Search results for ‘Subject term:"learning disabilities"’ Sort:
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Health and social needs of people with low intelligence
- Authors:
- SCHNEIDER Justine, CLEGG Jennifer
- Journal article citation:
- Mental Health Review Journal, 14(2), June 2009, pp.22-27.
- Publisher:
- Emerald
This paper asks whether intellectual ability determines an individual's potential to live well and deal with the checks and obstacles that life presents. A secondary analysis of the ONS survey of psychiatric morbidity, 2000 was undertaken. It was fond that people with low intelligence was significantly more likely to be a smoker, have problems with paperwork and be renting their home, and a significant subgroup was more likely to be friendless. The pursuit of social justice and social inclusion may require greater attention to be paid to the health and well-being of people with below-average intelligence.
Ageing carers and intellectual disability: a scoping review
- Authors:
- MAHON Aoife, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 20(4), 2019, pp.162-178.
- Publisher:
- Emerald
Purpose: Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK. Design/methodology/approach: A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings. Findings: Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed. Originality/value: This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers. (Edited publisher abstract)
How can we ensure that the health needs of people with learning disabilities are identified and met?
- Author:
- RESEARCH IN PRACTICE FOR ADULTS
- Publisher:
- Research in Practice for Adults
- Publication year:
- 2007
- Pagination:
- 6p.
- Place of publication:
- Dartington
Services have not been good at responding to the health needs of individuals with learning disabilities, even when people have been resident in NHS facilities. This briefing summarises the health needs of people with learning disabilities and what can be done by those providing care to help close the health gap.
Mental health and social care needs of older people with intellectual disabilities
- Authors:
- STRYDOM Andre, HASSIOTIS Angela, LIVINGSTON Gill
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(3), September 2005, pp.229-235.
- Publisher:
- Wiley
In this study all adults with intellectual disabilities (ID) without Down syndrome (DS) aged 65+ living in the London boroughs of Camden and Islington were identified. The Psychiatric Assessment Schedule for Adults with a Developmental Disability (PASADD) checklist was used to detect psychiatric disorder, the Vineland behaviour scale (maladaptive domain) for problem behaviours and the Dementia Questionnaire for persons with Mental Retardation (DMR) to screen for dementia. Carers reported health problems and disability. Needs were measured with the Camberwell Assessment of Need for adults with Intellectual Disabilities (CANDID-S). A total of 23 older people with ID (13 had mild ID and nine more severe ID) and their carers participated in the survey. In which, 74% had one or more psychiatric symptoms; 30% were previously known with a diagnosis of mental illness. One-third of the older people screened positive for dementia. Three quarters of the group had physical health problems, 74% had poor sight, 22% had hearing loss and 30% had mobility problems. Carers rated unmet needs for accommodation (22%), day activities, and eyesight and hearing. The people with ID rated unmet needs to be social relationships (44%), information and physical health. The authors conclude that older people with ID without DS have considerable prevalence of health problems and psychiatric disorders, including symptoms of functional decline and dementia. Such symptoms are often not recognised and further research into their needs is a priority.
Paradoxes, locations and the need for social coherence: a qualitative study of living with a learning difficulty
- Authors:
- CLARKE Charlotte L., et al
- Journal article citation:
- Disability and Society, 20(4), June 2005, pp.405-419.
- Publisher:
- Taylor and Francis
Policy rhetoric over recent decades has promoted social inclusion of the more vulnerable sectors of society, such as people with learning difficulties. This study aimed to describe the experiences of adults with learning difficulties in north-east England and their family and to appraise their care. Thirty-five people with a learning difficulty and/or a family member were interviewed. A model of social coherence was developed that moves beyond the self-limiting debates about social inclusion and exclusion. It is underpinned by a sense of location for the person with a disability in relation to services and carers, family and community, dependency and risk, temporality and space, events, control and society. Key recommendations are for services to know the individual and his/her family; to be responsive to individual needs; to enhance the capacity of families and communities to support people with difficulty in learning; and to help these people to feel more valued.
Hidden depths
- Author:
- ROSE Steven
- Journal article citation:
- Health Service Journal, 16.11.95, 1995, p.37.
- Publisher:
- Emap Healthcare
People with learning disabilities may have other health problems or difficulties that make it harder for them to lead an ordinary life. For example psychiatric illnesses, behavioural and communication problems, obesity and respiratory problems. Although the Department of Health has acknowledged this is a 'Health of the Nation' strategy report it can be very hard for them to gain access to primary and secondary health care.
The same but different
- Author:
- TURNBULL John
- Journal article citation:
- Nursing Times, 16.8.95, 1995, p.50.
- Publisher:
- Nursing Times
Why do people with learning disabilities often receive inferior health care in the community compared with the rest of the population. Calls for an end to this thoughtless practice.
Experiences of reciprocal caring among adults with an intellectual disability caring for an older family member
- Authors:
- TRUESDALE Maria, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 18(3), 2021, pp.240-248.
- Publisher:
- Wiley
Background: Internationally, many children and adults with intellectual disabilities are continually being supported by their family members to live within their family home. However, as a consequence of the ageing process some family members can struggle to continue to care because of their failing physical and/or mental ill-health. This has resulted in a shift in the parameters of the relationship for some adults with intellectual disabilities with their formerly dependent role evolving into a caregiving one. This had become known as “reciprocity” or “mutual support.” Limited information exists about these “hidden carers” and what services are available to support them. Aim: This article explored the lived experiences of nine adults with intellectual disabilities who provided emotional and tangible support to an ageing family member. Method: A qualitative methodology was employed using semi-structured interviews. Nine participants with mild-to-moderate intellectual disabilities were interviewed within one region of the United Kingdom. The interviews were analyzed using thematic analysis. Findings: Five themes emerged within these narrative accounts: natural transition to caring; the health needs of the ageing family member; support; impact of caregiving and future planning. Discussion: The needs of these unknown hidden carers, and also ageing family members, are immediate and urgent. Policy makers, commissioners and service providers need to examine the type of “in-house” support provided to these new carers if they are to continue living within their family home with their ageing family member, who will also need additional support. Neglecting both cohorts will lead to greater costs to services in the longer term and seriously threaten the quality of life of people with intellectual disabilities and their family carers. (Edited publisher abstract)
The Learning Disabilities Mortality Review (LeDeR) programme: annual report 2017
- Author:
- UNIVERSITY OF BRISTOL. Norah Fry Research Centre
- Publisher:
- University of Bristol. Norah Fry Centre for Disability Studies
- Publication year:
- 2018
- Pagination:
- 40
- Place of publication:
- Bristol
Annual report summarising learning and recommendations from reviews of the deaths of 103 people with learning disabilities. The reviews were carried out as part of the Learning Disabilities Mortality Review (LeDeR) programme which was set up to support improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities. The report includes analysis of the demographic characteristics of those who died and information relating to their deaths, including place and cause of death. It reports that in 13 per cent of cases reviewed, the person’s health had been adversely affected by one or more of the following: delays in care or treatment; gaps in service provision; organisational dysfunction; or neglect or abuse. A total of 189 learning points were identified. The need for inter-agency collaboration and communication, awareness of the needs of people with learning disabilities, and the understanding and application of the Mental Capacity Act (MCA) were three of the most commonly reported learning points. (Edited publisher abstract)
Applying a general measure of frailty to assess the aging related needs of adults with intellectual and developmental disabilities
- Authors:
- McKENZIE Katherine, OUELLETTE-KUNTZ Helene, MARTIN Lynn
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(2), 2017, pp.124-128.
- Publisher:
- Wiley
Adults with intellectual and developmental disabilities often experience premature ageing and high levels of frailty. Frailty characterises health complexities and identifies adults with increased risks for adverse outcomes. This paper compared the prevalence of frailty amongst adults (aged 18-99 years) with and without intellectual and developmental disabilities. Frailty was measured using the Frailty Marker, based on the Adjusted Clinical Groups-Predicative Model, and was compared between a cohort of 51,138 adults with intellectual and developmental disabilities and a random sample of 3,272,080 adults without intellectual developmental disabilities. Approximately 9% of persons with intellectual and developmental disabilities were frail, compared to only 3% of persons without intellectual and developmental disabilities. Women, older adults, and adults with mental illness or addiction(s), were more likely to be frail. Adults with intellectual and developmental disabilities are increasingly vulnerable as they age. However, to appropriately characterise frailty in this population, measures should be more inclusive of health characteristics and fluctuations that are related to frailty. Future research should investigate alternative measures of frailty for persons with intellectual and developmental disabilities, including measures derived from standardised health assessments, to meet the needs of the ageing population. (Edited publisher abstract)