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Please don't let it happen on my shift. Supporting staff who are caring for people with learning disabilities who are dying
- Authors:
- BROWN Hilary, BURNS Sophie, FLYNN Margaret
- Journal article citation:
- Tizard Learning Disability Review, 8(2), April 2003, pp.32-41.
- Publisher:
- Emerald
Reports on a qualitative study of services that have cared for a person with learning disabilities during a terminal illness. The project was based on a series of case studies, twenty-one individual case studies were included from twelve different services. Interviews were also carried out with staff, relatives and service users. The research reflects current concern about access to health care as well as the national priority being placed on improvements in cancer services for all patients. The study documents how the service learned of the person's illness, how they mobilised services and made decisions, how effectively agencies worked together and what support staff needed in the person's last months and weeks. It also considers the way staff, as individuals and teams, made sense of their experience and evaluated the input of other professionals. The article looks at two cases in detail to highlight the findings.