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The first use of dementia care mapping in the care for older people with intellectual disability: a process analysis according to the RE-AIM framework
- Authors:
- SHAAP Feija D., et al
- Journal article citation:
- Aging and Mental Health, 22(7), 2018, pp.912-919.
- Publisher:
- Taylor and Francis
Introduction: The ageing of the population with intellectual disability (ID), with associated conseqences as dementia, creates a need for evidence-based methods to support staff. Dementia Care Mapping (DCM) is perceived to be valuable in dementia care and promising in ID-care. The aim of this study was to evaluate the process of the first use of DCM in ID-care. Methods: DCM was used among older people with ID and care-staff in 12 group homes of six organisations. The researchers obtained data on the first use of DCM in ID-care via focus-group discussions and face-to-face interviews with: care-staff (N = 24), managers (N = 10), behavioural specialists (N = 7), DCM-ID mappers (N = 12), and DCM-trainers (N = 2). The research used the RE-AIM framework for a thematic process-analysis. Results: All available staff (94%) participated in DCM (reach). Regarding its efficacy, staff considered DCM valuable; it provided them new knowledge and skills. Participants intended to adopt DCM, by continuing and expanding its use in their organisations. DCM was implemented as intended, and strictly monitored and supported by DCM-trainers. As for maintenance, DCM was further tailored to ID-care and a version for individual ID-care settings was developed, both as standards for international use. To sustain the use of DCM in ID-care, a multidisciplinary, interorganisational learning network was established. Conclusion: DCM tailored to ID-care proved to be an appropriate and valuable method to support staff in their work with ageing clients, and it allows for further implementation. This is a first step to obtain an evidence-based method in ID-care for older clients. (Edited publisher abstract)
Models of disability, quality of life, and individualized supports: implications for professional practice in intellectual disability
- Authors:
- BUNTINX Wil H. E., SCHALOCK Robert L.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(4), December 2010, pp.283-294.
- Publisher:
- Wiley
In the past decade, new models have emerged with respect to the constructs of intellectual disability, quality of life, and supports. These models have implications both for understanding the underlying phenomena as for validating professional practices. This article describes the context and key components of models of human functioning and disability (American Association on Intellectual and Development Disabilities, and International Classification of Functioning, Disability, and Health), quality of life, and supports, and demonstrate how these models are related by synthesising their similarities and differences. From this it discusses the implications for professional clinical and service good practice. It is argued that these models offer relevant frames of reference for guiding and integrating activities of medical, behavioural, and social disciplines in the field of intellectual disability services. It is also argued that knowledge of these models and their relationships facilitates communication among professionals and between professionals and policy makers.
Valuing people, not institutions
- Author:
- GREIG Rob
- Journal article citation:
- Housing Care and Support, 8(3), September 2005, pp.34-39.
- Publisher:
- Emerald
This article describes the author's experience of two meetings. One, with a self-advocate-led organisation, was concerned with helping it expand and make use of its work a 3 key issues: advice on parenting skills for parents with learning disability, accessible information on health for people with learning disability, and training in the use of accessible information. The second was with a group of senior service managers seeking advice on how to reorganise and restructure their service organisations. The author discusses the 'professional gift model' and the 'citizenship model' which set of concerns and actions had the potential for the greatest impact on the lives of people with learning disabilities.
Valuing people, not institutions
- Author:
- GREIG Rob
- Journal article citation:
- Tizard Learning Disability Review, 10(1), February 2005, pp.30-35.
- Publisher:
- Emerald
Describes the author's experience of two meetings. One, with a self-advocate-led organisation, was concerned with helping it expand and make use of its work a 3 key issues: advice on parenting skills for parents with learning disability, accessible information on health for people with learning disability, and training in the use of accessible information. The second was with a group of senior service managers seeking advice on how to reorganise and restructure their service organisations. Asks which set of concerns and actions had the potential for the greatest impact on the lives of people with learning disabilities.
Named Social Worker: ten steps to creating your own cost benefit analysis
- Authors:
- RODGER John, STEWART Brian
- Publisher:
- York Consulting
- Publication year:
- 2018
- Pagination:
- 22
- Place of publication:
- Leeds
This guide developed by York Consulting to help Named Social Worker (NSW) teams to conduct their own economic assessment using a predictive cost benefit analysis (CBA) methodology. CBA aims to quantify in monetary terms as many of the costs and benefits. Both hard outcomes - such as savings on care home places, GP visits and police callout; and soft benefits - such as confidence, wellbeing, satisfaction, independence, aspiration of an intervention as feasible. The approach presented recognises that NSW teams had limited opportunities, given the short time scales, to collect much client outcome information. The initial focus is therefore on constructing a model of impact based on a range of assumptions. This provides an illustrative projection which can be checked with actual outcomes data at a later date. While the methodology presented is not definitive, it should provide NSW teams, and others piloting a similar approach, with sufficient information to get started and specify their own cost benefit models. (Edited publisher abstract)
Comparing traditional‐residential, personalised residential and personalised non‐residential respite services: quality of life findings from an Irish population with mild-moderate intellectual disabilities
- Authors:
- NICHOLSON Emma, et al
- Journal article citation:
- British Journal of Learning Disabilities, 47(1), 2019, pp.12-18.
- Publisher:
- Wiley
Background: Respite care is an essential support for people with intellectual disabilities and their families; however, there is limited evidence examining different models of respite care. The present research examined quality of life among adults with intellectual disabilities using three different models of respite services in Ireland. Method: A quasi‐experimental research method was adopted, which sought to determine differences in quality of life across the three respite care groups using two measures, 1) a self‐reported quality of life scale and 2) a quality of life questionnaire filled out by a keyworker. Participants were people with mild/moderate intellectual disabilities (n = 82) and their keyworkers (n = 81). Results: Three distinct models of respite services were assessed: (a) Traditional‐ Residential respite; (b) Personalised Residential respite, and (c) Personalised Non‐Residential respite. No differences emerged between the groups on self‐reported quality of life; however, the groups differed on a proxy measure of quality of life with respect to Rights, emotional well‐being, personal development and interpersonal relationships. Conclusion: The current data offer an initial exploration of self‐ and proxy‐reported quality of life among persons with intellectual disabilities in receipt of novel models of respite care in Ireland. (Edited publisher abstract)
Commentary on “Australia’s National Disability Insurance Scheme: a collaboration opportunity for academia and industry”
- Author:
- GREIG Rob
- Journal article citation:
- Tizard Learning Disability Review, 23(3), 2018, pp.147-149.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a UK perspective on the article by Mason et al. on Australia’s National Disability Insurance Scheme (NDIS). Design/methodology/approach: A commentary on the main article, drawing on the author’s knowledge and experience of the implementation of personalisation in the UK and information gleaned during a recent visit to Australia. Findings: There is a major risk that the implementation of NDIS will repeat some of the failings of personalisation in the UK. Specifically, the failures of public bodies to invest in supporting people to take effective control over the resources available to them, and to instigate action to manage the emerging market in ways that promote innovative community options, risk the forces of the free market economy undermining disabled people’s ability to make maximum use of any new choice and control open to them. Originality/value: This is a personal perspective, backed by experience, on a current policy development that is of international interest. (Edited publisher abstract)
Australia’s National Disability Insurance Scheme: a collaboration opportunity for academia and industry
- Authors:
- MASON Jonathan, et al
- Journal article citation:
- Tizard Learning Disability Review, 23(3), 2018, pp.139-146.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to summarise the initial experiences of Australia’s National Disability Insurance Scheme (NDIS). It highlights some of the main challenges being faced by participants, service providers and government, and demonstrates how research can contribute to the ongoing implementation and success of the scheme. Design/methodology/approach: The historical basis for the need for a new approach to disability funding in Australia is explored. The opportunities that exist and the difficulties that are being encountered by those entering and working within the new scheme are discussed. Findings: Several problems were identified including difficult transitions between existing support frameworks to new “NDIS plans”, and the risk of market failure. Both the problems and their solutions are discussed and it is hoped that collaboration between the Commonwealth Government, service users, their families, service providers and universities can lead to a number of lasting improvements. Practical implications: The new funding framework provides exciting opportunities for increasing the funding of people with intellectual and physical disabilities in Australia. Developments in technology, service provision in rural and remote areas and the opportunity to meet aspirational life goals exist alongside a number of challenges, including the need to ensure that those with multiple and complex disabilities retain existing levels of support. Originality/value: The implementation of the NDIS is still underway, and opportunities exist to implement changes to the scheme where required. Research findings have an important role to play in the national debate regarding how best to improve quality of life for people with a disability in Australia. (Edited publisher abstract)
Citizenship: a guide for providers of support
- Authors:
- SLY Sam, TINDALL Bob
- Publisher:
- Centre for Welfare Reform
- Publication year:
- 2016
- Pagination:
- 48
- Place of publication:
- Sheffield
This guide outlines the 7 keys to citizenship and explains how they can be used by service providers to improve the lives of people with disabilities and their families and can also build quality into services. It believes that these 7 keys can help people to take action on three levels: personal change; local change in communities; and political change. Sections look at each of the seven principles in turn, and outline how they can provide a framework for improving the lives of people with disabilities. The 7 keys to citizenship are: purpose – having goals, hopes and dreams and a structure for life and a plan to achieve this; freedom – having control and the ability to be heard; money – having enough money to live a good life and control over how that money is spent; home – having a place that belongs to us; help – having good help that enhances our gifts, talents and skills; life – making an active contribution to our communities; Love – having loving relationships. (Edited publisher abstract)
Transforming care for people with learning disabilities: next steps
- Authors:
- NHS ENGLAND, et al
- Publisher:
- NHS England
- Publication year:
- 2015
- Pagination:
- 27
- Place of publication:
- London
A joint report from the Association of Directors of Adult Social Services, Care Quality Commission, Department of Health, Health Education England, local Government Association, and NHS England which sets how they intend to improve the quality of life of people learning disabilities following the 'Winterborne view: time for change' report by Sir Stephen Bubb. The report outlines key aims of reducing the number of people placed in hospital, reducing the length of time those admitted spend there, and improving the quality of both hospital and community settings. Plans include: empowering people and families to challenge their admission or continued placement in inpatient care; working with local authorities and other providers to get the right care in the right place; raising the quality of care through regulation and inspection; and increasing workforce capability by improving their skills and practice. (Edited publisher abstract)