Search results for ‘Subject term:"learning disabilities"’ Sort:
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How social care staff can support the health needs of people with learning disabilities
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
One of a series of factsheets to show how social care staff can support the health needs of people with learning disabilities and help them to get better access to health services. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
Health charter for social care providers
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
A charter for adult social care providers and staff providing information about the steps they can take to improve the health and wellbeing of people with learning disabilities and improve their access good healthcare. The charter list a number of pledges and specific actions for staff. (Edited publisher abstract)
The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice
- Authors:
- RAND Stacey E., MALLEY Juliette
- Journal article citation:
- Health and Social Care in the Community, 25(5), 2017, pp.1607-1619.
- Publisher:
- Wiley
Over the last three decades, quality of life (QoL) has been advocated as an indicator of social care outcomes for adults with intellectual disabilities. In England, the Adult Social Care Survey (ASCS) is conducted annually by local authorities to contribute to the evidence base of the care-related QoL of people receiving publicly funded adult social care. This study explores relationships between QoL and non-care-related factors to identify relationships that could inform social care policy and practice. Cross-sectional data collected from 13,642 adults who participated in the 2011 and 2012 ASCS were analysed using regression to explore the factors associated with QoL measured using the Adult Social Care Outcomes Toolkit (ASCOT). Self-rated health, rating of the suitability of home design and anxiety/depression were all found to be significantly associated with ASCOT. Other individual and survey completion factors were also found to have weak significant relationships with ASCOT. The models also indicate that there was an increase in overall ASCOT-QoL and in five of the eight ASCOT domains (Personal comfort and cleanliness, Safety, Social participation, Occupation and Dignity) between 2011 and 2012. These findings demonstrate the potential value of QoL data for informing policy for people with intellectual disabilities by identifying key factors associated with QoL, the characteristics of those at risk of lower QoL, and QoL domains that could be targeted for improvement over time. Future research should establish causal relationships and explore the risk adjustment of scores to account for variation outside of the control of social care support. (Publisher abstract)
What effect does transition have on health and well-being in young people with intellectual disabilities? A systematic review
- Authors:
- YOUNG-SOUTHWARD Genevieve, PHILO Christopher, COOPER Sally-Ann
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 30(5), 2017, pp.805-823.
- Publisher:
- Wiley
Background: Transition to adulthood might be a risk period for poor health in people with intellectual disabilities. However, the present authors could find no synthesis of evidence on health and well-being outcomes during transition in this population. This review aimed to answer this question. Method: PRISMA/MOOSE guidelines were followed. Search terms were defined, electronic searches of six databases were conducted, reference lists and key journals were reviewed, and grey literature was searched. Papers were selected based on clear inclusion criteria. Data were extracted from the selected papers, and their quality was systematically reviewed. The review was prospectively registered on PROSPERO: CRD42015016905. Results: A total of 15 985 articles were extracted; of these, 17 met the inclusion criteria. The results of these articles were mixed but suggested the presence of some health and well-being issues in this population during transition to adulthood, including obesity and sexual health issues. Conclusion: This review reveals a gap in the literature on transition and health and points to the need for future work in this area. (Publisher abstract)
Health promotion and intellectual disability: listening to men
- Author:
- BOLLARD Martin
- Journal article citation:
- Health and Social Care in the Community, 25(1), 2017, pp.185-193.
- Publisher:
- Wiley
Taking responsibility for your own health has been a central tenet of public health policy internationally for a number of decades. Governments in the UK and internationally continue to promote a plethora of health promotion strategies, encouraging individuals and communities to adopt healthy lifestyle choices. Although it is widely recognised that men are not as proactive in seeking out medical help or taking on health promotion advice as women, limited gender-sensitive research exists in the field of intellectual disability. Despite many health promotion policy and practice strategies targeted at this population, little research exists exploring whether men with intellectual disability acknowledge health promotion advice. The study aimed to explore how men with mild-to-moderate intellectual disability understood and perceived their health and what health promotion messages they acted upon. The study was based on a participatory approach which enabled 11 men with intellectual disability to contribute as steering group members and as participants through one-to-one interviews. Data were collected between September 2011 and July 2012. Thematic analysis was undertaken. The participants demonstrated a capacity to understand their own health. This was inclusive of a concern about associating being obese with being unhealthy. The participants reported good relationships with their general practitioners (GPs) and felt valued, in particular when the GP was prepared to offer specific intellectual disability and health promotion advice. More gendered research inclusive of the views of this male population is required and the study reiterates the importance of promoting the health of men and women with intellectual disability. (Publisher abstract)
Enhancing clinical practice: reducing health inequalities: reflections on a clinical education and training partnership
- Author:
- MARSHALL-TATE Karina
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 10(6), 2016, pp.342-348.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to outline a two-year project designed to reduce health inequalities and improve health outcomes of people with intellectual disabilities using health services in South London by raising awareness and increasing health staff confidence and capability. Design/methodology/approach: The project was conducted in two stages. In stage 1, a mapping exercise was undertaken to establish existing intellectual disabilities education and training availability. In stage 2, a network of stakeholders was formed and education and training materials were developed and delivered. Findings: A formal evaluation of the project is underway and this paper seeks to share information about the project. That said prima facie data appear to indicate that health staff who attended education and training events learned new knowledge and skills that they could implement in their practice, increasing confidence and capability. Research limitations/implications: Health staff who attended the events appeared to have an interest in intellectual disabilities and wanted to increase their knowledge and skills base. This means that there is a significant group of health staff that the project was unable to reach or who may not know that they need to know about intellectual disabilities. The results of the project have not yet been formally analysed. Practical implications: Work-based education and training events can have a positive impact on health staff capability and confidence, however, it would appear that only those who already have an interest in the field or recognise its value to their own practice attend such events. To truly capture all health staff intellectual disabilities needs to be visibly included in all health curricula. Originality/value: This project has not focussed on one profession or one aspect of healthcare and has embraced the values of inter professional and inter agency learning; this has enabled health staff to learn from each other and think in a “joined up” way replicating the realities of providing healthcare to people with intellectual disabilities. (Publisher abstract)
Fit for life
- Author:
- REES Greg
- Journal article citation:
- Learning Disability Today, 15(6), November/December 2015, pp.26-27.
- Publisher:
- Pavilion
- Place of publication:
- Hove
A case study example which describes how a woman with learning disabilities from the West Midlands changed her life by losing nearly six stone and eliminating her dependence on insulin following a complete lifestyle overhaul. The woman was supported by Sandwell Council's Adult Services team based at an Inclusive Fitness Initiative (IFI) centre, which has been accredited as a centre of excellence for people with disabilities. (Edited publisher abstract)
Lived experiences of ageing and later life in older people with intellectual disabilities
- Authors:
- KÅHLIN Ida, et al
- Journal article citation:
- Ageing and Society, 35(3), 2015, pp.602-628.
- Publisher:
- Cambridge University Press
Draws on the qualitative interviews with 12 people with intellectual disabilities (five men, seven women) to explore how older people with intellectual disability (ID), who live in group accommodation, describe their lived experience in relation to ageing and later life. Participants were aged between the ages of 48 and 71 (mean=64) and lived in four different group accommodation units in southern Sweden. A descriptive phenomenological analysis method was used, which disclosed a structure consisting of themes and sub-themes. The findings reveal the informants' lived experience of ageing and later life as a multifaceted phenomenon, expressed through the two themes. The first theme 'Age as a process of change’, included the sub-themes of bodily functions and health, activity and participation; and the supporting environment. The second theme ‘existential aspects of ageing’, included being old, becoming like others, and death and dying. The body is an essential element in their experience of ageing and growing old, and in how this experience is expressed. The study also found social, cultural and historical dimensions of the life-world to be important in the informants' experience of ageing and later life. This supports understanding of the existence of a collective life-world for older people with ID, the unique experiences the informants share because of their disability and its consequences for their lifecourse. (Edited publisher abstract)
Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care
- Author:
- WILLIS Diane S.
- Journal article citation:
- British Journal of Learning Disabilities, 43(1), 2015, pp.24-31.
- Publisher:
- Wiley
Changes in the living circumstances of people with learning disabilities have seen responsibility for their health become the provenance of paid-and family-carers. As part of a larger study exploring breast cancer screening in women with learning disabilities, thirteen semi-structured interviews were conducted with three family-carers and ten paid-carers. Interview topics covered demographics, keeping healthy, the experience of breast screening and decision-making. Findings revealed that the role of these carers was undefined, leading to difficulty in deciphering who was responsible for the health care of the people they supported, with some paid-carers claiming that health was out of their remit. The difficulty of monitoring health problems of people with learning disabilities was noted, and carers disclosed skills and techniques that they used to explain health messages to individuals. If the health needs of people with learning disabilities are to be met, then a more consistent approach to health care within the community setting is needed, especially in terms of the remit of paid-and family-carers and with the integration of health and social services. (Publisher abstract)
Caring for a child with learning disabilities: over a prolonged period of time: an exploratory survey on the experiences and health of older parent carers living in Scotland
- Authors:
- CAIRNS Deborah, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(5), 2014, pp.471-480.
- Publisher:
- Wiley
To examine the impacts of a lifetime of caring on older parents of offspring with learning disabilities an exploratory postal survey was completed by 100 older parent carers. The survey including the Medical Outcome Study (Short Form) 36 version 2 (SF-36v2). The reported survey is part of a larger mixed method study including in-depth interviews. The majority of respondents (n = 91) reported caring for 50 h or more per week with multiple caregiving duties. While the SF-36v2 reported physical health of older parent carers to be similar to UK norms, their mental health was significantly reduced. The findings highlight the vulnerability of ageing parents of offspring with learning disabilities. This previously underreported situation warrants further investigation and urgent attention from health and social care agencies and professionals. (Edited publisher abstract)