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Autonomy in relation to health among people with intellectual disability: a literature review
- Authors:
- WULLINK M., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 53(9), September 2009, pp.816-826.
- Publisher:
- Wiley
Since the 1990s, individualisation, participation, normalisation and inclusion have been the main principles of care for people with intellectual disability. Autonomy has become an increasingly important issue. This review of the literature tried to answer the question: how do people with intellectual disabilities exercise autonomy in relation to health? Searches in Cochrane, Medline and PsycINFO were based on the following aspects of autonomy: self-determination, independence, self-regulation and self-realisation. Thirty-nine of 791 articles met our criteria, including 14 on self-determination, seven on independence, 15 on self-regulation and three on self-realisation. In spite of decades of promoting autonomy, the exercise of autonomy in relation to health has so far rarely been an issue in the literature.
Making life work: freedom and disability in a community group home
- Author:
- LEVINSON Jack
- Publisher:
- University of Minnesota Press
- Publication year:
- 2010
- Pagination:
- 304p.
- Place of publication:
- Minneapolis, MN
This ethnography is based on more than a year of research in a New York City group home for adults with intellectual disabilities. Group homes emerged in the US in the 1970s as a solution to the failure of large institutions. However critics claim that community services have not, for the most part, delivered on the promises of rights, self-determination, and integration and portray group homes simply as settings of social control. The author shows how group homes need the knowledgeable and voluntary participation of residents and counsellors alike. For the counsellors it is their workplace but for residents group home work involves working to become more autonomous. It is suggested that rather than being seen as the antithesis of freedom, the group home must be understood as demonstrating the fundamental dilemmas between authority and the individual that are seen more broadly in contemporary liberal societies. Drawing on his experience as a group home counsellor, the author demonstrates that a group home depends on the very capacities for independence and individuality it aims to cultivate in its residents. Chapters include: an introduction to disability in the context of the community and everyday life; how the group home works; group home technologies including administration and plans; and managing risk. The book concludes with a chapter entitled “Making Life Work”.
Independent living: around in a circle
- Author:
- NEVILLE Mandy
- Journal article citation:
- Community Care, 29.2.96, 1996, p.4.
- Publisher:
- Reed Business Information
A circle of support is a group of friends invited by someone with a learning difficulty to get together regularly to plan, dream and act on that person's behalf. The author explains how the circle of support works and argues that is gives strength and confidence to the participants, providing a natural alternative to the inequality of dependence.
Independent Living: the numbers game
- Author:
- SIMONS Ken
- Journal article citation:
- Community Care, 29.2.96, 1996, p.3.
- Publisher:
- Reed Business Information
Argues that the past 15 years have seen the emphasis on individual needs, but now, the time has come to use collective action to influence events for people with learning difficulties.
Independent living: the right to choose
- Author:
- WARD Linda
- Journal article citation:
- Community Care, 29.2.96, 1996, p.1.
- Publisher:
- Reed Business Information
More and more people with learning difficulties are making heard their views as they progress gradually towards the independent lives they crave. The author looks at the achievements of people with learning difficulties, and the obstacles which face them in their quest for choice and control over their lives.
Who's in control: decision-making by people with learning difficulties who have high support needs
- Author:
- EDGE James
- Publisher:
- Values into Action
- Publication year:
- 2001
- Pagination:
- 56p.
- Place of publication:
- London
Drawing on 18 months of research with people who have high support needs, VIA demonstrates how all people with learning difficulties can be enabled to be in control of their lives and how it can be demonstrated that those with higher support needs are indeed in control.
A time to care
- Author:
- HOLMSTROM Radhika
- Journal article citation:
- Care and Health Magazine, 38, 18.6.03, 2003, pp.18-19.
- Publisher:
- Care and Health
Despite government commitments to independent living 93% of children and 60% of adults with learning difficulties live with their parents. This article looks at how this can be changed.
Bridging the divide at transition: what happens for young people with learning difficulties and their families?
- Authors:
- HESLOP Pauline, et al
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 140p.,bibliog.
- Place of publication:
- Kidderminster
This report is based on a survey of 283 families, interviews with parents and young people with learning difficulties. Contents include: the need for transition planning; moving between children's and adult services; what affects a young person's move towards independence; what families and young people themselves say would improve the transition experience; examples of innovative practice.
Journey to independence: what self-advocates tell us about direct payments; a joint research project from Swindon People First and the Norah Fry Research Centre
- Authors:
- GRAMLICH Stacey, et al
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 137p.
- Place of publication:
- Kidderminster
Very few people with learning disabilities get direct payments, yet many see it as an Important part of their journey to independence. This report examines: the best ways to support people with learning disabilities to get direct payments; how people with learning difficulties have gained from direct payments; and the best ways of giving information and publicising direct payments.
Falling through the gap not an option
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 19.09.02, 2002, pp.46-47.
- Publisher:
- Reed Business Information
Young people with profound and complex learning difficulties have often been left out of the process of planning their own futures, but now a project set up in Wales aims to give them more options by focusing on each individual and creating personalised portfolios.