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The impact of personalisation on the lives of the most isolated people with learning disabilities: a review of the evidence
- Authors:
- HARFLETT Naomi, TURNER Sue, BOWN Helen
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2015
- Pagination:
- 12
- Place of publication:
- Bath
This paper provides a short summary of the findings of an evidence review of impact of personalisation for the most isolated people with learning disabilities. The study focused in particular, but not exclusively, on people in residential care, and people in out of area placements. As well as searching for evidence on the impact of taking a general personalised or person-centred approach, the research also looked at the impact of specific mechanisms including personal budgets, direct payments and person-centred planning. Systematic searches were conducted using an academic search engine, the Social Care Online database, reference lists and websites and publication databases of relevant organisations. The review has revealed a clear gap in the evidence around how personalisation has impacted on the lives of the most isolated people with learning disabilities. As no research was found which looked at this specific question, the conclusions should be considered as tentative but they appear to suggest that: some of the most isolated people with learning disabilities are missing out on personalised approaches to care altogether; some of the most isolated people with learning disabilities do not have access to the support or resources to get the most positive outcomes from particular elements of personalisation; and some of the most isolated people are also less likely to have access to advocacy - the mechanism which should be in place to address this inequality. (Edited publisher abstract)