Search results for ‘Subject term:"learning disabilities"’ Sort:
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Lines in the sand: final report
- Authors:
- SIMONS Ken, RUSSELL Oliver
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 2003
- Pagination:
- 129p.
- Place of publication:
- Bristol
A research project on the interface between mental health and learning disability services. The main objective of this research project, which was funded by the South West Regional NHS Research and Development Directorate, was to carry out an audit of ‘pressure points’ within services for people with learning disabilities and mental health needs in South West England. A retrospective two-year census of case files (n=348) was carried out, supplemented by in-depth interviews with key clinical staff (n=30), and semi-structured interviews with commissioners from Valuing People Partnership Boards (n =10) and Local Implementation Teams for the National Service Framework for Mental Health (n=9). The main outcome measures were descriptions of patterns of service use, along with the presence (or otherwise) of disputes and/or joint working, set in the context of the views of providers and commissioners.
Access to work blocked as disabled people remain unaware of initiative
- Author:
- TAYLOR Amy
- Journal article citation:
- Community Care, 21.8.03, 2003, pp.16-17.
- Publisher:
- Reed Business Information
Reports on how many employers and disabled people are still unaware of the government's Access to Work scheme. Highlights the lack of publicity given to the scheme
Way ahead
- Author:
- -
- Journal article citation:
- Mental Health Today, March 2003, pp.12-13.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Looks at the work of Advance, a Housing Association providing supported accommodation for people with mental health problems and other special needs.
Prader-Willi syndrome: clinical picture, psychosocial support and current management
- Authors:
- WIGREN M., HANSEN S.
- Journal article citation:
- Child: Care, Health and Development, 29(6), November 2003, pp.449-456.
- Publisher:
- Wiley
Maps the need for psychosocial support and current management of children and adolescents with Prader–Willi syndrome (PWS), a rare, genetically based disorder occurring in about 1 in 15,000 live-born children whose cardinal symptoms include low muscle tone at birth, overeating, motor and speech impairments, delayed pubertal development, cognitive dysfunctions and psychiatric symptoms. To raise a child with PWS is challenging for parents and requires support from multiprofessional habilitation services. Parents of 58 children with PWS aged 5–18 who received their diagnosis at a mean age of 2.5 completed questionnaires covering clinical, diagnostic and psychosocial issues. Growth hormone treatment was given to 72% and 63% were not overweight. Early neuropsychiatric symptoms were common, some related to obesity. Most parents wanted information on availability of external resources and future child needs. Few needed family-directed support. The overall impression is that the disorder is managed relatively well. Even so, PWS symptoms typically exacerbate over time and consequently parents need continuous support throughout childhood and adolescence. Greater attention should be paid to idiosyncrasies in cognitive functioning and to clinical markers of neuropsychiatric problems.
Exposure anxiety: the invisible cage: an exploration of self-protection responses in the autism spectrum and beyond
- Author:
- WILLIAMS Donna
- Publisher:
- Jessica Kingsley
- Publication year:
- 2003
- Pagination:
- 336p.
- Place of publication:
- London
Exposure anxiety is increasingly understood as a crippling condition affecting a high proportion of people on the autism spectrum. To many it is an invisible cage, leaving the person suffering from it aware, but buried alive in their own involuntary responses and isolation. This book describes the condition and its underlying physiological causes, and presents a range of approaches and strategies that can be used to combat it. Based on personal experience, the book shows how people with autism can be shown how to emerge from the stranglehold of exposure anxiety and develop their individuality. It progressively shapes the individual torn between experiencing it as the sanctuary and the prison. Exposure Anxiety makes it hard to stand noticing you are noticing. It can make love a form of torture, repel you from the sound of your own voice, make you meaning deaf to your own words and those of others and compel you to avoid, divert from or retaliate against the very things that which most have the power to reach you. Exposure Anxiety progressively co-opts the identity of the person as separate to the condition or it leaves them aware but buried alive in their own involuntary responses and isolation. Exposure Anxiety is the involuntary social-emotional self-protection response that needs no enemy. It turns the world upside-down, makes no yes and yes no and co-opts and defies conventional, non-autistic teaching techniques.
Service for all: making it happen; a report from the Service for All conference held on 18 June 2003 in Edinburgh
- Author:
- SERVICE FOR ALL CONFERENCE
- Publisher:
- Scottish Human Services Trust
- Publication year:
- 2003
- Pagination:
- 42p.
- Place of publication:
- Edinburgh
The conference aimed to bring people together to exchange information, examples of good practice and ideas about making NHS services more accessible. The main elements of the event were to: understand access from the perspective of people with disabilities, people with mental health problems and older people, what helps and what are the main problems?; identify good practice in Scotland and start a database of good practice; share ideas around practical solutions and on ways to get advice and help from others; and inform ongoing development of policies and advice for the Scottish Executive and the NHS in Scotland on how the NHS and people who use services can work together to improve access. Under the Disability Discrimination Act 1995, the NHS and other service providers have to think actively about how to make services accessible. This legislation is important but making this happen is not just about following legislation. It is about people sharing a vision of what a service for all looks like, of imagining better and working together to make it real.
Specific disorders and your child's behaviour: a parent's guide to behavioural phenotypes
- Authors:
- BARNETT Diane, TURK Jeremy
- Publisher:
- Contact a Family
- Publication year:
- 2003
- Pagination:
- 8p.
- Place of publication:
- London
'Behavioural phenotype' is a medical term which describes behaviour associated with specific disorders, particularly those which lead to learning disabilities. These disorders may result from a genetic or other biological cause e.g. an infection early in life. These behaviours may include: common challenging behaviours: emotional and temperamental tendencies; learning disability; and increased likelihood of psychiatric and psychological difficulties. Knowing the cause of the child's condition and the reason for his or her behaviour can be helpful. Sometimes, a pattern of behaviour may be suggestive of the presence of an underlying genetic cause. Not all behavioural difficulties originate in a genetic disorder. They may have other causes such as family stresses and relationships, conduct disorders and oppositional defiant disorder.
Mental health officer services: structures and supports
- Author:
- SCOTLAND. Scottish Executive. Social Research
- Publisher:
- Scotland. Scottish Executive. Social Research
- Publication year:
- 2003
- Pagination:
- 99p.
- Place of publication:
- Edinburgh
The role of the Mental Health Officer (MHO) in Scotland has evolved in recent years as a consequence both of changes in the patterns of service provision for people with mental health problems or a learning disability and in response to changes and developments in legislation affecting these groups. The changing legislative and service landscape in mental health and learning disability poses significant challenges relating to the capacity and capability of current MHO services in Scotland.
Suspect transactions
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 3.4.03, 2003, pp.46-47.
- Publisher:
- Reed Business Information
Presents a case study of a women with mental health problems and learning difficulties who depended on her in-laws for support. Looks at the process of risk assessment when her community social worker suspected she was being abused.
Football for fun
- Author:
- DANFORTH Jane
- Journal article citation:
- A Life in the Day, 7(1), February 2003, pp.25-28.
- Publisher:
- Emerald
Describes the Football for Fun group which is funded by the Changing Faces and Places project. It is a partnership between several organisations which hires a football coach and organises football for people with mental health problems and learning difficulties.