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Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2013
- Pagination:
- 22
- Place of publication:
- London
- Edition:
- 2nd ed
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. The development of the guide was contributed to by a small proactive group of individuals with learning disabilities who use health care services in South East London. This group shared their thoughts, feelings and experiences at 3 focus group meetings. During these events, group members were encouraged and supported to discuss their thoughts in relation to: what dignity means; their experiences of health services; and what nurses could do to make dignity better. The guidance concludes with information relating to the particular health needs that people with learning disabilities may have, and provides ideas on working in collaboration with other service providers. (Edited publisher abstract)
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2017
- Pagination:
- 26
- Place of publication:
- London
- Edition:
- 3rd ed.
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It covers the importance of understanding people's health needs, respecting individuals, getting to know the person, having choices making decisions, feeling safe and communication. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. It also includes good practice examples. The guide has been developed with the involvement of people with learning disabilities who use health care services in South East London, who shared their experiences at 3 focus group meetings. (Edited publisher abstract)
The role of nurses in meeting the health care needs of older people with intellectual disabilities: a review of the published literature
- Author:
- JENKINS Robert
- Journal article citation:
- Journal of Intellectual Disabilities, 16(2), June 2012, pp.85-95.
- Publisher:
- Sage
- Place of publication:
- London
Through medical intervention, people with intellectual disabilities now live longer in the UK and Ireland. As a consequence they are likely to have greater physical and mental health needs when compared to the general population. This review explored whether nurses have a crucial role to play in meeting such needs, and whether nurses are prepared for this role. A search was conducted for relevant English language articles dated between 1990 and 2011. Overall, there was little evidence of nurses undertaking effective interventions in meeting the health needs of older people with intellectual disabilities. Nurses have been alerted to the increase in numbers of older people with intellectual disabilities and offered some direction on their future role in this area. However, most of the current literature is based on informed opinion rather than research.
An investigation of nursing staff attitudes and emotional reactions towards patients with intellectual disability in a general hospital setting
- Authors:
- LEWIS Sharna, STENFERT-KROESE Biza
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 23(4), July 2010, pp.355-365.
- Publisher:
- Wiley
It has been suggested that inequalities in health care for people with intellectual disabilities may be partly explained by negative attitudes of health professionals. This study aimed to investigate the attitudes and emotional reactions reported by nursing staff working in general hospitals towards caring for patients with intellectual disabilities. Attitudes towards patients with physical disabilities were also assessed to act as a comparison. An initial small scale pilot study was used to develop a self-report, vignette style questionnaire entitled ‘Caring for Patients with Disabilities, and to test its validity and reliability. In the main study, the questionnaire was distributed to 54 wards in 6 general hospitals from 4 NHS trusts in the UK. A total of 262 completed questionnaires were returned. The results demonstrated that nursing staff reported less positive attitudes, more negative emotions and fewer positive emotions, in response to caring for a patient with an intellectual disability compared to a patient with a physical disability. The occupational status (registered general nurse, student nurse, nursing assistant) had no effect upon the respondents’ reported attitudes or emotions. Finally, attitudinal and emotional variables were significantly correlated, with positive emotions being associated with more favourable attitudes. The article concludes that the presence of less positive attitudes and feelings amongst nursing staff towards patients with intellectual disabilities may affect the quality of care.
Nursing care provision for people with intellectual disabilities in institutions: a Taiwanese perspective
- Authors:
- CHWO Miao-Ju, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 30(4), December 2005, pp.193-198.
- Publisher:
- Taylor and Francis
Little attention has been paid to the healthcare workforce in determining healthcare management for people with intellectual disability (ID) in institutions in Taiwan. This paper investigated the profile of the healthcare workforce among institutions caring for people with ID, and examined differences, particularly in relation to nursing staff numbers, between the various types of settings providing care. Data were provided by 121 institutions caring for people with ID in Taiwan. Structured questionnaires were completed at these institutions, providing a cross-sectional survey. Nurses were the main health professionals employed in institutions. Even so, more than half the institutions (52.1%) did not have a nurse on their staff. The larger the size of the institution, the more likely it was that nursing staff were employed there. With regard to the relationship between institutional operating structure and the employment of nursing personnel, public institutions were more likely to employ nurses than private institutions or privately operated state-owned institutions (POSOE). However there was no statistically significant difference among the various operating structures in terms of the ratio of nurses to people with ID. The results highlight the importance of examining the regulation of an appropriate ratio of nurses: people with ID in institutions.
Extra care
- Author:
- CROUCH David
- Journal article citation:
- Nursing Times, 8.7.03, 2003, pp.22-25.
- Publisher:
- Nursing Times
Looks at the importance of nurses being aware of the additional care needs of patients with disablities.
Identifying the prevalence of aggressive behaviour reported by Registered Intellectual Disability Nurses in residential intellectual disability services: an Irish perspective
- Authors:
- CROTTY Gerard, DOODY Owen, LYONS R.
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 8(3), 2014, pp.174-187.
- Publisher:
- Emerald
Purpose: Despite the high incidence of aggressive behaviours among some individuals with intellectual disability, Ireland has paid little attention to the prevalence of aggressive behaviours experienced by Registered Intellectual Disability Nurses (RNID). Within services the focus is mainly on intervention and management of such behaviours. Therefore a disparity occurs in that these interventions and management strategies have become the exclusive concern. Resulting in aggressive behaviour being seen as a sole entity, where similar interventions and management strategies are used for ambiguously contrasting aggressive behaviours. Consequently the ability to document and assess-specific behaviour typologies and their prevalence is fundamental not only to understand these behaviour types but also to orient and educate RNIDs in specific behaviour programme development. The paper aims to discuss these issues. Design/methodology/approach: This study reports on a survey of the prevalence of verbal aggression, aggression against property and aggression against others experienced by RNIDs’ within four residential settings across two health service executive regions in Ireland. A purposeful non-random convenience sampling method was employed. Totally, 119 RNIDs responded to the survey which was an adaptation of Crocker et al. (2006) survey instrument Modified Overt Aggression Scale. Findings: The findings of this study showed the experienced prevalence rate of verbal aggression, aggression against property and aggression against others were 64, 48.9 and 50.7 per cent, respectively. Cross-tabulation of specific correlates identifies those with a mild and intellectual disability as displaying a greater prevalence of verbal aggression and aggression against property. While those with a moderate intellectual disability displayed a higher prevalence of aggression against others. Males were reported as more aggressive across all three typologies studied and those aged between 20 and 39 recorded the highest prevalence of aggression across all three typologies. The practice classification areas of challenging behaviour and low support reported the highest prevalence of aggression within all typologies. Originality/value: The health care of the person with intellectual disability and aggressive behaviour presents an enormous challenge for services. In-order to improve considerably the quality of life for clients, services need to take a careful considered pragmatic view of the issues for the person with intellectual disability and aggressive behaviour and develop realistic, proactive and responsive strategies. To do this, precise knowledge of the prevalence of aggressive behaviours needs to be obtained. This study is the first of its kind in the Republic of Ireland. (Publisher abstract)
Death by indifference: 74 deaths and counting: a progress report five years on
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2012
- Pagination:
- 40p.
- Place of publication:
- London
In March 2007, Mencap published ‘Death by indifference’, which reported the death of 6 people with learning disability as a result of failings in the NHS. This report triggered an independent inquiry ‘Healthcare for all’ which set out 10 key recommendations, all of which were accepted by the government. This report looks at what progress has been made since these publications. It confirms that, although some positive steps have been taken, many health professionals are still failing to provide adequate care to people with a learning disability. It describes the deaths of 74 people with a learning disability in NHS care over the last 10 years believed to be as a direct result of institutional discrimination. It highlights an NHS that continues to fail people with a learning disability, doctors whose practices appear to show no regard to the Equality Act or Mental Capacity Act, and nurses who fail to provide even basic nursing care to people with a learning disability. The report calls on the government to ensure that people with a learning disability receive the same quality of care as the rest of the population. Among the recommendations are for: annual health checks to become a permanent part of the GP contract; all health professionals to get training around the Equality Act and Mental Capacity Act; regulatory bodies to conduct rigorous investigations and deliver appropriate sanctions; and a standard hospital passport for all people with a learning disability.
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2009
- Pagination:
- 21p., bibliog.
- Place of publication:
- London
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. The development of the guide was contributed to by a small proactive group of individuals with learning disabilities who use health care services in South East London. This group shared their thoughts, feelings and experiences at 3 focus group meetings. During these events, group members were encouraged and supported to discuss their thoughts in relation to: what dignity means; their experiences of health services; and what nurses could do to make dignity better.
Promoting health supporting inclusion: healthy lives, part of the community; how nurses and midwives can support children and adults with learning disabilities and their families
- Authors:
- NHS SCOTLAND, SCOTLAND. Scottish Executive
- Publisher:
- NHS Scotland
- Publication year:
- 2003
- Pagination:
- 5p.
The Scottish Government has consulted users people about how to make the health of people with learning disabilities better. The new report about the work of nurses and midwives, “Promoting Health, Supporting Inclusion” outlines what all nurses and midwives can do to help people with learning disabilities stay healthy and happy. Improving the health of people with learning disabilities will help them live the kind of life they want in the community. The Government has already said that people with learning disabilities should be able to take an active part in their communities.