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The keys to life: improving quality of life for people with learning disabilities
- Author:
- SCOTLAND. Scottish Government
- Publisher:
- Scotland. Scottish Government
- Publication year:
- 2013
- Pagination:
- 178
- Place of publication:
- Edinburgh
‘The same as you?’ (2000) was the original 10-year programme designed to meet the needs of people with learning disabilities in Scotland. It was highly successful in shifting the balance of care to support more people to live in the community. This new 10-year strategy sets out a vision for improved partnership working to deliver better outcomes for people with learning disabilities, and their families and carers. It has more than 50 recommendations, most of which are aimed at health. The strategy also covers commissioning of public services; independent living; shifting the culture and keeping safe; breaking stereotypes; the needs of people with profound and multiple disabilities; criminal justice; and complex care. It includes good practice examples and case studies. Appendices include a glossary and weblinks to key organisations. (Edited publisher abstract)
The incidence and importance of hearing loss in people with severe learning disability: the evolution of a service
- Author:
- YEATES Sybil
- Journal article citation:
- British Journal of Learning Disabilities, 23(2), 1995, pp.79-84.
- Publisher:
- Wiley
Third and final report on a study of the hearing of people of with severe learning disability in Lewisham and North Southwark. Approximately 50% of the learning disabled population in Lewisham and North Southwark i.e. 500 people, have now been tested and this paper confirms earlier findings and stresses the importance of full audiological examination at key ages. In view of this a service has now been established in order to test the remaining people wherever possible, supervise those already found to have a hearing loss and, most importantly, to train all concerned in caring for the learning disabled who also have a hearing loss.
A ‘Suitable Person’: an ‘insider’ perspective
- Author:
- COLES Barbara
- Journal article citation:
- British Journal of Learning Disabilities, 43(2), 2015, pp.135-141.
- Publisher:
- Wiley
This article draws on a doctoral study carried out across seven counties in England which focused on twelve parents’ experiences of carrying out the role of a ‘suitable person’ (‘SP’) by managing a direct payment for an adult child (living in her/his own home) who has severe learning disabilities, autism and very complex support needs. Evidence came from naturally occurring qualitative data using (auto) ethnography. The research exposed how vital these parents’ expertise and skills are to their adult children, but also how they themselves are being used within the care system. This article considers whether research has greater impact if a researcher who has direct experience of the research problem has conducted it. It argues that ‘insider’ research can uncover a unique perspective of some of the issues that directly affect the lives of ‘SP’. In terms of ‘impact’, how seriously such research is taken, especially if the findings run counter to much of the existing literature, as it did in this study, remains to be seen. (Publisher abstract)
Commentary on “Overcoming challenges in diagnosing and treating cancers in people with intellectual disability: a case analysis”
- Authors:
- FOSTER Julie, MARKS Bob
- Journal article citation:
- Tizard Learning Disability Review, 19(2), 2014, pp.59-62.
- Publisher:
- Emerald
This commentary reflect on the implications for practice and lessons that can be drawn from the case study presented by Kiani Reza et al. It highlights weaknesses in the way that access to healthcare is currently facilitated for people with learning disabilities. (Publisher abstract)
Treat me right: better healthcare for people with a learning disability
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2004
- Pagination:
- 35p.
- Place of publication:
- London
This report confirms that the NHS has a poor track record in dealing effectively with people with a learning disability. As a result, people with a learning disability have poorer health, greater health needs and shorter lives. There is a real concern that negative, discriminatory attitudes and poor communication skills amongst healthcare staff contribute to this unfortunate state of affairs. For many years it has been NHS policy that people with a learning disability should have equal access to mainstream services. Despite good intentions on the part of the Government and healthcare services – as demonstrated by good policy and practice guidance, ministerial and prime ministerial commitment – people with a learning disability still get a poor deal.
Understanding the patient safety issues for people with learning disabilities
- Author:
- NATIONAL HEALTH SERVICE. National Patient Safety Agency
- Publisher:
- National Health Service. National Patient Safety Agency
- Publication year:
- 2004
- Pagination:
- 20p.
- Place of publication:
- London
The National Patient Safety Agency (NPSA) is the first patient safety organisation in the world to look at the specific patient safety risks for people with learning disabilities using healthcare services. Due to complex needs, many people with learning disabilities need additional support and services throughout their lives. This means they may have a longer and more intense involvement with the NHS than the vast majority of people. Studies suggest that there are 3-4 people with a severe learning disability for every 1000 people in the UK. Those with a mild learning disability are estimated at 6 in every 1000 people in the population, suggesting a total figure of about 1.2 million. This report outlines the work that the NPSA has done to find out what the patient safety priorities are for people with learning disabilities.
Seminars in the psychiatry of learning disabilities
- Editors:
- FRASER William, KERR Michael
- Publisher:
- Gaskell
- Publication year:
- 2003
- Pagination:
- 337p.,bibliog.
- Place of publication:
- London
- Edition:
- 2nd
The field of learning disability has advanced very rapidly, with changes in the climate of caring, diagnostic categories and concepts and our understanding of the diverse causes of learning disability. This edition contains chapters incorporating accounts of the psychological treatment of behavioural problems, consent and capacity, the underlying causes of learning disability and molecular genetics. Existing challenges facing learning disability specialists are also highlighted, including physical health needs, communication between professionals and those with learning disabilities and the organisation of comprehensive health care.
Promoting health supporting inclusion: healthy lives, part of the community; how nurses and midwives can support children and adults with learning disabilities and their families
- Authors:
- NHS SCOTLAND, SCOTLAND. Scottish Executive
- Publisher:
- NHS Scotland
- Publication year:
- 2003
- Pagination:
- 5p.
The Scottish Government has consulted users people about how to make the health of people with learning disabilities better. The new report about the work of nurses and midwives, “Promoting Health, Supporting Inclusion” outlines what all nurses and midwives can do to help people with learning disabilities stay healthy and happy. Improving the health of people with learning disabilities will help them live the kind of life they want in the community. The Government has already said that people with learning disabilities should be able to take an active part in their communities.
Improving services for people with epilepsy: Department of Health action plan in response to the national clinical audit of epilepsy-related death
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2003
- Pagination:
- 14p.
- Place of publication:
- London
The Department of Health is committed to improving standards of care and support for people with epilepsy and their families. The Department hopes this action plan will be the start of a process of improving awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP) and will lead to improved care and services for people with epilepsy. It is intended to address the needs of all groups, including those with learning disabilities.
Valuing people now: a new three-year strategy for people with learning disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 143p.
- Place of publication:
- London
Valuing people now sets out the Government's strategy for people with learning disabilities for the next three years following consultation. It also responds to the main recommendations in Healthcare for All, the independent inquiry into access to healthcare for people with learning disabilities.