Search results for ‘Subject term:"learning disabilities"’ Sort:
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Family quality of life: moving from measurement to application
- Authors:
- ZUNA Nina I., TURNBULL Ann, SUMMERS Jean Ann
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.25-31.
- Publisher:
- Wiley
Thus, the authors propose a theory of family quality of life (FQoL) designed to explain how various concepts - systems, performance, individuals, and family units - influence variations in FQoL. In defining each of the concepts, they describe the theory's application within the context of a family vignette, illustrating how professionals might apply theoretical propositions to their practice. In their application, they stress that the application of the FQoL theory they presented is not an end but rather a developmental stage that leads to further refinement of the FQoL theory. The application and development of this theory is a reciprocal process among researchers, practitioners, and families. Further, their FQoL theoretical model can serve to enable practitioners to examine which family, ecological, and programmatic variables are amenable to change to positively impact FQoL. Given this, they assert that FQoL is not a static concept but, instead, ebbs and flows during the course of raising a child with a disability. They call for further collaborative work among workers to continually improve the FQoL theory and to successfully implement it in practice.
Systems theory - a model of understanding
- Authors:
- HAMES A., GERTIG P.
- Journal article citation:
- Community Care, 12.3.87, 1987, pp.26-27.
- Publisher:
- Reed Business Information
Working with families with a mentally handicapped member.
Social services utilization by adults with intellectual disabilities and their families
- Authors:
- CHOU Yueh-Ching, et al
- Journal article citation:
- Social Science and Medicine, 66(12), June 2008, pp.2473-2485.
- Publisher:
- Elsevier
This study used Andersen's Behavioral Model with the family as a unit of analysis to examine the patterns of awareness and utilization of social services by families with at least one adult with intellectual disabilities. Face-to-face interview questionnaires were conducted with primary family caregivers in Hsinchu City, Taiwan in 2004. Data were collected on adults' and caregivers' predisposing, enabling, and need variables as well as awareness and utilization of formal social services. A total of 792 interviews were completed, making a response rate of 94.2%. Multivariate logistic regression analysis was used to identify potential predictors of social service awareness and utilization. We found awareness and utilization to be mostly associated with predisposing and enabling variables including caregiver's socioeconomic status, family connection with social networks, and family participation in related groups or associations. Younger caregivers were more likely to access formal assistance, while adults whose families were more connected into social networks were more likely to be aware of in-kind and voucher services, e.g., in-home services including respite and home care, and vocational services such as sheltered workshops, and bus voucher services.
Family base respite: the experience for children and adults with learning disabilities in St Michael's House
- Author:
- KELLEHER Joanne
- Journal article citation:
- Irish Social Worker, 19(2/3), Autumn 2001, pp.19-21.
- Publisher:
- Irish Association of Social Workers
In response to the severe crisis in respite care for people with learning disabilities, the Scottish Work Department in St Michael's House has developed a new model of family based respite. This article describes the Adult Placement Scheme for adults and the Break Time scheme for children which is currently providing at least 200 nights of respite each month.
Is more too many: adjustment in families with adopted children with developmental disabilities
- Authors:
- GLIDDEN Laraine Masters, et al
- Journal article citation:
- Adoption Quarterly, 4(1), 2000, pp.67-80.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Investigates the adjustment of differing size adoptive families rearing children with developmental disabilities. Families of 5 or more children were compared with families of 4 or fewer children on a variety of demographic and outcome variables measuring family strengths, family disharmony, marital adjustment, and adjustment to the adopted child. Analyses of covariance on the outcome variables demonstrated that parents of large families were functioning as well or better than parents of conventional-sized families. Concludes that adoption placement practice should not exhibit bias against the placement of multiple children with developmental disabilities in the same family.
A bereavement model for working with families of handicapped children
- Authors:
- STEWART June, POLLACK Gloria
- Journal article citation:
- Children and Society, 5(3), 1991, pp.241-253.
- Publisher:
- Wiley
Describes a support project for families following the birth of a handicapped child, including the development and application of Le Poidevin's model of adjustment to loss.
Families of the developmentally disabled: a guide to behavioural intervention
- Author:
- HARRIS Sandra L
- Publisher:
- Pergamon
- Publication year:
- 1983
- Pagination:
- 160p., tables, bibliog.
- Place of publication:
- Oxford
Training model for parents to teach their children self care, play skills and speech. Gives case histories.
Service model for people with a learning disability and behaviour that challenges: draft for consultation
- Author:
- NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE
- Publisher:
- National Institute for Health and Care Excellence
- Publication year:
- 2019
- Pagination:
- 25
- Place of publication:
- London
A draft quality standard covering the design, delivery and coordination of support and services for children, young people and adults with a learning disability (or a learning disability and autism) and behaviour that challenges, and their families and carers. It describes what constitutes high-quality care in priority areas for improvement. The quality statements cover: the role of lead practitioners; the role of named lead practitioners; support for families and carers; access to specialist behavioural support services in the community; and housing. The closing date of the consultation is 18 March 2019. (Edited publisher abstract)
Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland
- Authors:
- O'DOHERTY Siobhain, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.137-151.
- Publisher:
- Sage
- Place of publication:
- London
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalised model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members’ preference for particular types of living arrangements were highly reflective of their lived experience. Facilitators to community living included timely information on proposed moves, adequate staffing, suitable properties and locations and consideration of the characteristics of individuals who share a property. Barriers included high support needs, advanced age, a fear of relinquishing current supports, a fear of the sustainability of newer models of residential support and concerns about community opposition. Conclusion: The family perspective to reform is characterised by fear and suspicion of the motivation behind these reforms, with cost efficiencies being perceived as a main driver. Greater information is required to empower families to make informed decisions. (Edited publisher abstract)
Commentary on “Communication is the key: improving outcomes for people with learning disabilities”
- Author:
- BRADSHAW Jill
- Journal article citation:
- Tizard Learning Disability Review, 18(3), 2013, pp.141-145.
- Publisher:
- Emerald
This article provides a commentary on Lewer and Harding's article about the use of “the open communication tool”(OCT). It reviews the OCT as a method of both developing shared goals and understandings and identifying implementation issues. The author comments that the OCT can provide a useful model when working in services. It might be enhanced by also including ways of systematically addressing the views of the person with a learning disability and their family members. Indirect interventions delivered in the way described may be problematic in that some research suggests that staff teams place greater value on knowledge that is directly gained by experience of working with the person. This raises questions relating to the model within which clinical services are often delivered to supported housing settings and whether this needs to change. (Edited publisher abstract)