Search results for ‘Subject term:"learning disabilities"’ Sort:
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Premature deaths - how many could be avoided?
- Authors:
- MARRIOTT Anna, HESLOP Pauline
- Journal article citation:
- Community Living, 27(1), 2013, pp.26-27.
- Publisher:
- Hexagon Publishing
An inquiry into premature deaths among people with learning disabilities revealed that over a third could have been avoided through good quality health care. The authors, who were part of the research team, report on their findings. (Publisher abstract)
Estimating how many deaths of people with learning disabilities in England could be prevented by better medical care
- Authors:
- GLOVER Gyles, EMERSON Eric
- Journal article citation:
- Tizard Learning Disability Review, 18(3), 2013, pp.146-149.
- Publisher:
- Emerald
Using the findings of the Confidential Inquiry into Premature Deaths of People with Learning Disabilities, this article estimates the likely annual number of deaths of people with learning disabilities in England that would be amenable to healthcare, or both amenable and preventable. The Inquiry itself examined all deaths of people with learning disabilities aged four years old or older in an area comprising the former Avon metropolitan county and the remainder of the county of Gloucestershire over a two-year period. The study uses two scaling approaches, one based on age profiles of the population of the study area and of the country, the other on General Practice Quality and Outcome Framework (QOF) learning disability register statistics. National estimates of the annual number of deaths either amenable to healthcare or both amenable and preventable were 1,413 using the age-based scaling approach and 1,238 using the QOF-based approach. The two estimates are reasonably close, and represent about three and a half people a day or 25 a week. The likely accuracy of the estimates depends on how representative of the country the study area is. There are reasons for thinking that people with learning disability are, if anything, likely to be more accurately recognised and better treated there. Both influences would have the effect of reducing national estimates using the authors’ methods. This suggests they should be seen as a minimum. (Edited publisher abstract)
Six lives: progress report on healthcare for people with learning disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2013
- Pagination:
- 85
- Place of publication:
- London
This report charts the progress that has been made in healthcare for people with a learning disability since 2010. It is the second of two progress reports that the Department has published since the original Six Lives report, published in 2009, which investigated the deaths of six people with learning disabilities. It includes the personal perspectives of people with learning disabilities and their families and an easy read summary. (Edited publisher abstract)
Government response to the Confidential Inquiry into premature deaths of people with learning disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Department of Health
- Publication year:
- 2013
- Pagination:
- 29
- Place of publication:
- London
The Department of Health (DH) established and funded the Confidential Inquiry into premature deaths of people with learning disabilities from April 2010 to March 2013 in response to a recommendation in 'Healthcare for all, report of the Independent Inquiry into access to healthcare for people with learning disabilities' (July 2008). The findings show that people with learning disabilities continue to have poor experience and outcomes compared to people without learning disabilities. This response sets out a range of actions across 18 recommendations in the Confidential Inquiry to improve access, experience and outcomes for people with learning disabilities and family carers. (Original abstract)
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2013
- Pagination:
- 22
- Place of publication:
- London
- Edition:
- 2nd ed
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. The development of the guide was contributed to by a small proactive group of individuals with learning disabilities who use health care services in South East London. This group shared their thoughts, feelings and experiences at 3 focus group meetings. During these events, group members were encouraged and supported to discuss their thoughts in relation to: what dignity means; their experiences of health services; and what nurses could do to make dignity better. The guidance concludes with information relating to the particular health needs that people with learning disabilities may have, and provides ideas on working in collaboration with other service providers. (Edited publisher abstract)
The keys to life: improving quality of life for people with learning disabilities
- Author:
- SCOTLAND. Scottish Government
- Publisher:
- Scotland. Scottish Government
- Publication year:
- 2013
- Pagination:
- 178
- Place of publication:
- Edinburgh
‘The same as you?’ (2000) was the original 10-year programme designed to meet the needs of people with learning disabilities in Scotland. It was highly successful in shifting the balance of care to support more people to live in the community. This new 10-year strategy sets out a vision for improved partnership working to deliver better outcomes for people with learning disabilities, and their families and carers. It has more than 50 recommendations, most of which are aimed at health. The strategy also covers commissioning of public services; independent living; shifting the culture and keeping safe; breaking stereotypes; the needs of people with profound and multiple disabilities; criminal justice; and complex care. It includes good practice examples and case studies. Appendices include a glossary and weblinks to key organisations. (Edited publisher abstract)
Provision of mental health care for adults who have a learning disability
- Authors:
- HARDY Steve, CHAPLIN Eddie, WOODWARD Peter
- Publisher:
- Royal College of Nursing
- Publication year:
- 2013
- Pagination:
- 44
- Place of publication:
- London
- Edition:
- 3rd ed.
First published in 2007, this publication provides guidance for nurses and nursing students in mental health services in delivering high-quality health care to people with learning disabilities. It continues the RCN Learning Disability Nursing Forum’s work to ensure that people with learning disabilities have equal access to high-quality health care services. It aims to provide nursing professionals with a better understanding of the mental health needs of adults with learning disabilities and of their communication needs. It highlights the vulnerability of people with learning disabilities to mental health problems, how they present, and are assessed and treated. It gives examples of good practice and partnership working. Also included is a summary of key reports and inquiries since 2006. (Edited publisher abstract)
Briefing on the findings of the confidential inquiry into the premature deaths of people with a learning disability: executive summary
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2013
- Pagination:
- 12
- Place of publication:
- London
The Confidential Inquiry into premature deaths of people with a learning disability was commissioned by the Department of Health in 2010 to look at deaths of people with a learning disability. On March 20th 2013, the Confidential Inquiry published the findings of its two year investigation. In total, the Inquiry examined the factors leading up to the deaths of 247 people with a learning disability in the South West of England. As expected, the Inquiry found evidence that showed people with a learning disability are still not receiving equal healthcare in all NHS settings. The Inquiry found that 37% would have been potentially avoidable if good quality healthcare had been provided. The most common reasons for premature deaths were problems with investigating and assessing the cause of illness and delays or problems with treatment. Whilst a number of recommendations are made as to what can be done to improve healthcare for people with a learning disability and reduce the number of premature deaths, the key call from the Inquiry is for a continued mortality review for people with a learning disability at a national and local level. (Edited publisher abstract)
Confidential inquiry into premature deaths of people with learning disabilities (CIPOLD): final report
- Author:
- UNIVERSITY OF BRISTOL. Norah Fry Research Centre. CIPOLD
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 2013
- Pagination:
- 133
- Place of publication:
- Bristol
Report of an inquiry into premature deaths of people with learning disabilities which set out to review the patterns of care that people received in the period leading up to their deaths, identify errors contributing to these deaths, to illustrate evidence of good practice, and to provide improved evidence on avoiding premature death. The Inquiry investigated events leading to all known deaths of 247 people with disabilities (aged 4 years and older) over a 2-year period in 5 Primary Care Trust (PCT) areas of South-West England. The median age of death for people with learning disabilities (65 years for men; 63 years for women) was significantly less than for the UK population of 78 years for men and 83 years for women. Overall, 22% were under the age of 50 when they died. The report discusses causes of death; the numbers of unexpected deaths; the health and social care needs of people with learning disabilities; factors contributing to vulnerability and premature deaths; issues identified that made people with learning disabilities vulnerable to premature death; and quality of care issues. The report found the quality and effectiveness of health and social care given to people with learning disabilities to be deficient in a number of ways. Many professionals did not include approaches that adapt services to meet the needs of people with learning disabilities. Issues that made people with learning difficulties vulnerable to a premature death included problems with adherence to the Mental Capacity Act and DNACPR guidelines. The findings highlight the continuing need to identify people with learning disabilities in healthcare settings, and to record, implement and audit the provision of ‘reasonable adjustments’ to avoid their serious disadvantage. (Edited publisher abstract)
'I ain't been bothered to go': managing health problems in people with a learning disability who live without support
- Author:
- TILLY Liz
- Journal article citation:
- Diversity and Equality in Health and Care, 10(4), 2013, pp.223-230.
- Publisher:
- Insight Medical Publishing
People with a mild learning disability, who live independently without support from services, make up the largest group within the learning-disabled population. An inclusive project enabled a small group of seven people with a learning disability to take the lead in exploring their own lives. It used a grounded theory approach, enabling the group members to take a lead in the direction of the research. The aim was to explore the strategies they used to cope with day-to-day living, their experiences of poverty, and the support they received from their social networks. The research also explored issues of identity and labelling and enabled this socially excluded group to have a voice. The findings revealed multiple challenges in many aspects of day-to-day living. These challenges included a wide range of avoidable health problems and difficulty for a number of reasons in engaging with health services and health advice. This was exacerbated by having poor role models and limited social capital. Their health problems had a major impact on their lives, and many avoided diagnosis and treatment out of fear. (Publisher abstract)