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LIFT psychology primary care group for people with intellectual disabilities: can IAPT adapt?
- Authors:
- KIRK Jo, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 8(1), 2014, pp.51-62.
- Publisher:
- Emerald
Purpose: There is a move to make primary care models of mental health care more accessible to people with intellectual disabilities (IAPT, 2009) but little evidence of their ability of services to make the necessary reasonable adjustments or their effectiveness (Dodd et al., 2011). The purpose of this paper is to describe a pilot project to evaluate an anxiety management group co-facilitated by Least Intervention First Time (LIFT) Psychology and Community Team for People with Learning Disabilities (CTPLD) services. Design/methodology/approach: Five people attended a nine-week anxiety management group, adapted from a course offered by LIFT services. The Glasgow Anxiety Scale (GAS-ID) and a skills and knowledge assessment were completed pre-group, post-group and follow-up to evaluate outcome and consider the ability of LIFT to make reasonable adjustments to deliver effective services for people with intellectual disabilities. Findings:Participants showed no significant reduction in anxiety levels but improvements in their skills and knowledge. An evaluation of the adjustments to make the group accessible for people with intellectual disabilities identified that some were feasible if offering the group on a long-term basis, and others were not. The viability of future groups is considered. Originality/value: The paper looks at the viability of making reasonable adjustments to psychoeducational groups within Improving Access to Psychological Therapies services to better meet the needs of people with intellectual disabilities, an area of limited research. It raises dilemmas and considerations for the future development of such services. (Publisher abstract)
Social services utilization by adults with intellectual disabilities and their families
- Authors:
- CHOU Yueh-Ching, et al
- Journal article citation:
- Social Science and Medicine, 66(12), June 2008, pp.2473-2485.
- Publisher:
- Elsevier
This study used Andersen's Behavioral Model with the family as a unit of analysis to examine the patterns of awareness and utilization of social services by families with at least one adult with intellectual disabilities. Face-to-face interview questionnaires were conducted with primary family caregivers in Hsinchu City, Taiwan in 2004. Data were collected on adults' and caregivers' predisposing, enabling, and need variables as well as awareness and utilization of formal social services. A total of 792 interviews were completed, making a response rate of 94.2%. Multivariate logistic regression analysis was used to identify potential predictors of social service awareness and utilization. We found awareness and utilization to be mostly associated with predisposing and enabling variables including caregiver's socioeconomic status, family connection with social networks, and family participation in related groups or associations. Younger caregivers were more likely to access formal assistance, while adults whose families were more connected into social networks were more likely to be aware of in-kind and voucher services, e.g., in-home services including respite and home care, and vocational services such as sheltered workshops, and bus voucher services.
Consensus statement of the international summit on intellectual disability and Dementia related to post-diagnostic support
- Authors:
- DODD Karen, et al
- Journal article citation:
- Aging and Mental Health, 22(11), 2018, pp.1406-1415.
- Publisher:
- Taylor and Francis
Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health and social care organizations, encompassing a range of supports that are offered to adults once diagnosed with dementia until death. Method: An international summit on intellectual disability and dementia held in Glasgow, Scotland in 2016 identified how PDS applies to adults with an intellectual disability and dementia. The Summit proposed a model that encompassed seven focal areas: post-diagnostic counselling; psychological and medical surveillance; periodic reviews and adjustments to the dementia care plan; early identification of behaviour and psychological symptoms; reviews of care practices and supports for advanced dementia and end of life; supports to carers/ support staff; and evaluation of quality of life. It also explored current practices in providing PDS in intellectual disability services. Results: The Summit concluded that although there is limited research evidence for pharmacological or non-pharmacological interventions for people with intellectual disability and dementia, viable resources and guidelines describe practical approaches drawn from clinical practice. Post diagnostic support is essential, and the model components in place for the general population, and proposed here for use within the intellectual disability field, need to be individualized and adapted to the person's needs as dementia progresses. Conclusions: Recommendations for future research include examining the prevalence and nature of behavioural and psychological symptoms (BPSD) in adults with an intellectual disability who develop dementia, the effectiveness of different non-pharmacological interventions, the interaction between pharmacological and non-pharmacological interventions, and the utility of different models of support. (Edited publisher abstract)
Assessing cultural identity in people with learning disabilities
- Author:
- NEWLAND John
- Journal article citation:
- Tizard Learning Disability Review, 4(4), November 1999, pp.20-24.
- Publisher:
- Emerald
Presents a method for assessing personal cultural identity for people with learning disabilities, based on the theoretical framework of Hutnik (1991) and the operational procedure developed by Parker et al. (1991). Two case examples are briefly presented that illustrate the method for assessing personal cultural identity. Discussed how incorporating personal cultural identity information into the community living assessment process can both facilitate more relevant care planning and increase service usage.
Supporting people with a learning disability and/or autism who have a mental health condition or display behaviour that challenges: draft service model for commissioners of health and social care services
- Authors:
- LOCAL GOVERNMENT ASSOCIATION, ASSOCIATION OF DIRECTORS OF ADULT SOCIAL SERVICES, NHS ENGLAND
- Publishers:
- Local Government Association, Association of Directors of Adult Social Services, NHS England
- Publication year:
- 2015
- Pagination:
- 49
- Place of publication:
- London
A draft national framework designed to improve the care of people with learning disabilities, shifting services away from hospital care and towards community-based settings. The document outlines a service model designed to ensure a degree of national consistency, while giving commissioners the flexibility to design services that best fit the needs of their local population. It sets out to provide clarity on ‘what good looks like’ for health, social care and housing services for people with a learning disability and/or autism and a mental illness or behaviour that challenges. It focuses on services and packages of care and support funded by the NHS and local government, as well as NHS/local government interfaces with other services (e.g. education), but not those services funded by other public sector agencies themselves (e.g. schools). The model comprises nine principles that should underpin the design of good services, and these are: planned, proactive and coordinated care; service users’ choice and control over their care; support in the community; service users’ choice over where they live; fulfilling and purposeful everyday life; good care from mainstream NHS services; access to specialist health and social care support in the community; access to services aimed at preventing or reducing anti-social or offending behaviour; and access to high-quality hospital treatment. (Edited publisher abstract)
Dementia-related care decision-making in group homes for persons with intellectual disabilities
- Authors:
- JANICKI Matthew P., MCCALLION Philip, DALTON Arthur J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.179-195.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Alzheimer’s disease and related dementias affects a significant number of adults with intellectual disability (ID), in particular those with Down syndrome. Many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of affected adults. This study reports the outcome of a survey of group homes serving adults with ID and dementia, explores the onset, duration and effects of dementia, and speaks to the impact of these on planning for community care of adults with ID. It also examines emerging community care models that provide for “dementia capable” supports and services. Two models, “aging in place” and “in place progression” are examined, as well as “referral out” reactions, with regard to care practices and critical agency decision making.
Meeting the needs of people with learning disabilities and mental health problems: a review
- Author:
- COYLE Dave
- Journal article citation:
- Mental Health and Learning Disabilities Care, 3(12), August 2000, pp.408-411.
- Publisher:
- Pavilion
People with learning disabilities are vulnerable to the same mental health problems as the general population. However, mental health services are often reluctant to accept them, while learning disability services tend to lack the skills and resources needed to meet their additional mental health needs. Inadequacy of diagnostic and assessment processes too may hamper the provision of appropriate treatment. Reviews the needs and service provision for this neglected and challenging group, and the role of the learning disability nurse.
Adults with Down Syndrome and Alzheimer's Disease:comparison of services received in group homes and in special care units
- Author:
- CHAPUT Jenifer L.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.197-211.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
An increasing number of people with Down syndrome are at risk of dementia resulting from Alzheimer's disease. Many reside in community group homes. When they are affected by dementia, the challenge to agencies providing group homes is how to best provide continued housing and provide effective dementia-related care management. In the general population, long term care is typically provided in nursing facilities, often in special care units (SCUs). This study evaluated select factors found in group homes andSCUs to determine which is able to provide a better quality of life for people with Downsyndrome affected by dementia. Results indicate that group homes can provide conditions associated with better quality of life and, additionally, operate with lower staffing costs due to the non-utilization of medical staff.