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End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources
- Authors:
- TUFFREY Irene, HOGG James, CURFS Leopold
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(4), July 2007, pp.331-344.
- Publisher:
- Wiley
This paper reviews the literature around the need of people with intellectual disabilities for palliative care. A range of databases and the World Wide Web were searched for relevant papers, book chapters, training and information materials, unpublished materials and policy guidelines. Publications from 1995 to 2005 are included. Although there has been a steady increase in published materials in recent years, research data around the palliative care needs of people with intellectual disabilities remain scarce. Case reports are the most prevalent method of exploring pertinent issues. The paper presents an overview of issues identified in the literature, with a particular focus on pain and symptom assessment, ethical issues, service planning and training needs. The authors conclude there are significant gaps in current knowledge and make recommendations for future areas of research and development.
Their face to the wind: service developments for older people with learning disabilities in Grampian region
- Authors:
- LAMBE Loretto, HOGG James
- Publisher:
- ENABLE
- Publication year:
- 1995
- Pagination:
- 87p.
- Place of publication:
- Glasgow
Research study based on user and carer views. Looks at residential and day care and at present and future needs.
Making leisure provision for people with profound learning and multiple disabilities
- Editors:
- HOGG James, CAVET Judith
- Publisher:
- Chapman and Hall
- Publication year:
- 1995
- Pagination:
- 277p.,list of orgs.,bibliog.
- Place of publication:
- London
Practical text aimed at individuals and organisations interested in, or responsible for, creating leisure opportunities for people with profound and multiple impairments. Offers guidance on running and developing training courses for parents, carers and professionals, and provides addresses, contacts and resource lists. Specific leisure activities looked at include: multisensory environments; physical activities; task-oriented enjoyment; gardening; art, drama and music; holidays and outings; play materials; microtechnology; and aromatherapy.
Ageing matters: pathways for older people with a learning disability; unit six; service organisation and service options
- Authors:
- HARRIS John, BENNETT Lucille, HOGG James
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 1997
- Pagination:
- 27p.
- Place of publication:
- Kidderminster
Unit six in a series of teaching aids for staff working with older people with learning difficulties. This unit looks at: learning outcomes; purchasers, providers and commissioners; aims and objectives for management; services; and care options for older people with learning difficulties. The final section is on: assessment, talking to users and their families and carers, purchasing care and reviewing needs and care.