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Responding to masturbation in supporting sexuality and challenging behaviour in services for people with learning disabilities: a practice and research overview
- Authors:
- CAMBRIDGE Paul, CARNABY Steve, McCARTHY Michele
- Journal article citation:
- Journal of Learning Disabilities, 7(3), September 2003, pp.251-266.
- Publisher:
- Sage
Masturbation is frequently referenced as a key issue for supporting the sexuality of people with learning disabilities, yet the subject has received little attention in the professional and academic literature. This article provides an overview of masturbation in relation to service responses and user support in sexuality work in learning disability more widely, drawing in evidence and experience from sex education, clinical work and staff training. Issues such as gender, sexuality, culture and consent are addressed and some of the commonly held myths and assumptions about sexuality and masturbation are challenged. The discussion and related suggestions are designed to be of value to service managers and practitioners, particularly those involved in sexuality work and one-to-one support.
The HIV testing of a man with learning disabilities: informed consent confidentiality and policy
- Author:
- CAMBRIDGE Paul
- Journal article citation:
- Journal of Adult Protection, 3(4), November 2001, pp.23-28.
- Publisher:
- Emerald
Explores the issues of informed consent, confidentiality, disclosure, policy and the wider consequences of HIV testing are issues in relation to a man with learning disabilities who tested positive for HIV. Summarises and identifies the events and outcomes for policy and practice in HIV risk management and adult protection in services for people with learning disabilities.
Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research
- Authors:
- CAMBRIDGE Paul, FORRESTER-JONES Rachel
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 28(1), March 2003, pp.5-23.
- Publisher:
- Taylor and Francis
The importance of participative research methodologies is now widely acknowledged. A case study using individualised communication for interviewing people with intellectual disability in outcome and quality of life research is reported. The methodology and processes employed are described and lessons for the wider application of the model identified. In collaboration with Somerset Total Communication and local speech and language therapists, researchers from the Tizard Centre developed a flexible communication strategy for involving service users, drawing on core, local and individual vocabularies and using signs, graphic symbols and photographs to supplement spoken English. Individualised communication was used both to ascertain informed consent to participation in the research and to conduct the user interview. The initiative was part of a wider study looking at the outcomes and costs of community care 12 years on from de-institutionalisation. The approach was found to facilitate user participation compared with previous follow-ups, with wider lessons evident for user involvement.