Search results for ‘Subject term:"learning disabilities"’ Sort:
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Health in people with intellectual disabilities: current knowledge and gaps in knowledge
- Author:
- VAN VALK LANTMAN-DE SCCHROJENSTEIN Henny M.J.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(4), December 2005, pp.325-333.
- Publisher:
- Wiley
Based on a review of the 2003 literature, this paper presents an overview of our knowledge on physical, mental and social well-being in people with intellectual disabilities. The results found that physical well-being is threatened by handicap-related conditions, syndrome-related health problems and lifestyle characteristics. Gaps in knowledge include insufficient evidence on health disparities, the lack of comparability of data on the prevalence of ill heath, lack of expertise in relation to communication problems and the fact that all knowledge is based on research in developed countries, while people with intellectual disabilities in developing countries face the same or even greater health problems. Recommendations concerning evidence, education and empowerment are formulated.
Ageing carers and intellectual disability: a scoping review
- Authors:
- MAHON Aoife, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 20(4), 2019, pp.162-178.
- Publisher:
- Emerald
Purpose: Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK. Design/methodology/approach: A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings. Findings: Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed. Originality/value: This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers. (Edited publisher abstract)
Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia
- Authors:
- HEMSLEY Bronwyn, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 43(4), 2018, pp.506-514.
- Publisher:
- Taylor and Francis
Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: The authors undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR. (Edited publisher abstract)
Why is it important to consider so-called 'invisible' older people in UK healthcare?
- Authors:
- TINKER Anthea, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 15(4), 2014, pp.187-196.
- Publisher:
- Emerald
Design/methodology/approach: Using information obtained from academic literature, government statistics and other publications from relevant organisations, this paper discusses older people who are in groups that are not readily visible to policy makers and practitioners. The authors investigated one 'invisible' group each and comparisons and conclusions were then made collaboratively. The six underserved populations covered were older people with physical disabilities, learning disabilities, those from LGBT communities, older prisoners, older people with chronic long-term mental health problems (in particular depression and dementia) and those who are homeless. The issues of health needs, access to health care and provision of services are discussed. Findings: Many groups of older people seem to be absent from statistics and from policy making. The paper suggests that there needs to be more research to identify the scale of any problems and how they may be solved. Practical implications: There are practical implications for health and social care professionals if they do not recognise that there are groups in society about whom little is known. Lack of knowledge and empathy may affect their approach to these groups. (Edited publisher abstract)
Health inequalities experienced by children and young people with intellectual disabilities: a review of literature from the United Kingdom
- Authors:
- ALLERTON Lindsay A., WELSH Vicki, EMERSON Eric
- Journal article citation:
- Journal of Intellectual Disabilities, 15(4), December 2011, pp.269-278.
- Publisher:
- Sage
- Place of publication:
- London
Evidence has highlighted that not only do people with intellectual disabilities have poorer health, but that the differences in health status are to a significant extent avoidable and consequently unjust. The aim of this literature review is to synthesise evidence on the prevalence and determinants of health conditions and impairments among children and young people with intellectual disability in the United Kingdom. Several databases were systematically searched for relevant studies published in 2010-2011. In addition, evidence from a 2002 and a 2010 literature review on health inequalities among individuals of all ages with intellectual disability was also reviewed. The review concludes that children with intellectual disability in the UK are likely to experience health inequalities in a number of areas, specifically in relation to health conditions that may increase the risk of serious ill health in later life, reduce quality of life, and act as barriers to social inclusion. The evidence suggests that these health inequalities are associated with several preventable environmental determinants.
Gastrostomy and children: a review of the literature
- Author:
- HERRINGTON Peter
- Journal article citation:
- Children and Society, 15(5), 2001, pp.375-386.
- Publisher:
- Wiley
Children with developmental delays often suffer feeding difficulties. It has become common for those with a severe likelihood of malnutrition to be considered for alternative methods of nutritional intake, often gastrostomy. As part of a pilot study investigating the effects of gastrostomy on the child and their family, the authors conducted a literature review. This paper describes the method and findings of the literature review and concludes with a discussion of the topics raised. The main conclusion is that although the need for gastrostomy in this group of children has shown to be effective in maintaining adequate weight gain and nutritional intake, the support given to the family prior to, and after the operation is inadequate.
Gap analysis of service needs for adults with neurodevelopmental disorders
- Author:
- BURKE Shanna L.
- Journal article citation:
- Journal of Intellectual Disabilities, 23(1), 2019, pp.97-116.
- Publisher:
- Sage
- Place of publication:
- London
In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader–Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for individuals with intellectual and developmental disabilities. Current models of service delivery, the efficacy of these services, and remaining gaps in the need fulfilment of individuals within the six diagnostic categorizations of interest were examined. Severity level within each diagnostic category was plotted on a matrix according to whether the needs of individuals were minimal, moderate, severe, or universal. The study found that sexual health education, socialization, and adult-focused medical care are universal needs among the six conditions. The study indicates that health-care professionals must work toward addressing the many unmet needs in comprehensive life span care services for adult individuals with neurodevelopmental disorders. (Edited publisher abstract)
Do health consultations for people with learning disabilities meet expectations? A narrative literature review
- Authors:
- CHAPMAN Hazel M., LOVELL Andrew, BRAMWELL Ros
- Journal article citation:
- British Journal of Learning Disabilities, 46(2), 2018, pp.118-135.
- Publisher:
- Wiley
Aim: To explore the benefits and disadvantages of annual health checks for people with learning disabilities, including: What are the rationales and outcome measures for health checks? How well do health checks meet the needs of people with learning disabilities? What areas does research in this topic need to focus on in the future? Background: Health consultations are an interpersonal activity that influence health outcomes and attitudes towards self and health professionals for people with learning disabilities. Annual health checks have been introduced to improve health inequalities for people with learning disabilities. Method: A narrative literature review of health care for people with learning disabilities was undertaken to evaluate health care for this population, and specifically the outcomes from annual health checks. Findings: While annual health checks have made some improvements in terms of health outcomes, attendance for appointments is still low, provision is variable and experiences of health checks for people with learning disabilities are under‐researched. Conclusions: Service user‐led research into their health experiences is needed. Research into the attitudes and experiences of health professionals in relation to people with learning disabilities is needed. Healthcare inequalities are only being partially addressed - improvement is needed in terms of service user experience and engagement. (Edited publisher abstract)
The 'Here to Stay' project 2010-2015: access to services, experience and outcomes of care for people with intellectual disabilities from black and minority ethnic communities, including new migrants
- Authors:
- SALLAH David, et al
- Publishers:
- University of Wolverhampton, Association for Real Change
- Publication year:
- 2015
- Pagination:
- 129
- Place of publication:
- Wolverhampton
Reports on findings from a five year research project conducted by researchers from University of Wolverhampton in partnership with the Association for Real Change into access to services by people with learning disabilities from Black and Minority Ethnic Communities (BME), including new migrants and considered their experience and outcomes of care. The research investigates the numbers and prevalence, needs and quality of care experienced by people with learning disabilities requiring support in England. It also looks at how statutory, private, voluntary sectors and others should engage with the minority communities to promote their wellbeing and improve their life chances. Data were collected from an online survey of 575 practitioners, interviews with 73 people with learning disabilities and their family carers. An additional 34 people participated in two consensus building conferences and approximately 100 people, including service providers attended a community engagement event to comment on solutions. It also draws on findings from a review of the literature. Research findings report that: that data collection around BME groups is unreliable; that services often don't distinguish between people from BME communities and new migrants, despite their needs potentially being very different; communication between practitioners and service users needs improving; and the workforce require better training to meet the needs of BME groups. (Edited publisher abstract)