Search results for ‘Subject term:"learning disabilities"’ Sort:
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Lean on me
- Author:
- KEYES Sarah
- Journal article citation:
- Learning Disability Today, January 2011, pp.26-28.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Reports on a project to find out how people with learning disabilities perceive the peer support that they give to and receive from other people with learning disabilities, and to discover how this could inform inclusive practice, policy and theory. The research involved two separate groups of people with learning disabilities. Accounts from individuals in the groups were used to build a collective model of peer support. A description of the model is provided.
Multi-agency inspection of services for people with learning disabilities in Ayrshire
- Author:
- SOCIAL WORK INSPECTION AGENCY
- Publisher:
- Social Work Inspection Agency
- Publication year:
- 2007
- Pagination:
- 182p.
- Place of publication:
- Edinburgh
A report of the pilot multi-agency inspection of services for people with learning disabilities in Ayrshire that took place between February and June 2006 is presented. A multi-agency inspection model for services for people with learning disabilities was developed. A consultation event about the model was held and people’s comments were taken into account. A number of people with learning disabilities and family carers attended the event. The model was specifically designed for multi-agency inspections of learning disability services and is congruent with the SWIA performance inspection model and HMIe’s performance inspection model. The report covers enabling and sustaining independence, promoting inclusion, meeting health needs, safety and protection, record keeping and communication, meeting staff needs, developing partnership working, leadership and direction, financial resource and information management, and capacity for improvement. Recommendations are presented.
Quality of life Is to experience adult social status
- Authors:
- CARLSSON Oie Umb, ADOLFSSON Päivi
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 15(4), 2018, pp.272-283.
- Publisher:
- Wiley
Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well‐being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users´ perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organised, rather the interrelation between them is emphasized. (Edited publisher abstract)
Supported decision making: experiences, approaches and preferences
- Authors:
- DAVIDSON Gavin, et al
- Publishers:
- Praxis Care, Mencap, Queens University Belfast
- Publication year:
- 2018
- Pagination:
- 72
- Place of publication:
- Belfast
This report presents the findings from research which explores how people are supported to make their own decisions. The report includes the results of a review of literature on supported decision making, including different approaches; a review of key guidance; and findings from interviews with 41 people with mental health problems and/ or intellectual disabilities carried out by peer researchers. The interviews provided an in-depth understanding of people’s experiences of support for decision making and their ideas on how decision making should be supported in the future. The research was funded by the Disability Research on Independent Living and Learning (DRILL) programme and was led by Praxis Care in partnership with Mencap NI and Queen’s University Belfast. The findings identified three things that participants felt make decision making harder: the type of decision; the role of other people; and what the outcome might be. Time was also identified as an important factor. In terms of support, people said they would like: practical support including more accessible information; emotional support including someone to talk to; and sometimes the options to choose from. The report makes a number of recommendations for how support for decision making should be provided but also specifically for how these findings might help to inform how the new support principle in the Mental Capacity Act (Northern Ireland) 2016 should be implemented in practice. (Edited publisher abstract)
Complex behaviour service: content analysis of stakeholder opinions
- Authors:
- INCHLEY-MORT Sophie, HASSIOTIS Angela
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 8(4), 2014, pp.228-236.
- Publisher:
- Emerald
Purpose: Positive behaviour support has been positioned by current government policy as an important intervention for people with intellectual disabilities who display behaviours that challenge services. However, little is known about service user or carer opinions towards the use of this kind of model. The paper aims to discuss this issue. Design/methodology/approach: Opinions and experiences of 25 carers and six service users were collected through semi-structured interview as part of the evaluation of an enhanced service, Complex Behaviour Service, based on positive behaviour support principles. Findings: Content analysis indicated that the service was seen as acceptable and useful and that positive experiences of the service linked to: frequency and availability of the service; talking about behaviour and being listened to; understanding, and change in, the service user, carer and behaviour. Originality/value: This adds to the small but growing literature on service user and carer opinions towards specific interventions and highlights themes that future services could consider in delivering evidence-based care. (Publisher abstract)
Special parenting and the combined skills model
- Authors:
- YOUNG Sadie, HAWKINS Tim
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 19(4), December 2006, pp.346-355.
- Publisher:
- Wiley
The Exeter Child and Special Parenting Service provides flexible assessment, long-term domiciliary support and home-based teaching to intellectually disabled parents. It provides key coordination between the Learning Disability Service and the Children's Service with focussed parenting assessments, where issues of child care and protection proceedings arise. This article evaluates the Child and Special Parenting Service by examining the views of the recipient parents and the professionals who had referred to the service. A high level of consumer satisfaction was found and assessment reports were highly rated. The service is seen to help prevent family breakdown, to meet user needs and to be supportive and non-threatening by the parents. The combined skills model proposes a small, specialized service that acts as a linchpin for complex cases that require skills from both child and learning disability workers. The Child and Special Parenting Service receives an increasing demand for assessment. It is highly valued by the users and works strongly from an inter-agency standpoint, coordinating complex packages of domiciliary assessment and support, and is a good practice model.
A survey of self-advocacy groups for people with learning disabilities in an English region: part II
- Author:
- McNALLY Steve
- Journal article citation:
- Journal of Learning Disabilities, 7(3), September 2003, pp.231-250.
- Publisher:
- Sage
This article is on the development, implementation and analysis of a survey of self-advocacy groups for people with learning disabilities in the midlands region of England. One hundred questionnaires were posted to groups and 53 were completed — a good response for remote work with groups whose members may not read. In postal surveys non-response can be overestimated because ineligible or unreachable respondents may be regarded as refusals. Three respondents identified themselves as ineligible; therefore the response rate was no less than 54 percent. Groups provided information about their origins, structure and functioning. Among the key findings were the consistency of the issues identified as important, and the willingness to engage in research. The overwhelming majority of groups indicated that they would participate further in the project. Participatory research paradigms from the social model of disability can enhance our understanding of self-advocates' experience.
Advocacy services for the residents of the Behavioural Unit in Strathmartine Hospital, Dundee: a feasibility study
- Author:
- LAMBE Loretto
- Publisher:
- ENABLE
- Publication year:
- 1992
- Pagination:
- 42p.,list of orgs.,bibliog.
- Place of publication:
- Glasgow
Examines the feasibility and desirability of developing an advocacy scheme for people with challenging behaviour in a Behavioural Unit in Strathmartine Hospital, Dundee. Looks at models of advocacy; the views of staff, residents and relatives; and the perceived need for an advocacy service. Also presents a detailed strategy and costing for introducing an advocacy scheme.
Learning to partner, disabling conflict: early indications of an improving relationship between parents and professionals with regard to service provision for children with learning disabilities
- Author:
- CASE Stephen
- Journal article citation:
- Disability and Society, 16(6), October 2001, pp.837-854.
- Publisher:
- Taylor and Francis
A questionnaire was constructed to analyse whether the high degree of parental dissatisfaction with disability professionals found in previous studies is indicative of the modern parent-professional relationship with regards to service provision for learning disabled children. The subsequent data suggests that professionals are beginning to address the need for clear and appropriate information and intervention, an acknowledgement of parental needs and expertise, and the effective role of parental involvement, whilst parents function within the role of service 'consumers'. Consequently, previous levels of dissatisfaction are slowly being undermined, although professional service remains reactive, particularly in terms of counselling and advice, despite the need and desire for more pro-active provision.
Using research as a tool for change in a residential setting
- Authors:
- HOGG Bryan, SCHUR Helen
- Journal article citation:
- Care the Journal of Practice and Development, 6(4), September 1998, pp.17-35.
- Publisher:
- Pepar
Discusses the use of a participatory research project in a residential home for people with learning difficulties. The main aims were to gather the views of staff, residents and relatives on how best to increase the level of choice and to perceived blocks to increasing choice. Summarises the recommendations and shortcomings of the project.