individuals involved in the planning, commissioning and providing of respite care services. The study confirmed that regional variations existed throughout the province and that the current range of services often failed to meet the significant and often complex needs of users. Whilst the study was conducted in Northern Ireland it is considered that many of the findings will be equally applicable to elsewhere in the UK and the Republic of Ireland.
Reviewing respite services: some lessons from the literature
- Authors:
- COTTERILL Lesley, et al
- Journal article citation:
- Disability and Society, 12(5), November 1997, pp.775-788.
- Publisher:
- Taylor and Francis
Although the community care reforms raised the profile of respite services for adults with learning disabilities, little is known about the character of respite provision in Britain. This lack of information is compounded by the way the literature about respite is dispersed across user groups and is often restricted to particular types of services or to specific localities. Highlight some of the key issues associated with respite, and draws on a wide range of literature. Argues that a break with the traditional notion of respite as primarily a way to relieve carer burden is long overdue.
Just getting on with it: exploring the service needs of mothers who care for young children with severe/profound and life-threatening intellectual disability
- Authors:
- REDMOND Bairbe, RICHARDSON Victoria
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(3), September 2003, pp.205-218.
- Publisher:
- Wiley
This study interviewed mothers (n= 17) of children aged 4 years and under with severe/profound intellectual disability, some with attendant complex medical, life-limiting conditions. The study explored the mothers' views of the usefulness of the financial, practical and emotional supports being offered to them and their suggestions for service improvements. The study reveals these mothers to be engaged in stressful but skilled care of their children with a clear wish to continue caring for their child in the family home. Mothers frequently referred to the process of gaining useful information on services as 'haphazard' and most of the services offered to them as uncoordinated, unreliable and difficult to access. The study reveals that many of these children's needs are not being adequately met by either the intellectual disability services or the acute medical services, and some families are forced to privately finance services such as physiotherapy and speech therapy. The data reveal that mothers want services offered to them in their own home, particularly short home-based respite, which would offer them short breaks to rest or engage in part-time employment. The study concludes that a reliable and flexible service response, including a comprehensive information and advocacy support is indicated for these families.
A snapshop of people with intellectual and developmental disabilities using specialist disability services in Australia 2002
- Author:
- AUSTRALIAN INSTITUTE OF HEALTH AND WELFARE
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 28(3), September 2003, pp.297-304.
- Publisher:
- Taylor and Francis
The Commonwealth/State Disability Agreement (CSDA) provides the arrangements whereby specialist disability support services are planned, funded and administered in Australia. The Commonwealth/State Disability Agreement Minimum Data Set (CSDA MDS) is a national collection of data conducted under the heads of government disability services throughout Australia. The data are collected on a single 'snapshot' day each year in May or June. Discusses the results of a data collection from 2002, including information about the users of disability support services and the service outlets that provide these services.