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Mainstream in-patient mental health care for people with intellectual disabilities: service user, carer and provider experiences
- Authors:
- DONNER Ben, MUTTER Robin, SCIOR Katrina
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 23(3), May 2010, pp.214-225.
- Publisher:
- Wiley
Government guidelines promote the use of mainstream mental health services for people with intellectual disabilities whenever possible. This study aimed to explore how people with intellectual disabilities fare in such services, by examining how service users with intellectual disabilities, their carers and service providers perceive mainstream in-patient mental health services, and to what extent their accounts are in line with key policy objectives. Face-to-face interviews with 9 service users, 9 carers and 4 community nurses were completed and analysed on a case by case basis using interpretative phenomenological analysis. The results were followed up in focus groups with service providers. The positive aspects of admission included the provision of respite, particularly for carers, and good basic care. These were outweighed by a perception of the admission as disempowering and lacking in flexible treatment provision. Accessing help emerged as a major problem, as well as the prospect of staff neglecting the specific needs of people with intellectual disabilities. The article concludes that, while there were some indications of improvements in line with recent policies and guidance, mainstream services seem a long way off realising aims of easy accessibility, person-centred practices and active partnership with intellectual disability services.
Delivering the Bamford vision: the response of the Northern Ireland Executive to the Bamford Review of Mental Health and Learning Disability: action plan 2012-2015
- Author:
- NORTHERN IRELAND. Department of Health, Social Services and Public Safety
- Publisher:
- Northern Ireland. Department of Health, Social Services and Public Safety
- Publication year:
- 2012
- Pagination:
- 69
- Place of publication:
- Belfast
An action plan for the implementation of the recommendations set out in the Bamford Review of Mental Health and Learning Disability, an independent review of legislation, policy and service provision, concluded in August 2007. Broadly the review called for: continued emphasis on promotion of positive mental health; reform of mental health legislation; a continued shift from hospital to community-based services; development of a number of specialist services, to include children and young people, older people, those with addiction problems and those in the criminal justice system; and an adequate trained workforce to deliver these services. The plan sets out in detail key actions aimed at: promoting positive health, wellbeing and early intervention; supporting people to lead independent lives; supporting carers and families; providing better services to meet individual needs; and developing structures and a legislative framework. (Edited publisher abstract)
Mental health crisis information for people with intellectual disabilities
- Authors:
- HEMMINGS Colin, OBOUSY Shaymaa, CRAIG Tom
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(3), 2013, pp.135-142.
- Publisher:
- Emerald
This study explores whether mental health crisis information could be modified to be made accessible and meaningful for people with intellectual disabilities. Personalized information to help in a mental health crisis was recorded on folded A4 sized sheets that could be carried in a conveniently sized wallet. Service users were recruited from the psychiatry of learning disabilities outpatient clinics in Croydon, UK. A total of 20 service user participants who had mild intellectual disabilities as well as mental health problems agreed to participate. Three quarters of the participants carried their crisis information wallets on a daily basis for six months before evaluation. They and their carers expressed positive feedback about them carrying the crisis information. No one carrying the information actually experienced a mental health crisis in the six months follow up period so their usefulness in such crises could not be evaluated. However, they were unexpectedly used in other non-mental health settings and reported to have been helpful. Although the sample size was small the findings suggested that the carrying of crisis information might be a helpful measure for some people with intellectual disabilities. A further, larger scale trial is warranted. (Edited publisher abstract)
Professional staff and carers’ views of an integrated mental health service for adults with learning disabilities
- Authors:
- SAMUELS Sarah, et al
- Journal article citation:
- Psychiatric Bulletin, 31(1), January 2007, pp.13-16.
- Publisher:
- Royal College of Psychiatrists
A study was undertaken to investigate the views of professional staff and paid and informal carers’ views of a new integrated mental health service for people with learning disabilities. Twenty semi-structured interviews were conducted and transcribed. Most staff and carers were generally satisfied with the in-patient facility. However, information exchange, ward rounds and the ward environment were identified as areas requiring improvement. Many of the participants had no previous experience of supporting a person with learning disabilities and mental health problems in an in-patient setting. However, over time they became supportive of the mental health service and provided valuable input in improving the service provision for people with learning disabilities.
An evaluation of the Mencap family adviser service in northern Ireland
- Authors:
- MCKEOWN Paschal, et al
- Journal article citation:
- Child Care in Practice, 7(4), December 2001, pp.273-287.
- Publisher:
- Taylor and Francis
Mencap (NI) provides and largely funds an 'information and Advice Service' aimed primarily at family carers and people with learning disabilities. This article describes the service and the evaluation process used. Information was obtained from four stakeholder groups, namely service-users; service-funders; the leaders of learning disability teams in Health and Social Services (HSS) Trusts and the chair persons of Mencap local societies. The feature of a good information and advice service are noted, along with the developments required to the existing service, In the main these relate to improved partnership working with statutory agencies and increasing the profile of the service with services, family carers and people with learning disabilities.
Access to mental health services: the experiences of people with intellectual disabilities
- Authors:
- WHITTLE Erin Louise, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(2), 2019, pp.368-379.
- Publisher:
- Wiley
Background: People with intellectual disability experience higher rates of mental health disorders than the rest of the population, and expert opinion holds that multiple barriers prevent people with intellectual disability from accessing appropriate services. Methods: A qualitative study was designed to explore the lived experience of barriers and enablers to access to mental health services among people with intellectual disability. Interviews and focus groups were conducted with people with intellectual disability, carers and service providers. Results: Barriers and enablers were identified across four key dimensions of access: utilisation of services; service availability; relevance, effectiveness and access; and equity and access. These factors operated at both systemic and personal levels. Conclusions: The findings from this study provide empirical evidence of anecdotal experiences of access to mental health services and provide insight into the ways users, carers and service providers navigate an often hostile system and indicate further directions for research. (Edited publisher abstract)
Social inclusion and mental health
- Editors:
- BOARDMAN Jed, et al, (eds.)
- Publisher:
- RCPsych Publications
- Publication year:
- 2010
- Pagination:
- 384p.
- Place of publication:
- London
A wider range of contributors - including academics, consultants, people who use services and their carers - bring together varied experiences, evidence, research and everyday practices on the social inclusion of people mental health problems. The report looks at how psychiatrists and mental health workers can facilitate the social inclusion of people with mental health problems. Part 1 looks at what social exclusion is and how it is relevant to psychiatry. Part 2 examines the scope of social exclusion covering: disadvantage and poverty; how people are excluded; the exclusion of specific groups with mental health problem, ‘finding acceptance: the experiences of people who use mental health services’, and carers’ perspectives on social inclusion. Part 3 looks towards a future of socially inclusive practice with psychiatry services. The publication is relevant for mental health professionals, medical educators, policy makers and mental health service providers.
Involving users and carers in the care programme approach
- Author:
- -
- Journal article citation:
- Integrate News, 67, December 1998, pp.19-21.
Reports on research into the level of involvement users and carers have in care management of mental health services. The project is an example of participatory research as users and carers were involved from the beginning in the design of the project.
Social care and mental health indicators from the national indicator set 2010-11 final release
- Author:
- NATIONAL HEALTH SERVICE. Information Centre for Health and Social Care
- Publisher:
- National Health Service. Information Centre for Health and Social Care
- Publication year:
- 2012
- Pagination:
- 24p.
- Place of publication:
- Leeds
Information on indicators in the National Indicator Set relating to social care and mental health services for 2010-11 (the last year of these indicators, which are being replaced by the Adult Social Care Outcomes Framework for 2011-12 onwards) is presented in this report. It covers 8 indicators relating to promoting independence and choice, user experience, carers' services, and promoting social inclusion. The social care information is provided at council level for councils with adult social services responsibilities in England, and the mental health information is supplied by NHS trusts providing specialist mental health services.
User participation in health and social care research: voices, values and evaluation
- Editors:
- NOLAN Mike, et al, (eds.)
- Publisher:
- Open University Press
- Publication year:
- 2007
- Pagination:
- 232p., bibliog.
- Place of publication:
- Maidenhead
User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice.